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Hemophilia Council of California Organization Name provided in the GuideStar Exchange* as of 07/11/2013: Hemophilia Council of California

Organization Name as listed in the IRS Business Master File as of 07/14/2014: HEMOPHILIA COUNCIL OF CALIFORNIA

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Sacramento, CA
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GuideStar Summary

&1002;                GuideStar Exchange Committed to transparency ?
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&1002; Registered with IRS Legitimacy information is available
&1002; Financial Data Annual Revenue and Expense data reported
&1002; Forms 990 2013, 2012, and 2011 Forms 990 filed with the IRS
&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit and Charting Impact Report are available
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Basic Organization Information

Hemophilia Council of California Organization Name provided in the GuideStar Exchange* as of 07/11/2013: Hemophilia Council of California

Organization Name as listed in the IRS Business Master File as of 07/14/2014: HEMOPHILIA COUNCIL OF CALIFORNIA

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
Physical Address: Sacramento, CA 95821 
EIN: 68-0182998
Web URL: www.hemophiliaca.org/ 
NTEE Category: G Disease, Disorders, Medical Disciplines
G01 Alliance/Advocacy Organizations
S Community Improvement, Capacity Building
S01 Alliance/Advocacy Organizations
G Disease, Disorders, Medical Disciplines
Ruling Year: 1994 


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Mission Statement

Hemophilia Council Of California was founded in 1982 to pursue its mission to promote access to care and advance the quality of life of people with bleeding disorders through advocacy, education and outreach in the collaboration with member organizations.

Legitimacy Information

This organization is registered with the IRS.

This organization is required to file an IRS Form 990 or 990-EZ.

Institutional funders should note that an organization’s inclusion on GuideStar.org does not satisfy IRS Rev. Proc. 2011-33 for identifying supporting organizations.

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Annual Revenue & Expenses (GuideStar Exchange,
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July 2013)

Fiscal Year Starting: July 1, 2012
Fiscal Year Ending: June 30, 2013

Total Revenue $152,324
Total Expenses $169,073

Revenue & Expenses (GuideStar Exchange,
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July 2013)

Fiscal Year Starting: July 1, 2012
Fiscal Year Ending: June 30, 2013

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Balance Sheet (IRS Form 990)

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Forms 990 Received from the IRS Additional Information
IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar website is an ongoing process.

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Forms 990 Provided by the Nonprofit

Financial Statements

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Annual Reports

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Leadership (GuideStar Exchange,
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July 2013)

Heidi Scanlan

Term:

Since Nov 2010

Board Chair (GuideStar Exchange,
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July 2013)

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July 2013)

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Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

Highest Paid Employee data is not available for this organization.

People information was last updated by the nonprofit in July 2013

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Programs

Program: (GuideStar Exchange,
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July 2013)

Budget:
--
Category:
Population Served:

Program Description:

HCC addresses the need for constant costly medical treatment for hemophiliacs, and the physical and emotional needs of the HIV+ population. HCC works to prevent the spread of HIV among people with hemophilia, transfusion recipients, and significant others ($100,000). It also provides support services to individuals, couples, families, and significant others who are experiencing fear, anxiety and stress at being at risk of AIDS ($300,000). One of HCC's recent accomplishments was being instrumental in improving hemophilia and HIV treatment services at the UC San Diego Hemophilia Treatment Center.

Program Long-Term Success:

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

Program: Future Leaders (GuideStar Exchange,
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July 2013)

Budget:
$24,000
Category:
Education
Population Served:
Youth/Adolescents only (14 - 19 years)

Program Description:

Join us for the Future Leader Program! Each year young men and women ages 14-22 come together from all over California to Sacramento for a unique learning experience. Learn about how California Government works and the programs that support people with bleeding disorders through out the state. Learn how to tell your story to legislators about living with a bleeding disorder. Learn how to be an advocate for yourself and others. Learn about career choices and challenges for people with bleeding disorders. Meet other young people from across the state who want their voices heard. The program starts at 6:00 PM Monday, May 13 and ends at 4:00 PM Wednesday, May 15, 2013 in Sacramento, California. The Hemophilia Council of California pays for all expenses for travel to and from Sacramento, meals, and accommodations.

Program Long-Term Success:

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

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Impact Summary from the Nonprofit Additional Information
A Charting Impact Report consists of an organization’s responses to the five questions. Helping validate this self-reported data are three reviews. Once an organization has used the online interface to complete its report, its responses will produce a document with a unique URL that will be shared on this website, on your GuideStar profile, on the reports of charities participating in BBB Wise Giving Alliance evaluations, and – in the future – with other websites and information sources about nonprofits. We encourage organizations to use this URL to share their report on their own website and through their own media channels. Participants will receive guidance about promoting their Charting Impact Report, along with other benefits, once they publish their report.

The four California hemophilia organizations formed the Hemophilia Council of California (HCC) in 1989 as a 501(c)3 nonprofit organization to coordinate their shared advocacy agenda to create a more effective and unified voice for individuals living with bleeding disorders in California.
For more in-depth information about this organization's impact, view their Charting Impact Report.
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Organization Data Available

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