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Coarsegold, CA

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Also Known As:
Physical Address:
Coarsegold, CA 93614 
Web URL:
Mr. Ed Meyertholen, PhD
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Legitimacy Information

  • This organization is registered with the IRS.
  • This organization is required to file an IRS Form 990 or 990-EZ.

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Basic Organization Information


Also Known As:
Physical Address:
Coarsegold, CA 93614 
Web URL:
NTEE Category:
H Medical Research 
H96 Neurology, Neuroscience 
H Medical Research 
H50 Nerve, Muscle, Bone Research 
G Disease, Disorders, Medical Disciplines 
G50 Nerve, Muscle and Bone Diseases 
Ruling Year:
How This Organization Is Funded:
Private donations

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Mission Statement

The objectives of the Kennedy's Disease Association are: 1. Financially support and promote medical research to find a treatment or cure for Kennedy's Disease 2. Improve awareness of Kennedy's Disease in the medical community 3. Create a support system for those living with Kennedy's Disease 4. Increase public awareness about Kennedy's Disease and its effects on families 5. Share information about Kennedy's Disease for those who seek it.

Leadership (GuideStar ExchangeThe GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more. February, 2013)

Mr. Ed Meyertholen, PhD


Since Aug 2013


Dr. Meyertholen went to Boston College where he graduated with a Biology/Chemistry major. He then attended graduate school at Purdue University and received his Ph.D. in biology in 1982. After holding faculty positions at several universities he settled in Austin, TX where he taught Cell and Molecular Biology, Genetics and Physiology at Austin Community College. In 2005, Ed was awarded a sabbatical leave and was able to do research on Kennedy's Disease in the lab of Dr. Diane Merry at Thomas Jefferson University in Philadelphia. In 2012, Ed accepted a position as Assistant Dean and Director of Pre-Health Programs at Georgetown College, Georgetown University, Washington, DC. Ed is also a member of the Scientific Advisory Board of the KDA. Ed was diagnosed with KD in 1999 when he was 45. Since having been diagnosed, he has taken up running and has completed five marathons, including the Boston Marathon in 2004. Ed has tried to use his running as a means of raising money for the KDA.

Officers for Fiscal Year (IRS Form 990)

Officers information is not available for this organization.

Highest Paid Employees & Their Compensation (IRS Form 990)

Highest Paid Employee data is not available for this organization.

Impact Summary from the Nonprofit

91¢ of every dollar donated is used for Kennedy's Disease research and education.

Organization Data Available

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