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Juvenile Bipolar Research Foundation, Inc. Organization Name provided in the GuideStar Exchange* as of 11/10/2013: Juvenile Bipolar Research Foundation, Inc.

Organization Name as listed in the IRS Business Master File as of 11/10/2014: JUVENILE BIPOLAR RESEARCH FOUNDATION INC

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.

AKA  JBRF
Maplewood, NJ

GuideStar Summary

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&1002; Registered with IRS Legitimacy information is available
&1002; Financial Data Annual Revenue and Expense data reported
&1002; Forms 990 2011, 2010, and 2009 Forms 990 filed with the IRS
&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit is available
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Basic Organization Information

Juvenile Bipolar Research Foundation, Inc. Organization Name provided in the GuideStar Exchange* as of 11/10/2013: Juvenile Bipolar Research Foundation, Inc.

Organization Name as listed in the IRS Business Master File as of 11/10/2014: JUVENILE BIPOLAR RESEARCH FOUNDATION INC

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
Also Known As: JBRF
Physical Address: Maplewood, NJ 07040 
EIN: 16-1612095
Web URL: www.jbrf.org 
Blog URL: www.jbrf.org 
NTEE Category: H Medical Research
H98 Pediatrics Research
F Mental Health, Crisis Intervention
F70 Mental Health Disorders
G Disease, Disorders, Medical Disciplines
G99 Diseases, Disorders, Medical Disciplines N.E.C.
Ruling Year: 2002 
How This Organization Is Funded: Private donors


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Mission Statement

The Juvenile Bipolar Research Foundation actively promotes and supports scientific research focused on identifying the biological cause of early onset bipolar disorder. JBRF is the first and only non-profit foundation dedicated solely to targeted, science-based research to determine the cause of and treatment for this disorder.

Legitimacy Information

This organization is registered with the IRS.

This organization is required to file an IRS Form 990 or 990-EZ.

Institutional funders should note that an organization’s inclusion on GuideStar.org does not satisfy IRS Rev. Proc. 2011-33 for identifying supporting organizations.

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Annual Revenue & Expenses (IRS Form 990, January 2011)

Fiscal Year Starting: January 01, 2011
Fiscal Year Ending: December 31, 2011

Total Revenue $521,271
Total Expenses $365,007

Revenue & Expenses

Revenue and expense information has not been provided by the nonprofit. Click here if you are associated with this organization and want to provide this information.

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Balance Sheet (IRS Form 990)

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Leadership

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Board Chair (GuideStar Exchange,
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November 2013)

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Board Co-Chair

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Board of Directors (GuideStar Exchange,
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November 2013)

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Board Leadership Practices (GuideStar Exchange,
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November 2013)
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Board Orientation & Education ?
Why does this matter? Without clarity around their responsibilities and expectations, board members are not positioned to succeed. They may find themselves challenged to fulfill their governance responsibilities or frustrated by the expectations that the organization has set for them. BoardSource recommends that every new board member participate in a formal orientation process, and that all board members sign a pledge or agreement committing to their board service and to all of the responsibilities and expectations that come with service. Ideally, board members also should participate in a formal governance training program prior to serving on a board.

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?
Response Not Provided
CEO Oversight ?
Why does this matter? Oversight and management of the chief executive is one of the board’s most important legal responsibilities. The CEO or executive director is the board's single employee, and - just like any other employer/employee relationship - regular and written assessment is critical to ensuring that the chief executive and board are communicating openly about goals and performance. BoardSource recommends that boards conduct formal, written reviews of their chief executives on an annual basis, which should include an in-person discussion with the chief executive and distribution of the written evaluation to the full board.

Has the board conducted a formal, written assessment of the chief executive within the past year?
Response Not Provided
Ethics & Transparency ?
Why does this matter? A commitment to handling conflicts of interests is essential to creating an organizational culture of transparency. Boards should create and follow a policy for identifying and handling conflicts of interest, whether real or perceived. BoardSource recommends that organizations review the conflict-of-interest statement and require signed disclosures from all board members and senior staff on an annual basis.

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements within the past year?
Response Not Provided
Board Composition ?
Why does this matter? The best boards are composed of individuals who bring a variety of skills, perspectives, backgrounds, and resources to tackle the complex and strategic challenges confronting their organizations. BoardSource recommends that boards commit to diversity and inclusion by establishing written policies and practices, which include strategic and intentional recruitment of diverse board members, continual commitment to inclusivity, and equal access to board leadership opportunities.

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?
Response Not Provided
Board Performance ?
Why does this matter? Boards need to regularly assess their own performance. Doing so ensures that they are being intentional about how they govern their organization, which is a critical component of effective board leadership. BoardSource recommends that a board conduct a self-assessment of its performance a minimum of once every three years to ensure that it is staying on track with its roles and responsibilities.

Has the board conducted a formal, written self-assessment of its performance within the past three years?
Response Not Provided

Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

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People information was last updated by the nonprofit in November 2013

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Programs

Program: Treatment Clinical Trial (GuideStar Exchange,
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November 2013)

Budget:
$451,225
Category:
Mental Health, Substance Abuse
Population Served:
Children Only (5 - 14 years)

Program Description:

Research conducted through JBRF has defined a behavioral profile which describes those children on the bipolar spectrum who are most severely affected by the illness.  This profile is called the Fear of Harm (FOH) phenotype. Since Oct. 2008, we have conducted a pilot study in which a drug called ketamine has been used to treat the symptoms of FOH. All of the children and young adults who participated in that pilot study have experienced a continuous elimination or significant reduction of the primary symptoms of the condition. The Ketamine Clinical Study has been approved by Federal Drug Administration (FDA).

Program Long-Term Success:

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

Program: Whole Genome Sequencing Study (GuideStar Exchange,
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November 2013)

Budget:
$170,000
Category:
Diseases, Disorders & Medical Disciplines
Population Served:
Children and Youth (infants - 19 years.)

Program Description:

The focus of this study is to identify the rare dysfunctional genetic variants that are linked to bipolar disorder.  The study will be conducted at the Albert Einstein College of Medicine and will be done using state of the art sequencing technology.  Using DNA from a diagnosed child and their family members, the DNA will be put through whole genome (or exome) sequencing as a tool for abnormal gene discovery.  Identification of suspect genetic variants will give us the tool to make definitive diagnosis of bipolar disorder cases.

Program Long-Term Success:

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

Impact Summary from the Nonprofit

JBRF has the largest source of symptom data in the world from children affected by bipolar disorder.  Research based on our data has resulted in: JBRF developed diagnostic screening instruments to meet the need for the early identification of bipolar disorder in children:                                        The Child Bipolar Questionnaire (CBQ) is a rapid, low-cost screening tool that has demonstrated a high degree of accuracy predicting various phenotypes of bipolar disorder as well as ADHD. The Jeannie/Jeffrey Illustrated Interview for Children is a screening instrument that makes possible the direct reporting of symptoms by a young child.  The comic-strip style illustrations promotes the child's willingness and ability to reveal mood states, fears, suicidal thoughts and/or hallucinations. The : A dimensional approach to screening for pediatric bipolar disorder, January 2011, explores the efficacy of the CBQ.   The results of a JBRF study focused on establishing guidelines for differentiating early-onset bipolar disorder from ADHD were published in the , (Jan 2011). The data from neuropsychological testing of 33 children with bipolar disorder and 22 children with ADHD-only demonstrated specific differences in the neuropsychological profiles. The MRI imaging on the subject children with bipolar disorder revealed a consistent abnormality in the amygdala.

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