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National Multiple Sclerosis Society

 
New York, NY

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&1002; Registered with IRS Legitimacy information is available
&1002; Evidence of Impact Expert Reviews available
&1002; Financial Data Annual Revenue and Expense data reported
&1002; Forms 990 2012, 2011, and 2010 Forms 990 filed with the IRS
&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit is available
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Basic Organization Information

National Multiple Sclerosis Society
Physical Address: New York, NY 10017 
EIN: 13-5661935
Web URL: www.nmss.org 
NTEE Category: G Disease, Disorders, Medical Disciplines
G99 Diseases, Disorders, Medical Disciplines N.E.C.
Year Founded: 1946 
Ruling Year: 1947 
How This Organization Is Funded: Contributions from Chapters - $75,339,647
Dues and Contributions from Members and Others - $24,758,154
Contributions for Research and Development - $1,581,779


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Mission Statement

We mobilize people and resources to drive research for a cure and to address the challenges of everyone affected by MS.

Legitimacy Information

This organization is registered with the IRS.

This organization is required to file an IRS Form 990 or 990-EZ.

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Annual Revenue & Expenses (GuideStar Exchange,
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January 2014)

Fiscal Year Starting: October 1, 2011
Fiscal Year Ending: September 30, 2012

Total Revenue $106,138,910
Total Expenses $105,460,508

Revenue & Expenses (GuideStar Exchange,
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January 2014)

Fiscal Year Starting: October 1, 2011
Fiscal Year Ending: September 30, 2012

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Balance Sheet (IRS Form 990)

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Forms 990 Provided by the Nonprofit

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Financial Statements

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Annual Reports

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Leadership (GuideStar Exchange,
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January 2014)

Ms. Cyndi Zagieboylo

Board Chair (GuideStar Exchange,
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January 2014)

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Board of Directors (GuideStar Exchange,
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January 2014)

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Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

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People information was last updated by the nonprofit in January 2014

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Programs

Program: Direct Financial Assistance Program (GuideStar Exchange,
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January 2014)

Budget:
$200,000
Category:
Population Served:
Adults

Program Description:

The Direct Financial Assistance Program provides up to $500 per year for the purchase, repair & loan of durable medical equipment, adaptations to the home and car, cooling products, air conditioners, aids for daily living, bathroom safety equipment and exercise and wellness activities.

Program Long-Term Success:

MS is financially devastating. Providing financial assistance will ease the burden of the economic impact of living with a chronic illness.  Products and services offered through this program increase safety and independence.

Program Short-Term Success:

In the short term, direct financial assistance will improve independence and quality of life for those living with MS.

Program Success Monitored by:

The program is tracked through monthly budgets and services reports to determine dollars spent and services provided. Focus groups and the Chapter's Programs and services Committee review the approved list of products and services offered annually .

Program Success Examples:

In Fiscal Year 08, 1,053 people with MS where served and $183,000 in direct financial assistance was disbursed through this program.

Program: Emergency Financial Assistance (GuideStar Exchange,
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January 2014)

Budget:
$75,000
Category:
Population Served:
Adults

Program Description:

The Emergency Financial Assistance Program, EFA, provides low income and near low income people with MS, benefits and resources that meet basic needs. The EFA Program provides up to $500 per year to aid in a crisis for utilties, rents/mortages,  food, transportation.

Program Long-Term Success:

The EFA Program supports a person with MS during a crisis and assists the person with resource identification to help mamnage the emergency in the future.Chapter staff connect the person with MS to utility programs, foreclosure and housing resources, weatherization programs and budgeting classes.

Program Short-Term Success:

The EFA Program helps a person with during a crisis to aviod utiltiies being shut off, pending evictions, and at times puts food on the table. Also the person with MS is provided access to transportation services to get to medical appointments.

Program Success Monitored by:

The EFA Program is monitored through both financial and services data bases on a monthly basis to evaluate income, expense and identify current needs of persons with MS

Program Success Examples:

Last year the EFA Program provided $76,000 in emergency financial assistance to 443 persons with MS.

Program: REACH: Relocation & Safety Assistance, Education, Awareness Change and Hope (GuideStar Exchange,
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January 2014)

Budget:
$65,000
Category:
Population Served:
Adults

Program Description:

REACH: Relocation & Safety Assistance, Education, Awareness Change and Hope. The REACH Program provides up to $1500 to persons with MS who are victims of domestic violence. The program includes screening, referral, education, safety planning and financial assistance for relocation, reparation for damages, legal fees and mental health services for persons with MS.

Program Long-Term Success:

Since the inception of the REACH program in 2006, 1500 persons with MS have been screened at two local MS Centers, 510 have been identified as victims of abuse or at risk and 250 have received support services through the program.  66 persons with MS have received financial assistance totaling $31, 600.  Last year’s direct financial assistance for REACH totaled $13,000.

Program Short-Term Success:

The REACH program coordinator has an opportunity each week to screen indiviudals with MS in person at 2 local MS Center, The West Penn Allegheny MS Center and the University of Pittsburgh Medical Center MS Center. If abuse is identified the program coordinator can develop a safety plan and provide immediate access to support services, financial assistance and referral to domestic violence service providers.

Program Success Monitored by:

The REACH program is a grant funded program and the grantor, the FISA Foundation requires bi-yearly reports on the programs successes and challenges.  Numbers of persons served are tracked through a confidential data base and follow-up occurs with victims on a regular basis to evaluate safety, the need for additional services and support.

Program Success Examples:

In fiscal year 2008, 350 people were screened, 114 people received suuport services which included safety planning,  96 disclosed that they were victims and  18 others were identified as at risk.  Each week, 2-5 people with MS disclose that they are or have experienced abuse of some form.

Program: Respite Care Program (GuideStar Exchange,
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January 2014)

Budget:
$50,000
Category:
Population Served:
Adults

Program Description:

The Respite Care Program provides up to $1200 of  funding for a home health aid to come into the home to assist the person with MS with self care and activities of daily living. This care may be provided to give the caregiver a much needed  "respite break" or when the person with MS has no caregiver and needs in-home services. The person with MS may also chose to go to an assisted living facility and the Chapter will provide $1200 for a short stay at the facility.

Program Long-Term Success:

The Respite Care Program began in 1992. At that time 5 persons with MS were served and the program costs totaled $6,000.  Each year since the inception of the Respite Care Program 5-10% more individuals receive the service.  Last year the Respite Care Program served 356 persons with MS and expenditures totaled $76,000.

Program Short-Term Success:

The Respite Care Program is designed to give the caregive a break from the 24 hour burden of providing long term care to a loved one with MS.  Caregivers are able to take a break for an evening , a weekend, or even a week at a time. Persons with MS who have no caregiver are able to receive in home services and avoid placement in a long term care facility.

Program Success Monitored by:

The program is monitor through Program Outcomes measures sent to the recipients of the service and also the caregiver. A data base tracks the number of persons served and the dollar amount disbursed for each service provided.

Program Success Examples:

Families report that they are able to take vacations, visit with grandchildren, schedule medical appoints or surgeries that they have postponed for some time. Persons with MS who have no caregivers receive help in the home and if long term community support is needed referrals are made to agencies that provide attendant care.  Each year the program sees a 5-10% increase in the request for these services.

Program: Care Management (GuideStar Exchange,
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January 2014)

Budget:
$20,000
Category:
Population Served:
Adults

Program Description:

The Chapter provides up to $1200 for care management services contracted with the ELKS Nurses of PA and Care Unlimited Care America.   The Elks nurses provide in-home assessment and community referral to persons with MS who have complex physical and social issues.  Persons with MS who are referred for to the ELKS Home nurses are not able to access services on their own or have limited community resources..

Program Long-Term Success:

The Care Management Program provides comprehensive case management services to persons with MS. Each person receives an in-home assessment and is connected to community supports or Chapter services. The Chapter has a limited number of program staff and the Elks nurses program provides monitoring and follow-up to ensure the person with MS receives the identified services. :

Program Short-Term Success:

The Elks nurses can intervene in a time of a crisis and provide immediate access to comminty services and Chapter support.  Persons with MS who are isolated or who have no support are connected to the Chapter and receive financial assistance and referral to help improve the quality of life.

Program Success Monitored by:

The Elks nurses generate a comprehensive report on each person that they visit in their homes. The report contains information and recommendations on services accessed and those that require follow-up by Chapter staff.  last year the Elks nurses visited 71 persons with MS and the total expenditures were $16,000 for the care management program

Program Success Examples:

One man who was visited was strapped to a wheelchair, soaked in unrine, had no in-home help and his family was misappropriating his Social Security checks. The Elks nurse along with Chapter staff was able to facilitate a hospital admission which included medical supervision from and MS specialist at an MS Center.  The man was appointed a repayee to supervise his Social Security, he was transferred to a rehabilitation facility and now resides in a long term care home.

Impact Summary from the Nonprofit

1.  The Chapter provided a total  of $305,000 in Direct Financial Assistance for Durable Medical Equipment, Adaptations to the Home & Car, Emergency Financial Assistance for  Transportation, Utilities, Rents/ Mortgages, Safety & Relocation Assistance for victims of Domestic Violence and funding for In-Home Services for Caregiver Respite.    2.  The Chapter  remitted  $ 1,087.351.00 in funding to support NMSS funded MS Research 3.    Local MS Activists worked together to secure an addtional $6 million for  MS Research under the Department of Defense, Congressionally Directed Medical Research Program, a total or $11 million to date has been committed tothe MS Research Program. 4. We raised $ 3,196,871 in Fiscal Year 2009  5. We mobilize the talents and resources of over 12,000 volunteers who are a collective of  passionate individuals who lend specific expertise to addressing the many complex issues of MS.  1. Raise $3,700,000 in Fiscal year 2010 to support local programs & services in Western PA and fund NMSS sponsored MS Research 2. Continue to address the challenges of each person with MS through an established network of Chapter sponsored programs & services in 26 counties of Western PA. 3. Raise awareness of MS.

Expert Reviews and Comments

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Evidence of Impact

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They have many years of experience, good operations, and leadership skills. Nonprofit Senior Staff
Excellent services. Nonprofit Senior Staff

Organizational Strengths

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Ground up governance and effective fundraising. Nonprofit Senior Staff

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