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ALZHEIMERS DISEASE AND RELATED DISORDERS ASSOCIATION Organization Name provided in the GuideStar Exchange* as of 05/04/2012: ALZHEIMERS DISEASE AND RELATED DISORDERS ASSOCIATION

Organization Name as listed in the IRS Business Master File as of 06/09/2014: ALZHEIMERS DISEASE AND RELATED DISORDERS ASSOCIATION

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.

AKA  Alzheimer's Association National Capital Area Chapter
Fairfax, VA

GuideStar Summary

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&1002; Registered with IRS Legitimacy information is available
&1002; Financial Data Annual Revenue and Expense data reported
&1002; Forms 990 2001 Forms 990 filed with the IRS
&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit is available
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Basic Organization Information

ALZHEIMERS DISEASE AND RELATED DISORDERS ASSOCIATION Organization Name provided in the GuideStar Exchange* as of 05/04/2012: ALZHEIMERS DISEASE AND RELATED DISORDERS ASSOCIATION

Organization Name as listed in the IRS Business Master File as of 06/09/2014: ALZHEIMERS DISEASE AND RELATED DISORDERS ASSOCIATION

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
Also Known As: Alzheimer's Association National Capital Area Chapter
Physical Address: Fairfax, VA 22030 
EIN: 52-1196162
Web URL: www.alz.org/nca 
NTEE Category: G Disease, Disorders, Medical Disciplines
G83 Alzheimer's
G Disease, Disorders, Medical Disciplines
G48 Brain Disorders
None
None
Ruling Year: 1985 


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Mission Statement

Our mission is to eliminate Alzheimer’s disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health. Our vision is a world without Alzheimer’s disease.

Legitimacy Information

This organization is registered with the IRS.

This organization is required to file an IRS Form 990 or 990-EZ.

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Annual Revenue & Expenses (GuideStar Exchange,
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May 2012)

Fiscal Year Starting: July 1, 2009
Fiscal Year Ending: June 30, 2010

Total Revenue $2,830,667
Total Expenses $2,777,071

Revenue & Expenses (GuideStar Exchange,
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May 2012)

Fiscal Year Starting: July 1, 2009
Fiscal Year Ending: June 30, 2010

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Balance Sheet (IRS Form 990)

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Leadership (GuideStar Exchange,
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May 2012)

Susan Kudla Finn

Term:

Since May 2011

Profile:

As the founder and president of Finn Enterprises, Inc. (1996-2011), Susan Kudla Finn transformed over 1,000 leaders of 22 associations, 17 global corporations, and 16 government agencies to improve productivity, profitability, service delivery, and return on investment. She also served as executive director for six diverse nonprofit organizations over an 18 year period, including one foundation.

Leadership Statement:

From May 2011: A Message from Susan Kudla Finn, President and CEO     I am honored to join the Alzheimer’s Association National Capital Area Chapter as the new president and CEO. What an exciting time and tremendous opportunity to be part of a committed team of board, staff, volunteers and donors who are working tirelessly to make our vision of a world without Alzheimer’s disease a reality!     Like many of you, my family has been touched by Alzheimer’s. My father, Bob, is 94 years young, a World War II veteran who survived Guadalcanal.  Today Dad is waging another battle, the battle to remember. Our family shares with you the challenges and heartbreak of the “long goodbye” that is Alzheimer’s.      We also share with you the urgency to act now to eradicate this disease! The number of people who have Alzheimer’s is increasing and will grow dramatically in the coming years, from 5.4 million Americans today to as many as 16 million by 2050. We need a cure. There is great strength in numbers and we value your partnershiwe can win this battle.     We are committed to increasing concern and awareness, enhancing care and support, accelerating research, advancing public policy, and growing revenue support for our mission. With one strong and united voice, we are reenergizing our commitment to make Alzheimer’s a national priority and reclaiming the future for millions.      We have started a program for people in the early stages of the disease and their care partners. We'll be working with physicians to direct those affected by Alzheimer’s to our web site at www.alz.org(http://www.alz.org) and toll-free number 800.272.3900 to learn about our programs and services and to encourage their participation in clinical trials to help bring us closer to a cure. These are just a few of the initiatives; none of them would be possible without your commitment and support.

Board Chair (GuideStar Exchange,
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May 2012)

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Board Co-Chair

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Board of Directors (GuideStar Exchange,
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May 2012)

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Board Leadership Practices (GuideStar Exchange,
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May 2012)
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Board Orientation & Education ?
Why does this matter? Without clarity around their responsibilities and expectations, board members are not positioned to succeed. They may find themselves challenged to fulfill their governance responsibilities or frustrated by the expectations that the organization has set for them. BoardSource recommends that every new board member participate in a formal orientation process, and that all board members sign a pledge or agreement committing to their board service and to all of the responsibilities and expectations that come with service. Ideally, board members also should participate in a formal governance training program prior to serving on a board.

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?
Response Not Provided
CEO Oversight ?
Why does this matter? Oversight and management of the chief executive is one of the board’s most important legal responsibilities. The CEO or executive director is the board's single employee, and - just like any other employer/employee relationship - regular and written assessment is critical to ensuring that the chief executive and board are communicating openly about goals and performance. BoardSource recommends that boards conduct formal, written reviews of their chief executives on an annual basis, which should include an in-person discussion with the chief executive and distribution of the written evaluation to the full board.

Has the board conducted a formal, written assessment of the chief executive within the past year?
Response Not Provided
Ethics & Transparency ?
Why does this matter? A commitment to handling conflicts of interests is essential to creating an organizational culture of transparency. Boards should create and follow a policy for identifying and handling conflicts of interest, whether real or perceived. BoardSource recommends that organizations review the conflict-of-interest statement and require signed disclosures from all board members and senior staff on an annual basis.

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements within the past year?
Response Not Provided
Board Composition ?
Why does this matter? The best boards are composed of individuals who bring a variety of skills, perspectives, backgrounds, and resources to tackle the complex and strategic challenges confronting their organizations. BoardSource recommends that boards commit to diversity and inclusion by establishing written policies and practices, which include strategic and intentional recruitment of diverse board members, continual commitment to inclusivity, and equal access to board leadership opportunities.

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?
Response Not Provided
Board Performance ?
Why does this matter? Boards need to regularly assess their own performance. Doing so ensures that they are being intentional about how they govern their organization, which is a critical component of effective board leadership. BoardSource recommends that a board conduct a self-assessment of its performance a minimum of once every three years to ensure that it is staying on track with its roles and responsibilities.

Has the board conducted a formal, written self-assessment of its performance within the past three years?
Response Not Provided

Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

Highest Paid Employee data is not available for this organization.

People information was last updated by the nonprofit in May 2012

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Programs

Program: Helpline (GuideStar Exchange,
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May 2012)

Budget:
$215,000
Category:
Diseases, Disorders & Medical Disciplines
Population Served:
Adults

Program Description:

The Alzheimer’s Association’s professionally staffed 24/7 Helpline(http://www.alz.org/we_can_help_24_7_helpline.asp) (1.800.272.3900) offers information and guidance to more than 250,000 callers across the country each year and provides translation services in more than 170 languages and dialects. On the local front, our dedicated Helpline staff personally manage close to 5,000 of these calls annually, providing one-on-one guidance, care consultation, and support regarding memory loss, Alzheimer’s and other dementias; medications and other treatment options; referral of community services, and skills to provide quality care. Funding is needed so that this invaluable service—the 24/7 call line for Alzheimer’s—can be there to assist family members in averting a potential crisis; provide a first-line of support after receiving a diagnosis; or support a caregiver consumed with stress.

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Program: Support Groups (GuideStar Exchange,
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May 2012)

Budget:
$20,000
Category:
Diseases, Disorders & Medical Disciplines
Population Served:
Adults

Program Description:

For those caring for someone with Alzheimer’s disease as well as those diagnosed, support groups are a , providing an intimate, informal setting to discuss issues, ideas, and coping strategies among peers with shared experiences. Group meetings are the one place where family members can openly share personal feelings of loss of control in their own lives, anger, and fear. Currently, the Chapter sponsors 65 groups—all free of charge and open to the public—throughout the Washington, D.C. metropolitan area.

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Program: Programs for Persons in Early Stages of Alzheimer's (GuideStar Exchange,
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May 2012)

Budget:
$30,000
Category:
Diseases, Disorders & Medical Disciplines
Population Served:
Aging/Elderly/Senior Citizens

Program Description:

Among the Chapter's priorities is to improve meaningful engagement of constituents in the early stages of Alzheimer’s through an increase in participation in consistent, high-quality, evidence-based early-stage programs, support groups, and volunteer activities. On a quarterly basis, we present a three-part, six-hour educational class, Living with Alzheimer’s, specifically geared to the diagnosed individual, at locations throughout our territory. The curriculum covers such topics as: partnering with your doctor; effective communication and enhancing family relationships; coping with changes; and legal and financial issues. We are adding two educational support groups led by a social worker for these individuals and their care partners, each to meet once per week for eight weeks. The Chapter will organize planned social activities, online forums, and a database to connect persons with Alzheimer’s with one another for peer support. Alzheimer’s is a disease that isolates individuals and often leads to withdrawal from activities and depression. Our programs help persons in the early stages of the disease realize that they are not alone and can still lead enjoyable, productive lives.

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Program: Safety Services (GuideStar Exchange,
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May 2012)

Budget:
$15,000
Category:
Diseases, Disorders & Medical Disciplines
Population Served:
Aging/Elderly/Senior Citizens

Program Description:

Our safety services, Comfort Zone™ and Medic Alert® + Safe Return,®  provide location management for people with Alzheimer’s who wander. Comfort Zone™ is a Web application with a location-based mapping service that provides peace of mind for families caring for a loved one at risk for wandering. Medic Alert® + Safe Return,® is a 24-hour nationwide emergency response service for individuals with Alzheimer's or related dementia who wander or have a medical emergency. We provide 24-hour, nationwide assistance, no matter when or where the person is reported missing. Our Chapter regularly conducts training on dementia-related wandering issues for law enforcement and first responders through the criminal justice academies in Montgomery and Prince George’s counties, Maryland; Fairfax County, Virginia; and the District of Columbia.

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Program: Conferences, Education, and Training Opportunities (GuideStar Exchange,
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May 2012)

Budget:
$20,000
Category:
Diseases, Disorders & Medical Disciplines
Population Served:
Adults

Program Description:

The Alzheimer's Association National Capital Area Chapter presents and co-sponsors conferences on Alzheimer's research and caregiving; and provides training to home health and long-term community care staff on such topics as pain reduction, enhancing mealtimes, preventing falls, encouraging restraint-free care, and end-of-life care.     The Chapter also provides educational workshops for diagnosed individuals and family caregivers at houses of worship, hospitals, nursing schools, and other community locations. Session topics include: The Basics: Memory Loss, Dementia and Alzheimer’s Disease; Know the 10 Signs: Early Detection Matters; and Legal and Financial Planning for Alzheimer’s Disease.

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Impact Summary from the Nonprofit

The Alzheimer's Association is the leading, global voluntary health organization in Alzheimer's care and support, and the largest private, nonprofit funder of Alzheimer's research. The Alzheimer’s Association National Capital Area Chapter is part of a network of more than 70 chapters nationwide. Factors that distinguish the Chapter from the outstanding local senior day care and other direct-service providers include our broad scope and outreach to thousands of people in the community; our connection with our sister chapters throughout the country (to which we can refer local residents providing long-distance caregiving to a loved one, for example); and the support of a national office with resources and access to research on the best in Alzheimer’s care and support. We provide families with 24/7 access to consultation on how to deal with the unique challenges inherent in caregiving for someone with dementia, including crisis assistance. Furthermore, the Chapter promotes Alzheimer awareness, dispelling myths and reducing stigma that prevent affected families from seeking support and getting the help they need.

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