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PABLOVE FOUNDATION INC Organization Name provided in the GuideStar Exchange* as of 08/05/2014: PABLOVE FOUNDATION INC

Organization Name as listed in the IRS Business Master File as of 07/14/2014: PABLOVE FOUNDATION INC

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AKA  The Pablove Foundation
Los Angeles, CA
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GuideStar Summary

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&1002; Registered with IRS Legitimacy information is available
&1002; Financial Data Annual Revenue and Expense data reported
&1002; Forms 990 2012, 2011, and 2010 Forms 990 filed with the IRS
&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit is available
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Basic Organization Information

PABLOVE FOUNDATION INC Organization Name provided in the GuideStar Exchange* as of 08/05/2014: PABLOVE FOUNDATION INC

Organization Name as listed in the IRS Business Master File as of 07/14/2014: PABLOVE FOUNDATION INC

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
Also Known As: The Pablove Foundation
Physical Address: Los Angeles, CA 90028 
EIN: 26-3006100
Web URL: www.pablove.org 
NTEE Category: H Medical Research
H98 Pediatrics Research
H Medical Research
H30 Cancer Research
A Arts, Culture, and Humanities
A99 Other Art, Culture, Humanities Organizations/Services N.E.C.
Ruling Year: 2009 


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Mission Statement

The mission of The Pablove Foundation is to invest in underfunded, cutting-edge pediatric cancer research, inspire cancer families through education, and improve the lives of children living with cancer through the arts. We help kids with cancer live – a love-filled life today, and a cancer-free life tomorrow.

Legitimacy Information

This organization is registered with the IRS.

This organization is required to file an IRS Form 990 or 990-EZ.

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Annual Revenue & Expenses (GuideStar Exchange,
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August 2014)

Fiscal Year Starting: January 1, 2012
Fiscal Year Ending: December 31, 2012

Total Revenue $1,417,383
Total Expenses $906,290

Revenue & Expenses (GuideStar Exchange,
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August 2014)

Fiscal Year Starting: January 1, 2012
Fiscal Year Ending: December 31, 2012

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Balance Sheet (IRS Form 990)

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Forms 990 Received from the IRS Additional Information
IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar website is an ongoing process.

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Forms 990 Provided by the Nonprofit

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Financial Statements

Audited Financial Statement is not available for this organization.

Annual Reports

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Leadership (GuideStar Exchange,
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August 2014)

Jo Ann Thrailkill

Board Chair (GuideStar Exchange,
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August 2014)

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August 2014)

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Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

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People information was last updated by the nonprofit in August 2014

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Programs

Program: Pablove Shutterbugs (GuideStar Exchange,
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August 2014)

Budget:
--
Category:
None
Population Served:
Children and Youth (infants - 19 years.)
None
None

Program Description:

Pablove Shutterbugs teaches children living with cancer to develop their creative voice through the art of photography. In an educational setting, the Pablove Shutterbugs curriculum teaches children (from ages 6-18) how to tell a story through photographs using perspective, light, composition, and technique. Each child receives hands-on experience through a mix of one-on-one instruction and group classes taught by special guest instructors. The students also receive their own camera equipment, which is theirs to keep upon completion of the program. Pablove Shutterbugs programs include comprehensive 8-week sessions, summer camps, workshops, and continuing education for children who have been served through the program.

Program Long-Term Success:

Pablove Shutterbugs has experienced success in its programming. In assessment surveys filled out by student participants, parents, and volunteer mentors, the program consistently scores high in areas that indicate that the program is a fun and educational experience. In addition, most participants score Pablove Shutterbugs as an outstanding program, and 100% of students would recommend the program to their peers.

Program Short-Term Success:

The Pablove Shutterbugs program is measured through feedback in the form of surveys and interviews. The program has met its benchmarks in reaching pediatric oncology patients in Los Angeles, New York, and New Orleans. As Pablove Shutterbugs continues to grow and expand, we have used data from both regions to access programmatic goals and achievements. The program was selected as a 2014 Community Impact Project by the LIVESTRONG Foundation, which will replicate Pablove Shutterbugs to 12 additional sites in 2014-2015.

Program Success Monitored by:

Staff members disseminate assessment tools and track responses to monitor success and outcomes of the program. The Board of Directors of The Pablove Foundation oversees program accountability and outcomes.

Program Success Examples:

The best examples of student success come from the students themselves, with their photos as prime examples of how the program works and impacts children in a positive manner. Since we are unable to share images here, we will cite quotes from the students as examples and indicators of the overall program impact: “What I liked about Pablove Shutterbugs was that I really learned how to work a camera like a real professional.” – Juan “I got to take fun pictures and put my feelings in the picture. I got to show off my talents.” –student “I got to be more creative and take pictures.” - Leslie

Program: Childhood Cancer Research Grants (GuideStar Exchange,
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August 2014)

Budget:
--
Category:
None
Population Served:
Children and Youth (infants - 19 years.)
Children Only (5 - 14 years)
Youth/Adolescents only (14 - 19 years)

Program Description:

With the guidance of our accomplished and forward-thinking Scientific Advisory Committee, The Pablove Foundation is dedicated to funding research aimed at finding a cure and developing new, less toxic treatments for childhood cancers. Our grant awards are based on the applicant’s excellence of science and innovation in addressing real and pressing issues faced by children with cancer. Each grantee receives $50,000 to fund their project, with the opportunity to renew funding based on the promise of their scientific work.

Program Long-Term Success:

Currently, the overall five-year survival rate for children with a cancer diagnosis is near 80 percent. Although that number is representative of huge advances in childhood cancer treatment efficacy over the past 50 years, we believe there is still much progress to be made. Successful treatment protocols for rare and relapsed childhood cancers, such as neuroblastoma, Rhabdoid Tumor, sarcomas, and Wilms Tumor remain limited or non-existent. Two-thirds of children and adolescents who survive five years past initial diagnosis suffer from long-term side effects of their treatment, such as secondary cancers, damage to key organs, and psychosocial issues. The purpose of our Childhood Cancer Research Grants is to fund the most innovative proposals from senior postdoctoral fellows or junior faculty, or to provide seed money to established investigators for innovative basic, translational, clinical and epidemiological research directed to address issues of rare childhood cancers and safer, more effective treatments. Our ultimate goal is to fund breakthrough research in these areas that will change the face of childhood cancer treatment.

Program Short-Term Success:

Since our founding in 2009, The Pablove Foundation has funded $900,000 in innovative research at leading institutions worldwide. Grantees have the opportunity to apply for a second year of funding based upon excellent progress, and we are proud to report that two of our three original grantees were renewed for funding based upon exceptional progress reports to our Scientific Advisory Committee and Board of Directors.

Program Success Monitored by:

Grant applicants and renewals are subject to rigorous review by The Pablove Foundation’s accomplished Scientific Advisory Committee. Top applications are then presented to the Board of Directors for final determination of funding dependent on The Pablove Foundation’s current priorities and budget. All grantees must submit a progress report to the Board of Directors upon completion of funding. The Pablove Foundation’s Scientific Advisory Committee consists of doctors from the country’s leading research institutions and pediatric care facilities, including: Saro Armenian, M.D. (City of Hope), Shahab Asgharzadeh, M.D. (University of Southern California/Children’s Hospital Los Angeles); Elizabeth Lawlor, M.D. (University of Michigan); Carlos Rodriguez-Galindo, MD (Harvard University/Children’s Hospital Boston); Joshua Shiffman, M.D. (Primary Children’s Hospital, Salt Lake City); Lisa Wang, M.D. (Baylor University/Texas Children’s Cancer Center); and, Daniel Weschler, M.D., Ph.D. (Duke University Medical Center).

Program Success Examples:

The Pablove Foundation has funded the following projects: Glypican-3 specific T-cells for the Adoptive Immunotherapy of Pediatric Liver Cancers (2014) Andras Heczey M.D. Texas Children’s Hospital/Baylor College of Medicine Identification and targeting of circulating Ewing’s sarcoma stem cells (2014) Masanori Hayashi, M.D. Johns Hopkins University Identification of novel cdk4/6 effectors in T-cell acute lymphoblastic leukemia (2014) John Carter, M.D., Ph.D. Fred Hutchinson Cancer Research Center at Seattle Children’s Hospital Detection of novel autoantibodies in children with OMS (2014) Bethan Lang, M.D. Oxford University Targets of the Intrathecal B-Cell Response in Pediatric Opsoclonus Myoclonus Syndrome (2014) Gregory Owens, Ph.D. University of Colorado School of Medicine miRNAs secreted by tumor associated macrophages and resistance in Neuroblastoma (2013/2014) Muller Fabbri M.D., Ph.D. Saban Research Institute at Children’s Hospital Los Angeles and the University of Southern California The role of the de-ubiquitinase USP44 in childhood germ cell tumorigenesis (2013) Ying Zhang, Ph.D. Mayo Clinic Development of anti-tumor molecules targeting the Wilms tumor oncogene, LIN28B (2013) Shilpa Pathak, Ph.D. Roswell Park Cancer Institute Role of the GAB2-SHP2 network in childhood neuroblastoma pathogenesis (2012) Shizen Zhu, MD, PhD Dana-Farber Cancer Institute Phase I/II clinical trial evaluating NK cell immunotherapy in relapsed and refractory pediatric solid tumors (2012) Monica Thakar, MD Children’s Hospital of Wisconsin & Medical College of Wisconsin Elucidating Epigenetic Mechanisms for Therapeutic Targeting in Aggressive Pediatric Cancers (2012) Boris Wilson, PhD Dana-Farber Cancer Institute Develop Small Molecule Yap Inhibitors to Treat Childhood Cancer (2012) Chungling Yi, PhD Lombardi Cancer Center at Georgetown University Phase 1 Dose Escalation Study of Sorafenib and Irinotecan Combination Therapy in Pediatric Patients with Relapsed or Refractory Solid Tumors (2012, 2011) Holly Meany, MD Children’s National Medical Center Identification of Clinical Biomarkers of Wilms Tumor Using High Accuracy Mass Spectroscopy Urine Proteome Profiling (2012, 2011) Elizabeth Mullen, MD Dana-Farber Cancer Institute Alternative Lengthening of Telomeres in Neuroblastoma (2011) Loretta Lau, MD The Children’s Hospital at Westmead, Sydney, Australia More information is available at pablove.org/grants.

Program: Childhood Cancer Symposium (GuideStar Exchange,
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
August 2014)

Budget:
--
Category:
None
Population Served:
None
None
None

Program Description:

The Pablove Childhood Cancer Symposium provides access to in-depth information about childhood cancer biology, pathology, and treatment in an easy-to-understand format. We host the country’s leading experts on critical topics like rare pediatric cancers and long-term effects. Families have the opportunity to interact one-on-one with speakers and discuss their individual situations. They also benefit from interacting with each other. Sharing with families who are in similar circumstances is a significant source of support as one navigates through this difficult path. Children who attend the symposium with their parents spend the day in our playroom and participate in fun activities including arts and crafts, yoga, dance, performance, and music.

Program Long-Term Success:

In post-symposiums questionnaires, the symposium consistently scores very high in areas of speaker and presentation quality, impact of information, and overall experience. Both medical professionals as well as patient families cite the symposium as a key source of information that better shapes their ability to provide better care and make more informed decisions for their patient or child. In addition to reaching families from a variety of geographical areas through our in-person and online programs, we have educated medical professionals including oncologists, radiologists, nurses, social workers, and students.

Program Short-Term Success:

Our Childhood Cancer Symposiums have addressed a wide range of crucial topics since launching the program. Over 100 patient families and medical professionals attended our inaugural Wilms Tumor Symposium in 2010. We reached over 200 patient families and medical professionals through our Childhood Cancer Survivorship Symposium in 2011. Our first Pediatric Brain Tumors Symposium in 2012 welcomed over 100 attendees. Our 2013 Childhood Acute Lymphoblastic Leukemia Symposium reached nearly 200 attendees. Online versions of the presentations from our symposiums have been loaded over 2700 times in 69 countries worldwide.

Program Success Monitored by:

Each attendee is given a post-symposium questionnaire to help gage participant satisfaction, evaluate the full geographic reach of the program, and outline areas to improve upon in future symposiums. All data is then codified and results are submitted to the Executive Director who calculates a variety of metrics including population served, information learned and participant satisfaction. The Final Reports are evaluated and adjustments are made as needed to the program design and expected outcomes.

Program Success Examples:

The best examples of our Symposium’s success come from program participants: The speakers were absolutely phenomenal. It is very difficult to achieve presentations that are both informative enough for professionals and yet still understandable to parents. I think that was achieved unbelievably well. I learned something from every lecture. - Pediatric Oncologist We were able to get to know our doctors as people and hear their hearts and they came to know us as families and not just names on a file. We were able to freely ask them questions about anything. At so many points everyone in the room was in tears, but it was such a healing time. I cannot thank The Pablove Foundation enough for taking their vision and putting all this together. You executed a perfect weekend full of class and most importantly focused on the hearts of all those involved in fighting the battle against Wilms. This symposium will be a mainstay in our family. - Parent Sharing a room with the "Who's Who" of doctors and professionals whose life work it is to help save our children was something that, until now, only occurred in my wildest dreams. I was so impressed how approachable they all were and how easily the dialog flowed. For someone like Dr. Perlman, I think she came away with a better understanding of her own work by just being able to see the families that are affected by what she does since her time is always spent in a lab. - Parent Comprehensive review from renowned experts in the field of pediatric neuro-oncology. - Pediatric Oncologist Excellent speakers with great information. It was wonderful to be surrounded by others who understood what it is to be a cancer family! I can’t thank you enough for this great symposium; an experience I will hold dear in my heart. - Parent The information was very helpful for us in the current phase of our child's treatment. It is always great to meet other people who understand what we are dealing with. - Parent
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Impact Summary from the Nonprofit

Since our founding in 2009, Pablove has funded over $600,000 in Childhood Cancer Research grants, supported child life programs at 16 children’s hospitals nationwide, hosted three Childhood Cancer Symposiums – connecting cancer families with leading medical professionals, and expanded our innovative Pablove Shutterbugs program – serving 300 children living with cancer through the art of photography.
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