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Colorectal Cancer Coalition, Inc. Organization Name provided in the GuideStar Exchange* as of 06/26/2014: Colorectal Cancer Coalition, Inc.

Organization Name as listed in the IRS Business Master File as of 06/09/2014: COLORECTAL CANCER COALITION INC

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AKA  Fight Colorectal Cancer
Alexandria, VA
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GuideStar Summary

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&1002; Registered with IRS Legitimacy information is available
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&1002; Financial Data Annual Revenue and Expense data reported
&1002; Forms 990 2013, 2012, and 2011 Forms 990 filed with the IRS
&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit and Charting Impact Report are available
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Basic Organization Information

Colorectal Cancer Coalition, Inc. Organization Name provided in the GuideStar Exchange* as of 06/26/2014: Colorectal Cancer Coalition, Inc.

Organization Name as listed in the IRS Business Master File as of 06/09/2014: COLORECTAL CANCER COALITION INC

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
Also Known As: Fight Colorectal Cancer
Physical Address: Alexandria, VA 22314 
EIN: 20-2622550
Web URL: FightColorectalCancer.org 
Blog URL: fightcolorectalcancer.org/category/fight... 
NTEE Category: G Disease, Disorders, Medical Disciplines
G01 Alliance/Advocacy Organizations
H Medical Research
H70 Digestive Diseases/Disorders Research
H Medical Research
H01 Alliance/Advocacy Organizations
Year Founded: 2005 
Ruling Year: 2005 


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Mission Statement

Fight Colorectal Cancer demands a cure for colon and rectal cancer. We educate and support patients, push for changes in policy that will increase and improve research, and empower survivors to raise their voices against the status quo.

Legitimacy Information

This organization is registered with the IRS.

This organization is required to file an IRS Form 990 or 990-EZ.

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Annual Revenue & Expenses (GuideStar Exchange,
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June 2014)

Fiscal Year Starting: July 1, 2012
Fiscal Year Ending: June 30, 2013

Total Revenue $1,366,594
Total Expenses $1,377,420

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June 2014)

Fiscal Year Starting: July 1, 2012
Fiscal Year Ending: June 30, 2013

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Balance Sheet (IRS Form 990)

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Forms 990 Received from the IRS Additional Information
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Forms 990 Provided by the Nonprofit

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Financial Statements

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Annual Reports

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Leadership (GuideStar Exchange,
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June 2014)

Ms. Anjee Davis

Profile:

Anjelica (“Anjee”) Davis joined Fight Colorectal Cancer in December 2011. She came from the University of South Carolina’s Center for Colon Cancer Research, managing the development and implementation of community-based colorectal cancer programs supporting screening, education and awareness activities. Prior to that, in 2002, she was hired by a private oncology clinic to oversee clinical trials and recruitment. Ms. Davis brings a unique understanding of cancer research as well as clinical systems. She has a bachelor’s degree from Southwest Missouri State and a Master of Public Policy Administration from the University of Missouri-St. Louis. Ms. Davis is chair of the Blue Star committee for the National Colorectal Cancer Roundtable (NCCRT), past member of the steering committee (2009-2012). She is an active member of the Cancer Leadership Council, Research!America, One Voice Against Cancer (OVAC) and the South Carolina Gastroenterology Association. Her awareness activities have been recognized by the Printing Industry of the Carolinas, Inc. for graphic communication excellence. In 2011 and 2013, her work was recognized by the NCCRT’s Blue Star Challenge. In 2011, she was awarded the Betty Anne Moore Community Leadership award for her impact in leading statewide screening and awareness efforts in South Carolina. Advocating for better policies, access to prevention and treatment options for patients is an effort she is passionate about. She resides in Charleston, SC with her husband and son.

Leadership Statement:

Fight Colorectal Cancer (formerly C3: Colorectal Cancer Coalition) was founded in March 2005 with the dream of making the world a better  place for people living with colorectal cancer.  We enjoyed some great success in 2011, and we have our donors to thank.   In 2011, Fight CRC gave away our 150,000th dollar to a talented colorectal cancer researcher examining new signaling pathways in metastatic colorectal cancer tumors. In this day and age of dwindling research money, innovation is hurting. In the research community, money is tight so the scientists with the crazy ideas (the ones that could lead to a cure someday), are not getting the funding they need. Fight CRC has made a commitment to support that kind of research until that innovative idea becomes the new standard of care.   We continue to see our work on Capitol Hill pay off in a big way for colorectal cancer researchers. Our work directly resulted in millions of dollars for colorectal cancer research through the Department of Defense’s Peer Reviewed Cancer Research Program. This is money for colorectal cancer research that was not there the year prior. We will continue to work to protect this new funding stream for years to come.

Board Chair (GuideStar Exchange,
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June 2014)

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June 2014)

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Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

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People information was last updated by the nonprofit in June 2014

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Programs

Program: Patient Education and Public Awareness (GuideStar Exchange,
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June 2014)

Budget:
--
Category:
Population Served:
Adults

Program Description:

Fight Colorectal Cancer’s patient education and public awareness program provides timely, up-to-date, medically-reviewed information for colorectal cancer patients, family members, caregivers, colorectal cancer advocates and healthcare providers.  Fight Colorectal Cancer’s patient information covers the full range of colorectal cancer health needs from preventing colorectal cancer through the many issues of treatment through long-term questions of survivorship.

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Program: Research (GuideStar Exchange,
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June 2014)

Budget:
--
Category:
Population Served:
Adults

Program Description:

Fight Colorectal Cancer is a leader in the fight for a cure, supporting innovative research both financially and strategically.  In addition, Fight Colorectal Cancer focuses on empowering advocates to be the most informed and well educated when speaking up for the needs and priorities of colorectal cancer patients.  We are constantly strengthening that voice by training a sustainable army of research advocates to make a difference in colorectal cancer research.   Fight Colorectal Cancer represents the patient voice in the development and implementation of research and research policy.  Our research advocates are members of patient advisory boards, colorectal cancer Specialized Programs of Research Excellence (SPOREs), Cooperative Groups and Institutional Review Boards.  Fight Colorectal Cancer continues to build its presence with researchers in government agencies, academic centers and industry advisory boards through regular meetings, conferences and communication.  Fight Colorectal Cancer also works with the country’s leading research centers which includes the National Cancer Institute (NCI) and Food and Drug Administration (FDA) always speaking for patients.

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Program: Public Policy (GuideStar Exchange,
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June 2014)

Budget:
--
Category:
Population Served:
Adults

Program Description:

Fight Colorectal Cancer is making a difference on Capitol Hill.  Seen as a leading colorectal cancer advocacy organization on Capitol Hill, Fight Colorectal Cancer is able to bring attention, as well as respond to, legislative and regulatory issues on behalf of people touched by colorectal cancer.  In addition, Fight Colorectal Cancer focuses on recruiting and engaging colorectal cancer advocates to further its legislative efforts.  To provide for the most effective and efficient advocates possible, Fight Colorectal Cancer trains and educates these individuals to have the most viable understanding of colorectal cancer and its place among public policy.  Today, Fight Colorectal Cancer is a growing legion of grassroots advocates who bring the urgent need for legislation and policy change to local communities, state government and Washington, DC.  To be even more effective, Fight Colorectal Cancer partners with other organizations fighting colorectal cancer including One Voice Against Cancer (OVAC), National Colorectal Cancer Roundtable (NCCRT), Cancer Leadership Council (CLC) and Coalition of Cancer Cooperative Groups.

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Impact Summary from the Nonprofit Additional Information
A Charting Impact Report consists of an organization’s responses to the five questions. Helping validate this self-reported data are three reviews. Once an organization has used the online interface to complete its report, its responses will produce a document with a unique URL that will be shared on this website, on your GuideStar profile, on the reports of charities participating in BBB Wise Giving Alliance evaluations, and – in the future – with other websites and information sources about nonprofits. We encourage organizations to use this URL to share their report on their own website and through their own media channels. Participants will receive guidance about promoting their Charting Impact Report, along with other benefits, once they publish their report.

Fight Colorectal Cancer (Fight CRC) is committed to being a “game-changer” to the fight against colorectal cancer. While this game-changing innovation has not yet been fully defined, we know it encompasses leveraging our strengths to generate groundbreaking ideas that will not just shift the landscape of colorectal cancer, but turn it upside down. We are a growing organization that recognizes the value in and the responsibility for creating a meaningful three-year strategic plan. The foundation of Fight CRC is built on an “Advocacy Model”. We believe that strong advocacy efforts lead to policy change and subsequently, to social change. Our strategic plan lays the foundation for Fight CRC to continue to dedicate and prioritize resources towards ensuring Fight CRC’s long-term sustainability, funding vital research, forming strategic alliances and political partnerships, and increasing public awareness of both our organization as well as colon and rectal cancer.
For more in-depth information about this organization's impact, view their Charting Impact Report.

Expert Assessment

The Colorectal Cancer Coalition (Fight Colorectal Cancer) has an extraordinary ability to impact legislation and spark important changes in legislation related to research and services for colorectal cancer. Read More »

Expert Reviews and Comments

2011 Philanthropedia Top Nonprofit

This organization is a 2011 Philanthropedia top nonprofit, recommended by experts as having high impact.

These expert reviews were generated through Philanthropedia's research methodology to identify high-impact nonprofits. Learn more

Evidence of Impact

The Colorectal Cancer Coalition (Fight Colorectal Cancer) has an extraordinary ability to impact legislation and spark important changes in legislation related to research and services for colorectal cancer.

Good Services for Patients
Fight Colorectal Cancer has an excellent track record of patient education and advocacy. They are beginning to get involved in funding research as well. Nonprofit Senior Staff
They have highly effective public interest and patient services work. Nonprofit Senior Staff
This organization is far better than most at blending compassionate assistance to individual patients and family members with a sophisticated technical understanding of the disease, treatment options, and technically complex policy issues. Other
Strong Influence on Policymaking and Legislation
In the 6 years since Fight Colorectal Cancer was founded, they have had an impact in areas where nothing had been done before: 1. They obtained and kept Department of Defense funding for colorectal cancer research, a challenge in the current fiscal environment. Fight Colorectal Cancer led the charge to maintain funding; 2. The funded research directly through Lisa Fund-AACR grants, increasing the number of awards in 2012; 3. They worked with FDA for the past 4 years on leucovorin drug shortage and pushed to allow importation which is currently allowed; 4. They supported patient advocates who volunteer with the publicly-funded research network that develops and conducts clinical trials; 5. They engaged in leadership committees with national and international efforts to streamline clinical research process while maintaining patient protection; 6. They trained grassroots advocates to lobby Congress effectively through annual national meetings and Hill visits; 7. They worked with Hill offices to get a national screening program (based on the 20 year old breast-cervical screening program) introduced to both the House and the Senate this year. Other
They have had an impact on policy, legislative support, and education. Nonprofit Senior Staff
Help Fund Research
They are able to impact federal funding for colorectal cancer and have succeeded in seeing legislation introduced and funding increased. Nonprofit Senior Staff
Fight Colorectal Cancer was responsible for securing millions of dollars for new research through their work on Capitol Hill. They were instrumental in getting colorectal cancer screenings included in health care reform. The organization was sited as providing the best information for patients about the new KRAS findings (regarding EGFR efficacy) when it came out in 2008. Currently is leading the way in keeping patients informed about the leucovorin and 5-FU shortages. They also directly fund research. In the six years of their existence, they have provided four research grants totaling $150,000. Nonprofit Senior Staff
Well Informed
They are well informed, vocal, and professional. Nonprofit Senior Staff
Impact in their Work
They have evidence of impact. Other

Organizational Strengths

This organization has been effective because of its powerful leadership and its ability to make the best out of its limited resources.

Strong Leadership
Carlea Bauman really knows Washington and how to communicate with leaders, as well as the community she represents. Nonprofit Senior Staff
Great Reputation
This is a very small, new organization which has accomplished more for its constituents than many larger, older organizations thanks to strong leadership which supports and develops an excellent staff. I hear very good feedback from individuals and organizations that interact with them. They have an excellent reputation and have policies and practices in place to ensure that all conflicts of interest are disclosed (for example, in FDA testimony) and that all data shared with constituents is objective rather than framed through a company's lens. Other
Great Staff
They have a strong advocacy staff and an effective volunteer structure. Nonprofit Senior Staff
They are strong because of their board leadership, staff leadership, and staff. Nonprofit Senior Staff
Good Leadership and Good Use of Resources
Their leadership and efficiency are their strengths. Nonprofit Senior Staff
The leadership of this organization is excellent, has built a small professional and competent staff, and has attracted the dedicated service of some very good professional and lay volunteers. The organization works within its budget, attracts a diversified range of funding, and has matured to the point that the ongoing work of the organization is not dependent on any one individual. Other

Areas for Improvement

Experts have noted that Fight Colorectal Cancer could improve by seeking greater capacity and widening its reach and visibility across the nation.

Higher Visibility
Their marketing could be better. Still too few people know about the amazing services they provide! Nonprofit Senior Staff
Greater Capacity
Advocacy organizations need numbers to have the most significant impact on national policy. They also need additional capacity: they have ambitious goals which need additional capacity to be met. Other
The group has limited staff capacity. It would benefit from a stronger bullpen. Nonprofit Senior Staff
It could improve capacity to do more work. Nonprofit Senior Staff
Wider Reach
This non-profit could expand its reach (thus expanding its impact) with more aggressive public relations and communications to increase its grassroots base. Nonprofit Senior Staff
Diversity of Funds
They should further diversification of funding sources and accumulation of a larger cash reserve to insure continuity of operations during funding cycle downturns. Other
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Third Party Ratings, Accreditations and Awards

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