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United Cerebral Palsy, Inc. Organization Name provided in the GuideStar Exchange* as of 07/15/2014: United Cerebral Palsy, Inc.

Organization Name as listed in the IRS Business Master File as of 11/10/2014: UNITED CEREBRAL PALSY INC

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.

AKA  UCP
Washington, DC
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GuideStar Summary

&1002; GuideStar Exchange Committed to transparency ?
This organization is a Silver-level GuideStar Exchange participant, demonstrating its commitment to transparency.

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&1002; Registered with IRS Legitimacy information is available
&1002; Evidence of Impact Expert Reviews available
&1002; Financial Data Annual Revenue and Expense data reported
&1002; Forms 990 2013, 2012, and 2011 Forms 990 filed with the IRS
&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit is not available
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Basic Organization Information

United Cerebral Palsy, Inc. Organization Name provided in the GuideStar Exchange* as of 07/15/2014: United Cerebral Palsy, Inc.

Organization Name as listed in the IRS Business Master File as of 11/10/2014: UNITED CEREBRAL PALSY INC

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
Also Known As: UCP
Physical Address: Washington, DC 20006 
EIN: 20-3568840
Web URL: www.ucp.org 
Blog URL: ucp.org/category/voices-of-ucp/ 
NTEE Category: P Human Services
P20 Human Service Organizations
W Public, Society Benefit
W99 Public, Society Benefit - Multipurpose and Other N.E.C.
G Disease, Disorders, Medical Disciplines
G01 Alliance/Advocacy Organizations
Ruling Year: 2006 
Top Funders: Affiliate Membership Fees - $2,373,984
Investment Return - $1,328,342
Contributions - $1,571,029


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Mission Statement

United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities.UCP and its nearly 100 affiliates have a mission to advance the independence, productivity and full citizenship of people with a spectrum of disabilities by providing services and support to more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society.  Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond.

Legitimacy Information

This organization is registered with the IRS.

This organization is required to file an IRS Form 990 or 990-EZ.

Institutional funders should note that an organization’s inclusion on GuideStar.org does not satisfy IRS Rev. Proc. 2011-33 for identifying supporting organizations.

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Annual Revenue & Expenses

(GuideStar Exchange,
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July 2014)

Fiscal Year Starting: October 1, 2012
Fiscal Year Ending: September 30, 2013

Total Revenue $4,256,567
Total Expenses $5,371,753

Revenue & Expenses

(GuideStar Exchange,
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July 2014)

Fiscal Year Starting: October 1, 2012
Fiscal Year Ending: September 30, 2013

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Balance Sheet (IRS Form 990)

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Forms 990 Received from the IRS Additional Information
IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar website is an ongoing process.

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Forms 990 Provided by the Nonprofit

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Financial Statements

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Annual Reports

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Leadership

(GuideStar Exchange,
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July 2014)

Mr. Stephen Bennett

Leadership Statement:

Thank you for your interest in helping to support United Cerebral Palsy (UCP) efforts to achieve a Life Without Limits For People With Disabilities. Founded in 1949 to help children with cerebral palsy, our scope of work has expanded to serve adults and children with more than 200 types of disabilities. More than 65% of all people assisted by UCP have a disability other than cerebral palsy. The UCP affiliate network directly serves more than 176,000 children and adults with disabilities and their families every day. We are more than our name implies. The mission of United Cerebral Palsy is to advance the independence, productivity and full citizenship of people with disabilities through an affiliate network. I would like to encourage you to sign up for our e-newsletters listed on our Web site at http://www.ucp.org thank you.  We hope you choose to support United Cerebral Palsy.

Board Chair (GuideStar Exchange,
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July 2014)

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Board Co-Chair

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Board of Directors (GuideStar Exchange,
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July 2014)

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Board Leadership Practices (GuideStar Exchange,
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July 2014)
?

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

Board Orientation & Education ?
Why does this matter? Without clarity around their responsibilities and expectations, board members are not positioned to succeed. They may find themselves challenged to fulfill their governance responsibilities or frustrated by the expectations that the organization has set for them. BoardSource recommends that every new board member participate in a formal orientation process, and that all board members sign a pledge or agreement committing to their board service and to all of the responsibilities and expectations that come with service. Ideally, board members also should participate in a formal governance training program prior to serving on a board.

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?
No
CEO Oversight ?
Why does this matter? Oversight and management of the chief executive is one of the board’s most important legal responsibilities. The CEO or executive director is the board's single employee, and - just like any other employer/employee relationship - regular and written assessment is critical to ensuring that the chief executive and board are communicating openly about goals and performance. BoardSource recommends that boards conduct formal, written reviews of their chief executives on an annual basis, which should include an in-person discussion with the chief executive and distribution of the written evaluation to the full board.

Has the board conducted a formal, written assessment of the chief executive within the past year?
No
Ethics & Transparency ?
Why does this matter? A commitment to handling conflicts of interests is essential to creating an organizational culture of transparency. Boards should create and follow a policy for identifying and handling conflicts of interest, whether real or perceived. BoardSource recommends that organizations review the conflict-of-interest statement and require signed disclosures from all board members and senior staff on an annual basis.

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements within the past year?
Yes
Board Composition ?
Why does this matter? The best boards are composed of individuals who bring a variety of skills, perspectives, backgrounds, and resources to tackle the complex and strategic challenges confronting their organizations. BoardSource recommends that boards commit to diversity and inclusion by establishing written policies and practices, which include strategic and intentional recruitment of diverse board members, continual commitment to inclusivity, and equal access to board leadership opportunities.

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?
No
Board Performance ?
Why does this matter? Boards need to regularly assess their own performance. Doing so ensures that they are being intentional about how they govern their organization, which is a critical component of effective board leadership. BoardSource recommends that a board conduct a self-assessment of its performance a minimum of once every three years to ensure that it is staying on track with its roles and responsibilities.

Has the board conducted a formal, written self-assessment of its performance within the past three years?
No

Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

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People information was last updated by the nonprofit in July 2014

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Programs

Program: My Life Without Limits (GuideStar Exchange,
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July 2014)

Budget:
$35,000
Category:
Public, Society Benefit, General/Other
Population Served:
Disabled, General or Disability Unspecified
None
None

Program Description:

My Life Without Limits, MLWL, previously known as Brave Kids, provides an online support community and an aggregate source of information that relates to the needs and interests of individuals with a range of disabilities. For more information, please visit www.BraveKids.org.

Program Long-Term Success:

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

More than 2,300 online support community members; 7,000 monthly newsletter subscribers

Program: My Child Without Limits (GuideStar Exchange,
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
July 2014)

Budget:
$25,000
Category:
Public, Society Benefit, General/Other
Population Served:
Disabled, General or Disability Unspecified
Children and Youth (infants - 19 years.)
None

Program Description:

My Child Without Limits (MCWL) supports families and caregivers of individuals with a range of disabilities, by providing an online support community and a single, trusted, aggregate source of information that relates to their needs and interests. For more information, please visit www.MyChildWithoutLimits.org.

Program Long-Term Success:

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

Medically-reviewed content; Resources available in Spanish; More than 2,300 online support community members; 7,000 monthly newsletter subscribers

Program: Affiliate Support Activities (GuideStar Exchange,
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
July 2014)

Budget:
$550,000
Category:
None
Population Served:
Disabled, General or Disability Unspecified
None
None

Program Description:

Conduct leadership briefings for affiliate staff and volunteer leadership that includes policy briefings, governance issues, marketing, development and affiliate network support. Facilitate four regional meetings for the affiliates in the Spring and Fall providing a forum for affiliates to share information in a peer to peer manner, gain support from UCP leadership and share best practices. Provide quarterly topical conference calls related to specific topics open to all affiliate staff and board members. Conduct an annual meeting for the membership of the organization held annually at the three day annual conference of affiliates. Provide support to affiliate leadership in strategic planning, governance, succession planning and on-boarding of new leadership. Provide opportunities for affiliate convenings around specific topics that include managed care, employment of people with disabilities, research and the value of mergers, collaborations to increase operational efficiencies. Provide support for affiliates to provide services that encourage and provide opportunity for people with disabilities to live a Life Without Limits.

Program Long-Term Success:

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

Program: Life Labs (GuideStar Exchange,
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
July 2014)

Budget:
--
Category:
Science & Technology, General/Other
Population Served:
Disabled, General or Disability Unspecified
Adults
General Public/Unspecified

Program Description:

Life Labs is a technology and grassroots-focused initiative of United Cerebral Palsy to identify, develop, and support ideas that will make a difference for people living with disabilities. Through dynamic collaborations with individuals, businesses, and communities, we work together to bring innovative ideas to life.

Program Long-Term Success:

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

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Impact Summary from the Nonprofit

This organization has not provided an impact summary.

Expert Reviews and Comments

2013 Philanthropedia Top Nonprofit

This organization is a 2013 Philanthropedia top nonprofit, recommended by experts as having high impact.

These expert reviews were generated through Philanthropedia's research methodology to identify high-impact nonprofits. Learn more

Evidence of Impact

United Cerebral Palsy is a resource for people who are affected with cerebral palsy diagnosis. Among many goals is their assistance with housing.

Largest Provider of Housing for Individuals with Disabilities
They are largest provider of housing for adults with disabilities. They provide good family support and services. Other
Provides Support for Individuals with Cerebral Palsy
They assist with big ticket items statewide for families with diagnosis of cerebral palsy. Nonprofit Senior Staff

Organizational Strengths

United Cerebral Palsy’s strengths are well balanced finances along with effective operations. Their staff is dedicated to the mission advocating for disabled individuals.

Attentive Staff
Staff in their group homes is professional, caring and attentive. Nonprofit Senior Staff
Effective Organizational Operations
They are excellent at leveraging government dollars with private funds. Other
They have funding and ease of service. They are direct with limited bureaucracy. Nonprofit Senior Staff

Areas for Improvement

Next to funding, recommendations for the United Cerebral Palsy included communication with other organizations, and advance housing models for adults with disabilities.

Better Communication
The organization is sometimes unresponsive. Nonprofit Senior Staff
New Housing Models
They need to create new housing models for adults with autism that are more independent than group home settings. Other
More Funding
United Cerebral Palsy needs more funding to get to the end of year. They could run out for our area in spring prior to July budget ending. Nonprofit Senior Staff
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Reviews

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