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WHITTEMORE PETERSON INSTITUTE FORNEURO IMMUNE DISEASES Organization Name provided in the GuideStar Exchange* as of 11/26/2013: WHITTEMORE PETERSON INSTITUTE FORNEURO IMMUNE DISEASES

Organization Name as listed in the IRS Business Master File as of 09/08/2014: WHITTEMORE PETERSON INSTITUTE FORNEURO IMMUNE DISEASES

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AKA  Whittemore Peterson Institute
Reno, NV
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GuideStar Summary

&1002; GuideStar Exchange Committed to transparency ?
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&1002; Registered with IRS Legitimacy information is available
&1002; Financial Data Annual Revenue and Expense data reported
&1002; Forms 990 2012, 2011, and 2010 Forms 990 filed with the IRS
&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit is available
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Basic Organization Information

WHITTEMORE PETERSON INSTITUTE FORNEURO IMMUNE DISEASES Organization Name provided in the GuideStar Exchange* as of 11/26/2013: WHITTEMORE PETERSON INSTITUTE FORNEURO IMMUNE DISEASES

Organization Name as listed in the IRS Business Master File as of 09/08/2014: WHITTEMORE PETERSON INSTITUTE FORNEURO IMMUNE DISEASES

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
Also Known As: Whittemore Peterson Institute
Physical Address: Reno, NV 89557 0552
EIN: 20-5904991
Web URL: www.wpinstitute.org/ 
Blog URL: wingsofhopefornid.blogspot.com/ 
NTEE Category: U Science and Technology Research Institutes
U99 Science and Technology Research Institutes, Services N.E.C.
G Disease, Disorders, Medical Disciplines
G99 Diseases, Disorders, Medical Disciplines N.E.C.
T Philanthropy, Voluntarism, and Grantmaking
T99 Other Philanthropy, Voluntarism, and Grantmaking Foundations N.E.C.
Ruling Year: 2007 


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Mission Statement

The Whittemore Peterson Institute for Neuro-Immune Disease exists to bring discovery, knowledge, and effective treatments to patients with illnesses that are caused by acquired dysregulation of both the immune system and the nervous system, often resulting in life long disease and disability.

Legitimacy Information

This organization is registered with the IRS.

This organization is required to file an IRS Form 990 or 990-EZ.

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Annual Revenue & Expenses

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Fiscal Year Starting:
Fiscal Year Ending:

Total Revenue $1,131,734
Total Expenses $1,095,509

Revenue & Expenses

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Balance Sheet (IRS Form 990)

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Forms 990 Received from the IRS Additional Information
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Forms 990 Provided by the Nonprofit

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Financial Statements

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Annual Reports

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Leadership

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Mrs. Annette F. Whittemore

Leadership Statement:

WPI’s research goal is to understand the pathophysiology of chronic immune and autoimmune diseases. WPI’s newly published research study titled, Plasmacytoid Dendritic Cells in the Duodenum of Individuals Diagnosed with Myalgic Encephalomyelitis Are Uniquely Immunoreactive to Antibodies to Human Endogenous Retroviral Proteins, describes a potential link between myalgic encephalomyelitis (ME) and processes that are known to be involved in autoimmunity. These findings are similar to findings in other diseases, such as MS and lupus, in which endogenous retroviruses play a role. We believe that by building on the biological associations between ME and other well known diseases, we will continue to discover important answers to all of these diseases, which will lead to effective treatment strategies and improved patient care. Critical to the success of WPI’s research program is the sophisticated Next Generation Sequencing equipment that was acquired jointly with the University of Nevada, Reno and placed in the Nevada Genomics Center. WPI is proud to be able to support the greater community by combining the institute’s efforts and resources with the University’s in order to stay at the forefront of biological research. As part of WPI’s translational research efforts, doctors in the Center for Translational Medicine (CTM) continued to provide individualized medical care in an effort to create a better understanding of complex disease. In addition to supporting the CTM, WPI collaborated with medical experts outside of the institute from such diverse fields as rheumatology, infectious disease, neurology, and immunology. As we move forward, it is important to note how fortunate WPI is to be centrally located between University research laboratories and a busy medical school. Talented, dedicated scientists and research oriented medical students provide a unique opportunity for the institute to grow and prosper. This critical synergy between both institutions promises to yield greater advances in a shorter period of time. While we understand that scientific inquiry requires the use of slow and precise methods, we believe that it is essential that we shorten the time between discovery and more effective patient care.

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November 2013)

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Board Co-Chair

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Board Orientation & Education ?
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Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?
Response Not Provided
CEO Oversight ?
Why does this matter? Oversight and management of the chief executive is one of the board’s most important legal responsibilities. The CEO or executive director is the board's single employee, and - just like any other employer/employee relationship - regular and written assessment is critical to ensuring that the chief executive and board are communicating openly about goals and performance. BoardSource recommends that boards conduct formal, written reviews of their chief executives on an annual basis, which should include an in-person discussion with the chief executive and distribution of the written evaluation to the full board.

Has the board conducted a formal, written assessment of the chief executive within the past year?
Response Not Provided
Ethics & Transparency ?
Why does this matter? A commitment to handling conflicts of interests is essential to creating an organizational culture of transparency. Boards should create and follow a policy for identifying and handling conflicts of interest, whether real or perceived. BoardSource recommends that organizations review the conflict-of-interest statement and require signed disclosures from all board members and senior staff on an annual basis.

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements within the past year?
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Board Composition ?
Why does this matter? The best boards are composed of individuals who bring a variety of skills, perspectives, backgrounds, and resources to tackle the complex and strategic challenges confronting their organizations. BoardSource recommends that boards commit to diversity and inclusion by establishing written policies and practices, which include strategic and intentional recruitment of diverse board members, continual commitment to inclusivity, and equal access to board leadership opportunities.

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?
Response Not Provided
Board Performance ?
Why does this matter? Boards need to regularly assess their own performance. Doing so ensures that they are being intentional about how they govern their organization, which is a critical component of effective board leadership. BoardSource recommends that a board conduct a self-assessment of its performance a minimum of once every three years to ensure that it is staying on track with its roles and responsibilities.

Has the board conducted a formal, written self-assessment of its performance within the past three years?
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Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

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People information was last updated by the nonprofit in November 2013

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Programs

Program: (GuideStar Exchange,
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November 2013)

Budget:
$262,382
Category:
Population Served:

Program Description:

The primary purpose of the institute is to provide clinical patient care, engage in basic and clinical research, promote higher education, and to do any other act or thing and to engage in and carry on any other activity in any manner connected with or incidental to, or calculated to, promote, assist, aid or accomplish any of the aforesaid purpose

Program Long-Term Success:

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

Program: Holiday of Hope (GuideStar Exchange,
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November 2013)

Budget:
--
Category:
None
Population Served:
None
None
None

Program Description:

Holidays can be especially difficult for those who are seriously ill and isolated from their friends and family. To meet this challenge, WPI launched the first annual Holiday of Hope project in 2011. Each December, we deliver gift baskets with soothing gifts to patients who may be homebound during the holidays. This year we hope to expand this project to include a greater number of severely ill patients. Your donations to Holiday of Hope will help bring comfort to those in need during the holidays. If you are interested in helping or volunteering, please contact Kellen Jones at (775) 682-8250 or kjones@wpinstitute.org.

Program Long-Term Success:

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

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Impact Summary from the Nonprofit

The Whittemore Peterson Institute for Neuro-Immune Disease (WPI) is a medical research institute created to address the lack of scientific and medical knowledge surrounding a group of debilitating illnesses that impact the immune system and the brain. The institute’s research program is addressing the biological causes of myalgic encephalomyelitis (ME) and Gulf War illness. Future studies will include fibromyalgia, autism and atypical MS. These chronic and debilitating physical conditions have no agreed upon biological markers or blood tests to confirm their diagnosis. In addition, there are no FDA approved treatments to reduce the burden of disease, yet they impact tens of millions of people around the world. WPI is dedicated to integrity and innovation in research and clinical care, and to up-to-date education for the benefit of patients, their families and medical providers.  Through the use of its modern research laboratories and comprehensive medical facilities, the institute continues to serve patients from around the world. Institute achievements include the discovery of a unique inflammatory signature in a subset of ME patients (a potential biomarker of disease) and the implementation of informative scientific seminars and conferences.  WPI has also supported multiple physicians in their research of various patient treatments including antiviral medications and immune therapies.  WPI has promoted national recognition of the serious impact of neuro-immune diseases and urgent need for greater federal research funding.  We have also created greater disease awareness, through our annual community walk and public health events, in recognition of National Women’s Health Week.   Future clinical trials at WPI will result in affordable, effective treatment options for this underserved population.  As we achieve our goals we will fulfill a critical need for more rapid advances on behalf of those with neuro-immune disease.
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