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Zero Breast Cancer

AKA  ZBC
San Rafael, CA
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GuideStar Summary

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&1002; Registered with IRS Legitimacy information is available
&1002; Financial Data Annual Revenue and Expense data reported
&1002; Forms 990 2012, 2011, and 2010 Forms 990 filed with the IRS
&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit is not available
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Basic Organization Information

Zero Breast Cancer
Also Known As: ZBC
Physical Address: San Rafael, CA 94903 
EIN: 68-0386016
Web URL: www.zerobreastcancer.org 
NTEE Category: G Disease, Disorders, Medical Disciplines
G01 Alliance/Advocacy Organizations
G Disease, Disorders, Medical Disciplines
G30 Cancer
H Medical Research
H20 Birth Defects, Genetic Diseases Research
Ruling Year: 1996 


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Mission Statement

Zero Breast Cancer is a community based, nonprofit organization dedicated to prevention and finding the causes of breast cancer through community participation in the scientific research process. We focus on identifying environmental factors and the role they play in breast cancer at all stages of life and across generations.

Legitimacy Information

This organization is registered with the IRS.

This organization is required to file an IRS Form 990 or 990-EZ.

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Annual Revenue & Expenses (GuideStar Exchange,
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September 2013)

Fiscal Year Starting: January 1, 2011
Fiscal Year Ending: December 31, 2011

Total Revenue $459,582
Total Expenses $467,875

Revenue & Expenses (GuideStar Exchange,
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September 2013)

Fiscal Year Starting: January 1, 2011
Fiscal Year Ending: December 31, 2011

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Balance Sheet (IRS Form 990)

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Forms 990 Received from the IRS Additional Information
IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar website is an ongoing process.

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Forms 990 Provided by the Nonprofit

Financial Statements

Audited Financial Statement is not available for this organization.

Annual Reports

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Leadership (GuideStar Exchange,
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September 2013)

Janice Barlow

Profile:

Janice Marie Barlow, B.S. was appointed interim executive director of Zero Breast Cancer, (formerly Marin Breast Cancer Watch) in June 2001. She became the permanent executive director in January 2002. She brings to the organization a combination of wide-ranging experience in community health care and extensive personal involvement in health advocacy, community activism and non-profit organizations. Janice earned her B.S. in nursing from the University of California in San Francisco. She did her graduate work at the University of Washington and is a pediatric nurse practitioner. Her career includes over twenty-five years experience in providing family-centered preventive health care services to at-risk and underserved multicultural populations in community-based health, developmental and educational organizations. The high incidence of breast cancer in Marin county, along with her own personal increased risk for breast cancer led her to change direction and focus on the prevention of breast cancer. Her commitment to bringing the community's voices into research drew her to Zero Breast Cancer, an organization that arose and continues to grow through the energy, wisdom and dreams of Marin women with breast cancer.

Board Chair (GuideStar Exchange,
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September 2013)

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Board of Directors (GuideStar Exchange,
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September 2013)

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Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

Highest Paid Employee data is not available for this organization.

People information was last updated by the nonprofit in September 2013

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Programs

Program: (GuideStar Exchange,
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September 2013)

Budget:
--
Category:
Population Served:

Program Description:

Zero Breast Cancer (ZBC) collaborates and partners with local, regional and national researchers, breast cancer organizations and academic institutions in community-based, participatory research projects relating to breast cancer. ZBC is a leader in conducting community-based research, which includes the voices and ideas of individual community members in research projects. We include the community through events, forums, town hall meetings, workshops and speaking engagements. In addition, ZBC advocates with local, state and national officials on public policy issues that promote funding research and providing necessary resources to understand why Marin has such alarmingly high breast cancer rates.

Program Long-Term Success:

Presently, ZBC is the community principal investigator on two projects focusing on the role of the environment in the development of breast cancer over a woman's life span.

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

Program: Youth Advisory Board for the CYGNET Study (GuideStar Exchange,
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September 2013)

Budget:
--
Category:
None
Population Served:
Children and Youth (infants - 19 years.)
Females, all ages or age unspecified
None

Program Description:

Zero Breast Cancer was recently awarded a second year of funding (NIEHS Opportunity Grant) for the CYGNET Youth Advisory Board. Last year, Zero Breast Cancer developed a Youth Advisory Board (YAB) with Opportunity Grant Funds received in Fiscal Year 2012, with the overall goal of ensuring the activities of the COTC/CYGNET were designed to meet the needs of study participants and youth overall. The YAB was established to allow study participants the opportunity to provide guidance and input into study procedures and to engage the YAB in activities to learn more about the research process and topics of relevance to the CYGNET Study and the BCERP. See appendices for a summary of the activities of and deliverables from the YR 1 Youth Advisory Board.

Program Long-Term Success:

Program Short-Term Success:

Program Success Monitored by:

National Institute of Environmental Health Sciences National Cancer Institute

Program Success Examples:

Development of a website for study participants and their families to promote engagement and retention Creation of an informational video written and executed by the Youth Advisory Board and available online Production of a poster to be presented at the 2012 Breast Cancer and the Environment Research Program Annual Meeting Poster Session Creation of a "What to Expect at Clinic" flyer for distribution to the entire CYGNET cohort to inform participants about what to expect at their yearly clinic visit Changes to study instruments to reflect feedback and improvements from YAB members to increase participation and retention

Program: The LOLA Project (GuideStar Exchange,
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September 2013)

Budget:
--
Category:
None
Population Served:
Children and Youth (infants - 19 years.)
Female Children ( 5 - 14 years)
Hispanics

Program Description:

The Marin County Board of Supervisors awarded Zero Breast Cancer a small intervention grant to create a six week program to teach and promote fitness and nutrition to thirty 3rd and 4th grade girls attending after school programs at San Pedro Elementary School in Marin County, CA. The students at San Pedro Elementary School are 99% Latino and 100% of them fall below the federal poverty line and qualify for free breakfast and lunch programs provided by the school. Over 50% are considered “homeless” and most children are bussed in from the neighboring San Rafael Canals neighborhood which consists of mainly low income housing in a high crime neighborhood. In addition, 85% to 90% of parents do not speak English and 10% to 15% cannot read or write. Therefore, the population is predominately Latina, living in an urban environment in the area. The San Pedro Elementary School Living our Lives Actively Project’s main purpose is to reduce the future risk of breast cancer in Latina women living in living in Marin County by promoting the benefits of good nutrition and physical activity across the life span.

Program Long-Term Success:

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

A verbal pre-test was administered to participants by LOLA staff during the first meeting of the program, with participants answering approximately 40% of the questions correctly. A baseline fitness evaluation was also administered to participants after the first nutrition test which showed poor fitness levels, particularly in areas of endurance and strength. At the conclusion of the program, a verbal post-test was administered to participants by LOLA staff, with participants answering 100% of the questions correctly. A final fitness evaluation was also administered that showed an approximately 25% improvement in speed and strength performance but little improvement in endurance performance. This lack of improvement in endurance was most likely due to the short term duration of the program as well as meetings only occurring once a week. A more consistent and longer term program would result in greater gains in not only endurance, but also speed and strength over time.

Program: University of California Television Video Programs (GuideStar Exchange,
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September 2013)

Budget:
--
Category:
Animal Control
Population Served:
None
None
None

Program Description:

Zero Breast Cancer assumed a leadership role in hosting the Annual (BCERP) Scientific Conference in November 2012. In addition to coordinating a two day workshop, Distilling Your Message: An Interactive Presentation on Communicating Science, we coordinated the videoing, editing and producing of the presentations given at the conference on UCTV. The UCTV April e-newsletter marked the premiere of the BCERP 2012 scientific meeting presentations. As of April 1, 2013, there were 333,767 web views of 18 of the 24 topics. This new programming, 24 topics, can be accessed from ZBC’s existing web address within the UCTV website: http://www.uctv.tv/zerobreastcancer/; and also through the newly created link to the UCTV Breast Cancer and the Environment programming: http://uctv.tv/breast-cancer-environment/ . This year’s scientific program was organized around these windows and included sessions on the in utero, puberty, pregnancy, and menopause periods and ended with a session on the translation of research into public office. Community participation and advocacy concerns were also integrated into the program. Please see the attached flyer to learn more about presentations that were given and to view videos of the talks. Filming of the event was funded by The National Institute of Environmental Health Sciences and The Avon Foundation for Women. Zero Breast Cancer’s Education Director Susan Schwartz worked with UCTV to produce and edit each segment and to provide access to the programming to the public on the UCTV website, www.UCTV.tv.

Program Long-Term Success:

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

Since ZBC has partnered with UCTV (2010) there have been over a million downloads of videos produced by ZBC on topics related to breast cancer, the environment and prevention.
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Impact Summary from the Nonprofit

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