Basic Organization Information
Alzheimer's Disease and Related Disorders Association
- Also Known As:
- Physical Address:
- Web URL:
- Blog URL:
- NTEE Category:
G Disease, Disorders, Medical Disciplines
G Disease, Disorders, Medical Disciplines
G48 Brain Disorders
- Ruling Year:
To eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.
Forms 990 Provided by the Nonprofit
Letter of Determination is not available for this organization.
Mr. Harry Johns
Harry Johns became the president and chief executive officer of the Alzheimer's Association at the beginning of September 2005. Since his arrival, he has launched new initiatives to advance the cause, including the first nationwide campaign to increase understanding and awareness about Alzheimer's, a project to accelerate treatment progress by promoting participation in clinical studies and a variety of program offerings designed to support both individuals with the disease and their caregivers. He has substantially increased both revenue and program expenditures to support the mission of the organization. Prior to joining the Alzheimer's Association, Johns spent more than 22 years in various positions with the American Cancer Society (ACS). In his final role at ACS, he served as the executive vice president for strategic initiatives and as a member of the four person executive team. He was responsible for nationwide strategy directions, including information delivery, community programs, advocacy, marketing and fundraising. Johns earned a bachelor's degree in business administration from Eckerd College in St. Petersburg, Fla., and a master's degree in business administration from the Kellogg Graduate School of Management at Northwestern University in Evanston, Ill. He serves on the boards of Research America and the National Health Council.
Officers for Fiscal Year (IRS Form 990)
Highest Paid Employees & Their Compensation (IRS Form 990)
- Population Served:
The Association provides funding for studies exploring disease characteristics, causes and probable characteristics.
Program Long-Term Success:
To find a cure for Alzheimer's disease.
Program Short-Term Success:
To better understand the characteristics and causes of Alzheimer's disease.
Program Success Monitored by:
Success is monitored by senior management and the Medical and Scientific Advisory Council.
Program Success Examples:
The year 2007 entered the history books as a period of tremendous
advances in Alzheimer research. These advances occurred on all fronts,
encompassing areas as diverse as genetic risk factors for Alzheimer's,
imaging studies to identify Alzheimer's in the living brain and blood
tests that may one day be used to diagnose Alzheimer's.
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Impact Summary from the Nonprofit
Alzheimer's Association Key Accomplishments FY09 – FY11
350,000 advocates and 120 Ambassadors successfully worked with leaders in Congress and with the White House to create and enact the National Alzheimer’s Project Act.
Worked closely with the top leadership of the Social Security Administration to achieve the inclusion of Alzheimer's and certain other dementias in the Compassionate Allowances initiative.
Successfully pushed for the inclusion of cognitive impairment detection as mandatory part of the Medicare Annual Wellness visit.
Fielded nearly 700,000 calls at the nation’s only 24/365 toll free Alzheimer’s Helpline
Created and released the first revised Alzheimer’s diagnostic criteria in 27 years in partnership with the National Institute on Aging.
Developed recommendations to support clinical trials requested and implemented by the Food and Drug Administration.
Rebranded and grew our signature event, Walk to End Alzheimer’s™ ,with a 36% increase in participation over three years and 10% growth in revenue.
Published and promoted key resources about Alzheimer’s disease and its impact, including our annual Facts and Figures, Changing the Trajectory of Alzheimer’s: A National Imperative, Generation Alzheimer’s, HBO’s “The Alzheimer’s Project,” and The Shriver Report: A Woman’s Nation takes on Alzheimer’s
Developed and successfully launched the Know the 10 Signs: Early Detection Matters campaign.
Funded nearly 250 peer-reviewed grants to advance Alzheimer’s research.
Helped more than 13,000 Trial Match participants begin profiles to sign up as volunteers for clinical trials in order to help speed research
Hosted and grew the Alzheimer's Association International Conference, converting the gathering into an annual event that draws thousands of participants from around the world.
Selection twice by The Nonprofit Times as one of the “Best Nonprofits to Work For,” winning the designation, “Best Large Nonprofit to Work For” in 2011.
Expert Reviews and Comments
Evidence of Impact
The Alzheimer's Association has successfully brought Alzheimer's disease to the public consciousness and has provided meaningful services that have supported those with the disease as well as their families. This organization has been a trusted national leader on the issue and has offered helpful services to other agencies working in this field.
Experts have noted that this organization's major strengths are its effective outreach and marketing operations, its collaborative work with experts in the field and other local organizations, and its high visibility among the public.
Areas for Improvement
The areas in which the Alzheimer's Association can improve are in its internal organizational structure, the way in which it communicates with the public, and in the partnerships it seeks out.