Basic Organization Information
KENNEDYS DISEASE ASSOCIATION
- Also Known As:
- Physical Address:
- Web URL:
- NTEE Category:
H Medical Research
H96 Neurology, Neuroscience
H Medical Research
H50 Nerve, Muscle, Bone Research
G Disease, Disorders, Medical Disciplines
G50 Nerve, Muscle and Bone Diseases
- Ruling Year:
- How This Organization Is Funded:
The objectives of the Kennedy's Disease Association are:
1. Financially support and promote medical research to find a treatment or cure for Kennedy's Disease
2. Improve awareness of Kennedy's Disease in the medical community
3. Create a support system for those living with Kennedy's Disease
4. Increase public awareness about Kennedy's Disease and its effects on families
5. Share information about Kennedy's Disease for those who seek it.
Forms 990 Provided by the Nonprofit
Audited Financial Statement is not available for this organization.
Letter of Determination is not available for this organization.
Mr. Ed Meyertholen, PhD
Dr. Meyertholen went to Boston College where he graduated with a Biology/Chemistry major. He then attended graduate school at Purdue University and received his Ph.D. in biology in 1982. After holding faculty positions at several universities he settled in Austin, TX where he taught Cell and Molecular Biology, Genetics and Physiology at Austin Community College. In 2005, Ed was awarded a sabbatical leave and was able to do research on Kennedy's Disease in the lab of Dr. Diane Merry at Thomas Jefferson University in Philadelphia. In 2012, Ed accepted a position as Assistant Dean and Director of Pre-Health Programs at Georgetown College, Georgetown University, Washington, DC. Ed is also a member of the Scientific Advisory Board of the KDA. Ed was diagnosed with KD in 1999 when he was 45. Since having been diagnosed, he has taken up running and has completed five marathons, including the Boston Marathon in 2004. Ed has tried to use his running as a means of raising money for the KDA.
Board of Directors
Officers for Fiscal Year
Officers information is not available for this organization.
Highest Paid Employees & Their Compensation
Highest Paid Employee data is not available for this organization.
Impact Summary from the Nonprofit
91¢ of every dollar donated is used for Kennedy's Disease research and education.