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Susan G. Komen Breast Cancer Foundation, Inc., National Office Organization Name provided in the GuideStar Exchange* as of 09/12/2014: Susan G. Komen Breast Cancer Foundation, Inc., National Office

Organization Name as listed in the IRS Business Master File as of 09/08/2014: SUSAN G KOMEN BREAST CANCER FOUNDATION

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AKA  Susan G. Komen
Dallas, TX
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GuideStar Summary

&1002;                GuideStar Exchange Committed to transparency ?
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&1002; Registered with IRS Legitimacy information is available
&1002; Evidence of Impact Expert Assessment and Reviews available
&1002; Financial Data Annual Revenue and Expense data reported
&1002; Forms 990 2013, 2012, and 2011 Forms 990 filed with the IRS
&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit and Charting Impact Report are available
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Basic Organization Information

Susan G. Komen Breast Cancer Foundation, Inc., National Office Organization Name provided in the GuideStar Exchange* as of 09/12/2014: Susan G. Komen Breast Cancer Foundation, Inc., National Office

Organization Name as listed in the IRS Business Master File as of 09/08/2014: SUSAN G KOMEN BREAST CANCER FOUNDATION

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
Also Known As: Susan G. Komen
Physical Address: Dallas, TX 75244 
EIN: 75-1835298
Web URL: www.komen.org 
NTEE Category: G Disease, Disorders, Medical Disciplines
G30 Cancer
W Public, Society Benefit
H Medical Research
H30 Cancer Research
Ruling Year: 1992 
How This Organization Is Funded: Susan G. Komen Race for the Cure(R) Series ($M) - $152
Susan G. Komen Breast Cancer 3 Day(R) Series ($M) - $56
Cause Marketing, Fundraising, Direct Mail ($M) - $129


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Mission Statement

Nancy G. Brinker promised her sister that she would do everything in her power to end breast cancer forever. That promise is now Susan G. Komen for the Cure®, the global leader of the breast cancer movement, having invested more than $2.2 billion since inception in 1982. As the world’s largest grassroots network of breast cancer survivors and activists, we’re working together to save lives, empower people, ensure quality care for all and energize science to find the cures. Thanks to events like the Susan G. Komen Race for the Cure® and the Susan G. Komen 3-Day for the Cure®, and generous contributions from our partners, sponsors and fellow supporters, we have become the largest source of nonprofit funds dedicated to the fight against breast cancer in the world.

Legitimacy Information

This organization is registered with the IRS.

This organization is required to file an IRS Form 990 or 990-EZ.

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Annual Revenue & Expenses (GuideStar Exchange,
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September 2014)

Fiscal Year Starting: April 1, 2012
Fiscal Year Ending: March 31, 2013

Total Revenue $263,673,268
Total Expenses $288,446,687

Revenue & Expenses (GuideStar Exchange,
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September 2014)

Fiscal Year Starting: April 1, 2012
Fiscal Year Ending: March 31, 2013

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Balance Sheet (IRS Form 990)

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Forms 990 Received from the IRS Additional Information
IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar website is an ongoing process.

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Forms 990 Provided by the Nonprofit

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Financial Statements

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Annual Reports

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Leadership (GuideStar Exchange,
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September 2014)

Dr. Judith Salerno, M.D.

Profile:

Before joining the IOM, Dr. Salerno was Deputy Director of the National Institute on Aging (NIA) at the National Institutes of Health, U.S. Department of Health and Human Services. She oversaw the Institute’s research into aging, including research on Alzheimer’s and other neurodegenerative diseases, frailty and function in late life, and the social, behavioral and demographic aspects of aging. As the NIA’s senior geriatrician, Dr. Salerno was vitally interested in improving the health and well-being of older persons, and designed public-private initiatives to address aging stereotypes, novel approaches to support training of new investigators in aging, and programs to communicate health and research advances to the public. Before joining the NIA in 2001, Dr. Salerno directed the continuum of Geriatrics and Extended Care programs across the nation for the U.S. Department of Veterans Affairs (VA), Washington, D.C. While at the VA, she launched widely recognized national initiatives for pain management and improving end-of-life care. Prior to this appointment, Dr. Salerno was Associate Chief of Staff at the VA Medical Center in Washington, D.C. where she developed and implemented innovative approaches to geriatric primary care and coordinated area-wide geriatric medicine training. Dr. Salerno also co-founded the Washington D.C. Area Geriatric Education Center Consortium, a collaboration of more than 160 educational and community organizations within the Baltimore-Washington region. A board-certified physician in internal medicine, Dr. Salerno earned her M.D. degree from Harvard Medical School in 1985 and a Master of Science degree in Health Policy from the Harvard School of Public Health in 1976.

Leadership Statement:

Led by more than 100,000 survivors and activists, we are the world's largest and most progressive grassroots network fighting to end breast cancer forever. As the face and voice of the global breast cancer movement … We are local activists in more than 120 cities and communities, mobilizing more than 1.7 million friends and neighbors every year through events like the Susan G. Komen Race for the Cure® Series—the world's largest and most successful awareness and fundraising event for breast cancer. We are advocates at the local, state and federal level, fighting for the screening and treatment programs that save lives and the research that brings us closer to the cures. We are global citizens working with local health groups around the world and through our Web site, komen.org, to help millions of women in nearly 200 countries overcome the social, cultural and economic barriers to breast health and treatment.

Board Chair (GuideStar Exchange,
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September 2014)

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Board Co-Chair

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Board of Directors (GuideStar Exchange,
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September 2014)

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Board Leadership Practices (GuideStar Exchange,
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September 2014)
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GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

Board Orientation & Education ?
Why does this matter? Without clarity around their responsibilities and expectations, board members are not positioned to succeed. They may find themselves challenged to fulfill their governance responsibilities or frustrated by the expectations that the organization has set for them. BoardSource recommends that every new board member participate in a formal orientation process, and that all board members sign a pledge or agreement committing to their board service and to all of the responsibilities and expectations that come with service. Ideally, board members also should participate in a formal governance training program prior to serving on a board.

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?
Response Not Provided
CEO Oversight ?
Why does this matter? Oversight and management of the chief executive is one of the board’s most important legal responsibilities. The CEO or executive director is the board's single employee, and - just like any other employer/employee relationship - regular and written assessment is critical to ensuring that the chief executive and board are communicating openly about goals and performance. BoardSource recommends that boards conduct formal, written reviews of their chief executives on an annual basis, which should include an in-person discussion with the chief executive and distribution of the written evaluation to the full board.

Has the board conducted a formal, written assessment of the chief executive within the past year?
Response Not Provided
Ethics & Transparency ?
Why does this matter? A commitment to handling conflicts of interests is essential to creating an organizational culture of transparency. Boards should create and follow a policy for identifying and handling conflicts of interest, whether real or perceived. BoardSource recommends that organizations review the conflict-of-interest statement and require signed disclosures from all board members and senior staff on an annual basis.

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements within the past year?
Yes
Board Composition ?
Why does this matter? The best boards are composed of individuals who bring a variety of skills, perspectives, backgrounds, and resources to tackle the complex and strategic challenges confronting their organizations. BoardSource recommends that boards commit to diversity and inclusion by establishing written policies and practices, which include strategic and intentional recruitment of diverse board members, continual commitment to inclusivity, and equal access to board leadership opportunities.

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?
Response Not Provided
Board Performance ?
Why does this matter? Boards need to regularly assess their own performance. Doing so ensures that they are being intentional about how they govern their organization, which is a critical component of effective board leadership. BoardSource recommends that a board conduct a self-assessment of its performance a minimum of once every three years to ensure that it is staying on track with its roles and responsibilities.

Has the board conducted a formal, written self-assessment of its performance within the past three years?
Response Not Provided

Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

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People information was last updated by the nonprofit in September 2014

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Programs

Program: Research & Scientific Programs (GuideStar Exchange,
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September 2014)

Budget:
--
Category:
Cancer Research
Population Served:
Adults
Other Minorities
Poor/Economically Disadvantaged, Indigent, General

Program Description:

A significant portion of Komen research funding goes toward the new and exciting fields of cancer biology and genetics. Some Komen-sponsored programs already are making an impact for patients, and early results from other grants show potential for the development of future cures. Current treatments work best when breast cancer is detected early. Komen continues its investment into early detection, devoting research funds to the development of better screening methods and improving the precision and accuracy of existing screening tools. Komen works to ensure that all people, regardless of race, income, geographic location, or insurance status, have access to screening, and if diagnosed, to quality, effective treatment.

Program Long-Term Success:

Susan G. Komen funded research conducted by some of the earliest pioneers in targeted therapies. This includes early work in diagnosing HER 2 positive breast cancer and using the drug Herceptin to treat it.

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

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Impact Summary from the Nonprofit Additional Information
A Charting Impact Report consists of an organization’s responses to the five questions. Helping validate this self-reported data are three reviews. Once an organization has used the online interface to complete its report, its responses will produce a document with a unique URL that will be shared on this website, on your GuideStar profile, on the reports of charities participating in BBB Wise Giving Alliance evaluations, and – in the future – with other websites and information sources about nonprofits. We encourage organizations to use this URL to share their report on their own website and through their own media channels. Participants will receive guidance about promoting their Charting Impact Report, along with other benefits, once they publish their report.

Since 1982, Komen for the Cure has played a critical role in every major advance in the fight against breast cancer – transforming how the world talks about and treats this disease and helping to turn millions of breast cancer patients into breast cancer survivors. We are proud of our contribution to some real victories: More early detection – nearly 75 percent of women over 40 years old now receive regular mammograms, the single most effective tool for detecting breast cancer early (in 1982, less than 30 percent received a clinical exam). More hope – the five-year survival rate for breast cancer, when caught early before it spreads beyond the breast, is now 98 percent (compared to 74 percent in 1982). More research – the federal government now devotes more than $900 million each year to breast cancer research, treatment and prevention (compared to $30 million in 1982). More survivors – America’s 2.5 million breast cancers survivors, the largest group of cancer survivors in the U.S., are a living testament to the power of society and science to save lives.
For more in-depth information about this organization's impact, view their Charting Impact Report.

Expert Assessment

The Susan G. Komen Breast Cancer Foundation has had a strong impact by bringing breast cancer issues to light and raising valuable funds for breast cancer research. Read More »

Expert Reviews and Comments

2011 Philanthropedia Top Nonprofit

This organization is a 2011 Philanthropedia top nonprofit, recommended by experts as having high impact.

These expert reviews were generated through Philanthropedia's research methodology to identify high-impact nonprofits. Learn more

Evidence of Impact

The Susan G. Komen Breast Cancer Foundation has had a strong impact by bringing breast cancer issues to light and raising valuable funds for breast cancer research.

Leader in the Field
They have done everything the best! Nonprofit Senior Staff
Funding Research
It raises awareness and brings in and distributes large amounts of money to support good research. Researcher and Faculty
Komen has made a tremendous impact on funding breast cancer research and programs. Nonprofit Senior Staff
Strong Influence on the Community
Komen reaches into every community and has influenced the dialogue about breast cancer for several decades. Nonprofit Senior Staff
Raising Awareness
The organization is ubiquitous in cancer fundraising and raising awareness. They have become the "gold standard" taking breast cancer from a disease people didn't discuss to part of the national and corporate discourse. Nonprofit Senior Staff
They have enhanced the visibility of breast cancer. Other
This group has increased public awareness and has also contributed some research. Researcher and Faculty
This is a highly visible, well funded organization. Researcher and Faculty
This is the most well-known of Breast Cancer Groups in the public's mind. It has raised awareness about the disease and has created a strong following/advocate voice. Other
Use of Funds
I have been behinds the scene as a volunteer and as someone who helps determine how their fundraising efforts are spent. I have been impressed overall with how much they do and it is primarily with volunteers. Their community fundraising goes directly to the communities. I think they are great! Other
Brand Awareness
Highly successful in brand awareness with focus solely on breast cancer. Nonprofit Senior Staff
Move from Awareness to Action
Excellent organization making an important move from "awareness" to "action." I expect great things from them in the future on behalf of breast cancer patients. Other

Organizational Strengths

According to experts, this organization's greatest strengths are its decisions on funding research for a cure and its strong marketing tactics.

Good Research
They are the leader in getting as close to the cure for one cancer than all the rest. Nonprofit Senior Staff
Good Internal Organization
They are very well controlled and organized and have had a powerful impact. Researcher and Faculty
Good Public Relations
They've dealt with the backlash from their extensive cause marketing relationships (e.g., Kentucky Fried Chicken) very effectively. They connect with and retain constituents exceptionally well. Nonprofit Senior Staff
Great Marketing
Komen's marketing is the strongest of any organization with which I am familiar. Its marketing strategy has benefitted the organization financially as well as bringing an early detection and cure message to a broad population. It also has a founder who has great media recognition and an extensive network of influential contacts. Nonprofit Senior Staff
Their marketing and community organizing are strong. Other
Strategic Funding of Research
The organization has mobilized American companies and individuals to an unprecedented degree and has been able to raise enough money for research to move the science forward dramatically. Although there is still no "cure", breast cancer has become a disease that most patients survive. Nonprofit Senior Staff
It funds high impact work and has substantial resources. Researcher and Faculty
Effective Focus
Their focus on disparities is a strength. Researcher and Faculty
Strong Leadership
They have strong leadership and are organized and run like the Brinker Family businesses with a good strategic vision. Other

Areas for Improvement

The major sources of criticism for the Susan G. Komen Breast Cancer Foundation are in the organization's lack of collaborations and its need for new fresh ideas.

Expand to Other Cancers
I believe that if they decided to start including the other cancers, such as Lung, they could help make the world a much better place. I believe they should embrace other cancers and be the worldwide leader of all cancers. Nonprofit Senior Staff
Openness to New Ideas
It should move a bit more away from the common areas of research support. They should think more outside the box. Researcher and Faculty
They should reach out for unconventional ideas from people outside the field. Researcher and Faculty
More Collaboration with the Community
Because they don't have local offices, programs or services, they are challenged in illustrating the impact of their fundraising at a local level. They don't actively seek out opportunities to collaborate for greater impact as frequently or effectively as others in the cancer non-profit arena. Nonprofit Senior Staff
The organization has been known to be litigious against smaller organizations who use "for the cure" in their marketing. This is not a legally trademarked phrase, but they have gotten away with muscling out smaller groups that don't have the money to fight back. A number of organizations have had to close down due to this harassment. A shame, as there is room for all. Nonprofit Senior Staff
Continuity of Leadership
They have had leadership turnover several times in the past few years which was not clearly communicated. More transparency in leadership as well as in external communications would be beneficial. Nonprofit Senior Staff
More Collaborative Efforts
Collaborate with ACS. Other
Higher Standards for Research
They need to fund research instead of weak evaluations. Researcher and Faculty
Careful with Partnerships
It does sometimes need to be more selective with partners (for example , the KFC Partnership) Other
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Third Party Ratings, Accreditations and Awards

Reviews

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