Basic Organization Information
The Leukemia & Lymphoma Society, Inc.
- Also Known As:
- Physical Address:
White Plains, NY
- Web URL:
- Blog URL:
- NTEE Category:
G Disease, Disorders, Medical Disciplines
H Medical Research
H30 Cancer Research
- Ruling Year:
The Leukemia & Lymphoma Society (LLS) is the world’s largest voluntary health organization dedicated to funding blood cancer research and providing education and patient services. Founded in 1949, we are relentless in pursuit of our mission: Cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve the quality of life of patients and their families.
Impact Summary from the Nonprofit
This organization has not provided an impact summary.
"I used to work for them for years and the direction the CEO is taking the organization is atrocious. Their Patient Services department has now been dismantled and taken over by Advocacy. The 3 things ..." Read more »
"This guy is a LLS fraud. He is one of Walter's pals. How dare this lowlife criticize a patient stricken with Cancer. This is the type of arrogance the LLS projects to Patients and their families.
<br..." Read more »
Mr. John Walter
John joined The Leukemia & Lymphoma Society (LLS) in 1995 as Senior Vice President of Finance & Information Technology. Most recently, he designed and implemented LLS's Co-Pay Assistance Program, leading a cross-functional team that established, made operational and raised in excess of $3 million in less than six months. He also led LLS's Canadian division in adapting LLS's strategic plan.
Earlier accomplishments include projects that continue to enhance efficiencies and internal controls, such as the centralization of all finance and treasury operations in the United States and Canada. John also established LLS's information technology and Web services functions.
He came to LLS from the March of Dimes, where he worked for nine years. John had previously worked at Donaldson, Lufkin & Jenrette and at Bristol-Myers Squibb, where he had broad international experience.
Board of Directors
Highest Paid Employees & Their Compensation
Patient Services and Blood Cancer Research/Advocacy
Diseases, Disorders & Medical Disciplines
- Population Served:
hands to help patients cope: improving the
quality of life of patients and their families. The Leukemia & Lymphoma
Society offers the most comprehensive array of services to patients and
families touched by blood cancers.
A diagnosis of leukemia, lymphoma or myeloma brings many daily challenges.
The Society is committed to providing support and guidance to patients and the
health professionals who care for them.
- The Information Resource Center (IRC) provides the public, families, health
professionals and people living with blood-related cancer accurate, up-to-date,
disease-related information and referral services
Investing in blood cancer research:
LLS has invested more than $680 million in research, approximately $69 million
in fiscal year 2009 alone. Programs like the Specialized Center of
Research (SCOR), which brings together teams of scientists from different
disciplines and our Translational Research Program, which funds research with a
high probability of producing innovative patient treatments in an accelerated
time frame, have directly contributed to many breakthrough cancer
Research funded by LLS has led or contributed to advances such as
chemotherapy, bone marrow and stem cell transplantation and new, targeted oral
therapies such as Gleevec®.
Providing critical information and support for patients and their
We made 4.9 million contacts with patients, caregivers and healthcare
professionals in fiscal year 2009, through our Information Resource Center
(IRC), our award winning Web site and community-based patient service
programs. We put people together with experts through Web-casts and
teleconferences, and provided professional education through seminars, to
extend the latest findings to a broader professional audience.
for issues impacting blood cancer patients:
With more than 20,000 advocacy volunteers throughout the country, our voice is
being heard by those responsible for legislation to fund blood cancer research
and educational programs.
Program Long-Term Success:
Program Short-Term Success:
Program Success Monitored by:
Program Success Examples:
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Expert Reviews and Comments
Evidence of Impact
The Leukemia & Lymphoma Society has improved the state of various blood cancers by increasing funds to conduct research and by providing education and financial services to patients.
This organization's leadership team, its way of dealing with and recruiting volunteers, and its effective marketing strategies are reasons why the group has been so effective, according to experts.
Areas for Improvement
Experts have noted that the Leukemia & Lymphoma Society could improve by engaging in more collaborations, expanding more into the realm of policy, and hiring more staff.