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NAMI Organization Name provided in the GuideStar Exchange* as of 05/07/2014: NAMI

Organization Name as listed in the IRS Business Master File as of 06/09/2014: NAMI

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AKA  National Alliance on Mental Illness
Arlington, VA
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GuideStar Summary

&1002;                GuideStar Exchange Committed to transparency ?
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&1002; Registered with IRS Legitimacy information is available
&1002; Evidence of Impact Expert Reviews available
&1002; Financial Data Annual Revenue and Expense data reported
&1002; Forms 990 2012, 2011, and 2010 Forms 990 filed with the IRS
&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit is available
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Basic Organization Information

NAMI Organization Name provided in the GuideStar Exchange* as of 05/07/2014: NAMI

Organization Name as listed in the IRS Business Master File as of 06/09/2014: NAMI

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
Also Known As: National Alliance on Mental Illness
Physical Address: Arlington, VA 22203 1701
EIN: 43-1201653
Web URL: www.nami.org 
NTEE Category: F Mental Health, Crisis Intervention
F80 Mental Health Association, Multipurpose
S Community Improvement, Capacity Building
S01 Alliance/Advocacy Organizations
R Civil Rights, Social Action, Advocacy
R01 Alliance/Advocacy Organizations
Ruling Year: 1980 
How This Organization Is Funded: see 990/annual report


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Mission Statement

NAMI is the National Alliance on Mental Illness, the nation’s largest grassroots mental health organization dedicated to building better lives for the millions of Americans affected by mental illness. NAMI advocates for access to services, treatment, supports and research and is steadfast in its commitment to raise awareness and build a community for hope for all of those in need.

Legitimacy Information

This organization is registered with the IRS.

This organization is required to file an IRS Form 990 or 990-EZ.

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Annual Revenue & Expenses (GuideStar Exchange,
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May 2014)

Fiscal Year Starting: January 1, 2013
Fiscal Year Ending: December 31, 2013

Total Revenue $10,675,924
Total Expenses $10,548,826

Revenue & Expenses (GuideStar Exchange,
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May 2014)

Fiscal Year Starting: January 1, 2013
Fiscal Year Ending: December 31, 2013

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Balance Sheet (IRS Form 990)

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Forms 990 Received from the IRS Additional Information
IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar website is an ongoing process.

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Forms 990 Provided by the Nonprofit

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Financial Statements

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Annual Reports

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Leadership (GuideStar Exchange,
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May 2014)

Mary Giliberti

Profile:

Mary Giliberti, J.D. is the executive director of the National Alliance on Mental Illness. Previously, Ms. Giliberti served as a section chief in the Office for Civil Rights at the U.S. Department of Health and Human Services. Prior to that, she was the director of public policy and advocacy for federal and state issues at NAMI. During her 20+ years in the mental health field, Ms. Giliberti also served as a disability counsel for the Senate Committee on Health, Education, Labor and Pensions and as a senior attorney at the Bazelon Center for Mental Health Law. Mary earned her B.A. at Harvard College and her J.D. at Yale Law School. She is a native of North Bellmore, N.Y.

Board Chair (GuideStar Exchange,
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May 2014)

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Board of Directors (GuideStar Exchange,
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May 2014)

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Board Leadership Practices (GuideStar Exchange,
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May 2014)
?

Board Orientation & Education ?
Why does this matter? Without clarity around their responsibilities and expectations, board members are not positioned to succeed. They may find themselves challenged to fulfill their governance responsibilities or frustrated by the expectations that the organization has set for them. BoardSource recommends that every new board member participate in a formal orientation process, and that all board members sign a pledge or agreement committing to their board service and to all of the responsibilities and expectations that come with service. Ideally, board members also should participate in a formal governance training program prior to serving on a board.

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?
Yes
CEO Oversight ?
Why does this matter? Oversight and management of the chief executive is one of the board’s most important legal responsibilities. The CEO or executive director is the board's single employee, and - just like any other employer/employee relationship - regular and written assessment is critical to ensuring that the chief executive and board are communicating openly about goals and performance. BoardSource recommends that boards conduct formal, written reviews of their chief executives on an annual basis, which should include an in-person discussion with the chief executive and distribution of the written evaluation to the full board.

Has the board conducted a formal, written assessment of the chief executive within the past year?
Yes
Ethics & Transparency ?
Why does this matter? A commitment to handling conflicts of interests is essential to creating an organizational culture of transparency. Boards should create and follow a policy for identifying and handling conflicts of interest, whether real or perceived. BoardSource recommends that organizations review the conflict-of-interest statement and require signed disclosures from all board members and senior staff on an annual basis.

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements within the past year?
Yes
Board Composition ?
Why does this matter? The best boards are composed of individuals who bring a variety of skills, perspectives, backgrounds, and resources to tackle the complex and strategic challenges confronting their organizations. BoardSource recommends that boards commit to diversity and inclusion by establishing written policies and practices, which include strategic and intentional recruitment of diverse board members, continual commitment to inclusivity, and equal access to board leadership opportunities.

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?
Yes
Board Performance ?
Why does this matter? Boards need to regularly assess their own performance. Doing so ensures that they are being intentional about how they govern their organization, which is a critical component of effective board leadership. BoardSource recommends that a board conduct a self-assessment of its performance a minimum of once every three years to ensure that it is staying on track with its roles and responsibilities.

Has the board conducted a formal, written self-assessment of its performance within the past three years?
Yes

Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

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People information was last updated by the nonprofit in May 2014

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Programs

Program: Education, Training & Support (GuideStar Exchange,
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May 2014)

Budget:
--
Category:
None
Population Served:
Mentally/Emotionally Disabled
General Public/Unspecified
None

Program Description:

NAMI offers an array of peer education and support programs to help individuals, and family members, who are living with emotional and behavioral difficulties and other symptoms of mental illness. More than 185,000 people participated in a NAMI sponsored education class in 2013. NAMI offers help and a sense of community for parents, family caregivers, veterans, health care providers and persons living with mental illness. NAMI provides training, curricula, materials and technical assistance to thousands of volunteer teachers, trainers and facilitators who are committed to bringing these programs into their local communities.

Program Long-Term Success:

NAMI achieved tremendous milestones in its education programs in 2013. The federal government added NAMI Family-to-Family to the National Registry of Evidence-Based Mental Health Programs. The NAMI Family-to-Family program leads to positive life changes for participants that enable them to feel more in control of their own lives. This is a major accomplishment for any program, but for a course that is provided by trained volunteers with the “lived experience,” it is an even greater feat. The results of the study are an endorsement of the quality of the program as well as the competence of the volunteer teachers who have committed their time and energy to adhering to the integrity and fidelity of the model in which they were trained.

Program Short-Term Success:

Other 2013 accomplishments included the launch of NAMI Ending the Silence to inform teens about the signs and symptoms of mental illness and to help combat the stigma and end the silence around mental health issues in this group. The program sends presenters into high school classrooms and is designed to give students an opportunity to learn about mental illness from the lived experience of individuals and family members and short videos. The program is active in 15 states. NAMI trained and certified over 3,100 new volunteer teachers, who in turn, educated more than 120,000 families and individuals through our peer-led programs. A total of 114 VA hospitals and medical centers in 47 states are hosting NAMI classes to provide education, resources, and information about mental illness families of veterans. NAMI trained more than 525 new volunteers who live with mental illness to present their own story in NAMI in Our Own Voice, to over 50,000 audience members. This program is an opportunity for those who have struggled with mental illness to gain confidence and to share their individual experiences of recovery and transformation. Presentations are given to consumer groups, students, law enforcement officials, educators, providers, faith community members, politicians, professionals, inmates, and interested civic groups.

Program Success Monitored by:

Program Success Examples:

The federal government added NAMI Family-to-Family to the National Registry of Evidence-Based Mental Health Programs. The NAMI Family-to-Family program leads to positive life changes for participants that enable them to feel more in control of their own lives. This is a major accomplishment for any program, but for a course that is provided by trained volunteers with the “lived experience,” it is an even greater feat. The results of the study are an endorsement of the quality of the program as well as the competence of the volunteer teachers who have committed their time and energy to adhering to the integrity and fidelity of the model in which they were trained.

Program: Policy/Advocacy (GuideStar Exchange,
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
May 2014)

Budget:
--
Category:
None
Population Served:
General Public/Unspecified
None
None

Program Description:

NAMI is recognized as the preeminent voice on Capitol Hill and in State Legislatures across the country advocating on behalf of those living with mental illness and their families. NAMI promotes common sense solutions to local, state and national public policy landscapes by fighting for early intervention, community support services and access to affordable mental health care.

Program Long-Term Success:

NAMI continues to work on behalf of individuals living with mental illness who come in contact with the criminal justice system. The past year represented the 25th anniversary of the first police Crisis Intervention Team (CIT), which NAMI helped establish in Memphis. Today, there are more than 2,000 CIT programs nationwide. NAMI's CIT Center provides information and technical assistance to law enforcement, mental health professionals and other stakeholders, working to divert people from jails or prisons into treatment. NAMI also worked with a coalition of criminal justice and mental health groups to reauthorize the Mentally Ill Offender Treatment and Crime Reduction Act, federal legislation that supports a variety of approaches to jail diversion and community reentry for individuals in the justice system with mental illness and co-occurring substance use disorders. NAMI's "Got You Covered” was launched to educate on the opportunities and challenges of health care reform implementation. The campaign includes a series of fact sheets and toolkits to help people understand how health care reform impacts those living with mental illness. A second national NAMI Smarts teacher training was held. A total of 26 teachers were trained from 13 states, with a total of 24 states implementing the program. NAMI Smarts is a hands-on advocacy training program that helps people living with mental illness, friends and family transform their passion and lived experience into skillful grassroots advocacy.

Program Short-Term Success:

NAMI issued its state legislation report, State Legislation 2013: Trends, Themes and Best Practices in Mental Health Legislation. The report surveys legislation enacted by state legislatures in 2013 and summarizes trends, themes and best practices in mental health legislation. The report is intended as a resource for state NAMI leaders as they prepare state legislative advocacy strategies for 2014. NAMI published updated content on Supported Employment to include resources on employment and mental illness, psychiatric disability and reasonable accommodation and models of supported employment.

Program Success Monitored by:

Program Success Examples:

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Impact Summary from the Nonprofit

Support, Education, Awareness, Advocacy, Research Every day, we reach out and respond to those in need. As the navigator of our nine signature education programs, offered in thousands of communities across America through our NAMI State Organizations NAMI Affiliates, we ensure hundreds of thousands of families, individuals and educators are served. NAMI is tireless in our efforts to equip and train grassroots volunteer facilitators who provide individual and family support groups in thousands of communities across America. Through the toll-free NAMI HelpLine, we respond personally to hundreds of thousands of requests each year, providing free referral, information and support—a much-needed lifeline for many. Public awareness events and activities including Mental Illness Awareness Week (MIAW), NAMIWalks, and other efforts, successfully combat stigma, promote awareness and encourage understanding. By responding to current news events as they happen, NAMI ensures that media reporting is compassionate, understanding and accurate in portrayals of mental illness—NAMI promotes solutions. Each day, NAMI effectively shapes the national public policy landscape for people with mental illness and their families and equips grassroots volunteer leaders with the tools, resources and skills necessary to save mental health in all states. NAMI reaches out to our country’s youth and young adults, helping to shape the next generation’s experiences with recovery, encouraging a better tomorrow for all Americans. Recognizing the unique needs of our American heroes and their families, NAMI aggressively reaches out to help offer free and essential NAMI education and support group programs in thousands of local communities. NAMI actively promotes mental health care, support and a caring community for our veterans, their spouses and their children. Tirelessly promoting research, as they have done for decades, NAMI ensures solutions for early intervention, improved treatments and, eventually, a cure for mental illness. Continuing to build and cultivate virtual communities that reach millions of Americans who turn to NAMI through NAMI.org and social media channels for the latest information on treatment, services, supports, advocacy, research happenings, NAMI works every day to offer inspiration, information and encouragement.

Expert Reviews and Comments

2013 Philanthropedia Top Nonprofit

This organization is a 2013 Philanthropedia top nonprofit, recommended by experts as having high impact.

These expert reviews were generated through Philanthropedia's research methodology to identify high-impact nonprofits. Learn more

Evidence of Impact

National Alliance on Mental Illness provides grassroots mental health education and offers support through programs and advocacy. Due to their strong work in this field, they have lessened the mental illness stigma.

Provides Support and Advocacy
NAMI provides important support and advocacy for families and individuals affected by mental health issues. Researcher and Faculty
They have changed the way many view mental illness through education. The organization has lessened stigma. Nonprofit Senior Staff
National Alliance on Mental Illness provides education, support, and advocacy to individuals with mental health issues and their families and friends. Nonprofit Senior Staff

Organizational Strengths

According to experts, National Alliance on Mental Illness excels in its programming that offers needed support and education to families and friends. Another factor is the organization’s accessibility. With multiple locations across the country, they make it easy for individuals to get connected with their services.

Provide Easy Accessibility of Services
They are everywhere. Their accessibility makes it easy for anyone who has been affected by mental illness to connect and find support. Nonprofit Senior Staff
Family and Peer Programs
The strengths of National Alliance on Mental Illness are the peer-to-peer and family-to-family programs. Nonprofit Senior Staff

Areas for Improvement

National Alliance on Mental Illness would benefit from more stable, therefore paid staff.

Better Leverage Constituents
I don't know how well NAMI is able to leverage its local advocates -- whether they have a robust grassroots network is not known to me. They have this resource. Foundation Professional
Improve Reputation
There is a perception in some mental health communities that the organization is beholding to drug companies who contribute to the organization. So some people with mental health issues distrust NAMI and discourage others from associating with the organization. Researcher and Faculty
More Paid Staff
They could use more paid staff to keep programs consistent. Nonprofit Senior Staff
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