Basic Organization Information
ADRENOLEUKODYSTROPHY FOUNDATION
- Also Known As:
-
The ALD Foundation
- Physical Address:
-
Tulsa, OK
74137
- EIN:
-
72-1481733
- Web URL:
-
www.aldfoundation.org
- NTEE Category:
-
G Disease, Disorders, Medical Disciplines
-
G20 Birth Defects
-
G Disease, Disorders, Medical Disciplines
-
G12 Fund Raising and/or Fund Distribution
- Year Founded:
-
2000
- Ruling Year:
-
2001
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Mission Statement
In 1998, the formation of the Adrenoleukodystrophy Foundation started by building coalitions with committed medical professionals interested in finding solutions in the ALD community. ALD is an orphan disease that has limited funding for research. ALD has been striking families through many generations for a very long time. It is an x-chromosome related genetic defect that affects boys, men and females who are carriers. The aim of The ALD Foundation is to assist families, raise global awareness, educate physicians, and ultimately, the eradication of ALD.
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