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Alpha-One Foundation, Inc.

AKA Alpha-1 Foundation

Coral Gables, FL

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Alpha-One Foundation, Inc.

Also Known As:
Alpha-1 Foundation
Physical Address:
Coral Gables, FL 33134 
EIN:
65-0585415
Web URL:
www.alpha-1foundatio...
Leadership:
Mr. John W. Walsh
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Legitimacy Information

  • This organization is registered with the IRS.
  • This organization is required to file an IRS Form 990 or 990-EZ.

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Forms 990 from IRS Additional Information IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar Web site is an ongoing process.

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Annual Revenue & Expenses Additional Information Financial information on GuideStar is either digitized from Form 990 images we receive from the IRS or submitted by the nonprofits themselves through the GuideStar Exchange (990 filers cannot override Form 990 financial data). If your organization does not file a Form 990, 990-EZ, or 990-PF and you would like to have your financial data displayed in this section, join the GuideStar Exchange today!

Fiscal Year Starting: Jul 01, 2011
Fiscal Year Ending: Jun 30, 2012
Revenue
Total Revenue $7,985,052
Expenses
Total Expenses $4,662,714

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Financial data from Forms 990 for Year 2012, 2011, 2009, 2008, 2007 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart

A multi-year analysis of key balance sheet, income statement, profitability and liquidity measures is available for this organization. Financial SCAN includes a detailed financial health analysis and peer comparison and benchmarking tool. Learn More

Financial SCAN

Financial SCAN

Key Financial SCAN Features

  • Financial Health Dashboard: Highlights key financial trends and ratios for a selected nonprofit organization over a period of up to five years.
  • Peer Comparison Dashboard: Compares the organization's financials with up to five peer nonprofits that you select.
  • Graphical Analysis: Provides multi-year graphs and an interpretive guide in a format ready to present to your clients.
  • Printable PDF Report: Provides a complete analysis of the organization for your records. The full report tells you what to look for and why it matters.
  • Advanced Search: Allows you to search by EIN (Employer Identification Number), organization name, city, state, revenue, expenses, and assets.




Basic Organization Information

Alpha-One Foundation, Inc.

Also Known As:
Alpha-1 Foundation
Physical Address:
Coral Gables, FL 33134 
EIN:
65-0585415
Web URL:
www.alpha-1foundatio... 
NTEE Category:
H Medical Research 
H20 Birth Defects, Genetic Diseases Research 
H Medical Research 
H99 Other Medical Research N.E.C. 
H Medical Research 
H45 Lung 
Ruling Year:
1996 

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Mission Statement

The Alpha-1 Foundation is dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection and a cure for Alpha-1 Antitrypsin Deficiency.

A multi-year analysis of key balance sheet, income statement, profitability and liquidity measures is available for this organization. Financial SCAN includes a detailed financial health analysis and peer comparison and benchmarking tool. Learn More

Financial SCAN

Financial SCAN

Key Financial SCAN Features

  • Financial Health Dashboard: Highlights key financial trends and ratios for a selected nonprofit organization over a period of up to five years.
  • Peer Comparison Dashboard: Compares the organization's financials with up to five peer nonprofits that you select.
  • Graphical Analysis: Provides multi-year graphs and an interpretive guide in a format ready to present to your clients.
  • Printable PDF Report: Provides a complete analysis of the organization for your records. The full report tells you what to look for and why it matters.
  • Advanced Search: Allows you to search by EIN (Employer Identification Number), organization name, city, state, revenue, expenses, and assets.


Revenue and Expenses

Revenue and Expense data from Forms 990 for 2012, 2011, 2009, 2008, 2007 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart


Balance Sheet

Balance Sheet data from Forms 990 for Year 2012, 2011, 2009, 2008, 2007 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart

A multi-year analysis of key balance sheet, income statement, profitability and liquidity measures is available for this organization. Financial SCAN includes a detailed financial health analysis and peer comparison and benchmarking tool. Learn More

Financial SCAN

Financial SCAN

Key Financial SCAN Features

  • Financial Health Dashboard: Highlights key financial trends and ratios for a selected nonprofit organization over a period of up to five years.
  • Peer Comparison Dashboard: Compares the organization's financials with up to five peer nonprofits that you select.
  • Graphical Analysis: Provides multi-year graphs and an interpretive guide in a format ready to present to your clients.
  • Printable PDF Report: Provides a complete analysis of the organization for your records. The full report tells you what to look for and why it matters.
  • Advanced Search: Allows you to search by EIN (Employer Identification Number), organization name, city, state, revenue, expenses, and assets.


Forms 990 Provided by the Nonprofit

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Financial Statements

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Annual Reports

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Leadership (GuideStar ExchangeThe GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more. February, 2014)

Mr. John W. Walsh

Term:

Since Mar 1995

Profile:

Mr. Walsh is the co-founder, President and CEO of the Alpha-1 Foundation in Miami, FL. In 2002 Mr. Walsh's contribution to pioneering collaboration in orphan drug development was recognized by the FDA with the Commissioner's Special Citation. Mr. Walsh has an extensive background in busines management and government relations and regularly testifies before Congress and advisory groups as a patient advocate. Mr. Walsh serves on the following organizations: Member of the NIH Director's Council of Public Representatives Past Chairperson of the National Health Council's Board of Directors (2005-2006) Past Chairperson of the American Thoracic Society Public Advisory Roundtable (PAR) Presidential Appointee of the American Throacic Society's Board of Directors (2004-2005) Trustee on the Foundation of the American Thoracic Society (2006-2008) Completed his third term on the DHHS' Advisory Committee on Blood Safety and Availability (1997-2006) Member of the Advisory Board of the Center for Genetic Research Ethics And Law (CGREAL) at Case Western Reserve University Member of the US COPD Coalition Executive Committee Past Chairperson of the International COPD Coalition (2006-2008) Co-Founder and Member of the COPD Foundation Board of Directors and serves as President Mr. Walsh was diagnosed with the rare genetic disorder, Alpha-1 Antitrypsin Deficiency, in 1989.

Leadership Statement:

Dear Friends, We are closer than ever to improved treatments and a cure. We can make a difference for our families and future generations. Your financial support can enormously impact the ability of the Foundation to fund meaningful research. A significant investment in research is the most effective way to make progress toward improved treatments and a cure for Alpha-1. With the level of interest by the scientific community at an all-time high, the need for funds has never been stronger. All investments in Alpha-1 research will continue to build upon the positive momentum that has been created.  The need for the Alpha-1 Foundation to make funds available for innovative research projects is imperative. Many promising research projects are being under-funded by federal government sources, as the budget for the National Institutes of Health (NIH) has decreased for the first time in 40 years. In fact, many researchers who started projects years ago have had to abandon them due to lack of funds. The Alpha-1 Foundation is determined to see that this does not happen to promising Alpha-1 science. Your investment is vital to achieving the Foundation’s mission: to provide the leadership and resources that will result in increased research, improved health, worldwide detection, and a cure for Alpha-1 Antitrypsin Deficiency.  John W. Walsh President & CEO



Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

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Impact Summary from the Nonprofit

Great strides have been made by the Alpha-1 Foundation to advance its mission on all fronts. We celebrated the passage of the Genetic Information Nondiscrimination Ace and worked to ensure that pulmonary rehabilitation will be provided to Medicare beneficiaries by supporting legislation. We spearheaded the effort to amend the 1986 Air Carrier Access Act to allow approved portable oxygen concentrators to be used as carry-on items by all airlines. We awarded a total of over $1.9 million in grant monies in peer-reviewed, matching and program grants including the Alpha-1 Coded Testing (ACT) Study and the Alpha-1 DNA and Tissue Bank. We initiated our first multi-center clinical study, entitled, "Targeted Detection of Alpha-1 Antitrypsin Deficiency in Patients Referred for Pulmonary Function Testing." The Gordon L. Snider Critical Issues Workshop "Quantitative Chest Tomography in COPD Research," brought experts from around the world to assist the research community in its efforts to standardize the technique for research and ultimately provide the best care for patients suffering from this condition.   The Foundation is committed to focusing on the most productive areas of research and to fast-tracking the most promising research into viable therapies. This approach is the most effective means of achieving a more complete understanding of the factors leading to disease and to identifying the most viable therapeutic interventions. A major focus is being placed on the establishment of multi-year research initiatives to expand the Foundation's grant making capacity with the goal of funding all meritorious research projects and stimulating new avenues of research. With the continued investment of research dollars we will see Alpha-1 become a disease of the past.

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