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International Pemphigus Foundation Organization Name provided in the GuideStar Exchange* as of 08/20/2014: International Pemphigus Foundation

Organization Name as listed in the IRS Business Master File as of 08/11/2014: INTERNATIONAL PEMPHIGUS PEMPHIGOID FOUNDATION

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.

AKA  IPPF
Sacramento, CA
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GuideStar Summary

&1002; GuideStar Exchange Committed to transparency ?
This organization is a Bronze-level GuideStar Exchange participant, demonstrating its commitment to transparency.

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&1002; Registered with IRS Legitimacy information is available
&1002; Financial Data Annual Revenue and Expense data reported
&1002; Forms 990 2012, 2011, and 2010 Forms 990 filed with the IRS
&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit is not available
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Basic Organization Information

International Pemphigus Foundation Organization Name provided in the GuideStar Exchange* as of 08/20/2014: International Pemphigus Foundation

Organization Name as listed in the IRS Business Master File as of 08/11/2014: INTERNATIONAL PEMPHIGUS PEMPHIGOID FOUNDATION

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
Also Known As: IPPF
Physical Address: Sacramento, CA 95833 
EIN: 94-3207871
Web URL: www.pemphigus.org 
NTEE Category: G Disease, Disorders, Medical Disciplines
G80 Specifically Named Diseases
Ruling Year: 1994 
Top Funders: Unger Family Foundation - $200,000
Sy Syms Foundation - $15,000
KabaFusion - $25,000


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Mission Statement

The IPPF is the pre-eminent global organization dedicated to improving the quality of life of all people diagnosed with, or affected by, pemphigus or pemphigoid. We achieve this through active patient support, education, and advocacy into research addressing mechanisms, treatment, and cure. Our partnership between patients, families, the world?s leading doctors and diverse segments of the biomedical and healthcare community creates hope, and with hope everything is possible.

Legitimacy Information

This organization is registered with the IRS.

This organization is required to file an IRS Form 990 or 990-EZ.

Institutional funders should note that an organization’s inclusion on GuideStar.org does not satisfy IRS Rev. Proc. 2011-33 for identifying supporting organizations.

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Annual Revenue & Expenses

(GuideStar Exchange,
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August 2014)

Fiscal Year Starting: January 1, 2012
Fiscal Year Ending: December 31, 2012

Total Revenue --
Total Expenses --

Revenue & Expenses

Revenue and expense information has not been provided by the nonprofit. Click here if you are associated with this organization and want to provide this information.

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Balance Sheet (IRS Form 990)

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Forms 990 Received from the IRS Additional Information
IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar website is an ongoing process.

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Forms 990 Provided by the Nonprofit

Financial Statements

Audited Financial Statement is not available for this organization.

Annual Reports

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Leadership

(GuideStar Exchange,
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August 2014)

Mr William Zrnchik, MBA, MNM

Term:

Since Oct 2011

Board Chair (GuideStar Exchange,
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August 2014)

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Board Co-Chair (GuideStar Exchange,
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August 2014)

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Board of Directors (GuideStar Exchange,
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August 2014)

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Board Leadership Practices (GuideStar Exchange,
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August 2014)
?

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

Board Orientation & Education ?
Why does this matter? Without clarity around their responsibilities and expectations, board members are not positioned to succeed. They may find themselves challenged to fulfill their governance responsibilities or frustrated by the expectations that the organization has set for them. BoardSource recommends that every new board member participate in a formal orientation process, and that all board members sign a pledge or agreement committing to their board service and to all of the responsibilities and expectations that come with service. Ideally, board members also should participate in a formal governance training program prior to serving on a board.

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?
Response Not Provided
CEO Oversight ?
Why does this matter? Oversight and management of the chief executive is one of the board’s most important legal responsibilities. The CEO or executive director is the board's single employee, and - just like any other employer/employee relationship - regular and written assessment is critical to ensuring that the chief executive and board are communicating openly about goals and performance. BoardSource recommends that boards conduct formal, written reviews of their chief executives on an annual basis, which should include an in-person discussion with the chief executive and distribution of the written evaluation to the full board.

Has the board conducted a formal, written assessment of the chief executive within the past year?
Response Not Provided
Ethics & Transparency ?
Why does this matter? A commitment to handling conflicts of interests is essential to creating an organizational culture of transparency. Boards should create and follow a policy for identifying and handling conflicts of interest, whether real or perceived. BoardSource recommends that organizations review the conflict-of-interest statement and require signed disclosures from all board members and senior staff on an annual basis.

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements within the past year?
Response Not Provided
Board Composition ?
Why does this matter? The best boards are composed of individuals who bring a variety of skills, perspectives, backgrounds, and resources to tackle the complex and strategic challenges confronting their organizations. BoardSource recommends that boards commit to diversity and inclusion by establishing written policies and practices, which include strategic and intentional recruitment of diverse board members, continual commitment to inclusivity, and equal access to board leadership opportunities.

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?
Response Not Provided
Board Performance ?
Why does this matter? Boards need to regularly assess their own performance. Doing so ensures that they are being intentional about how they govern their organization, which is a critical component of effective board leadership. BoardSource recommends that a board conduct a self-assessment of its performance a minimum of once every three years to ensure that it is staying on track with its roles and responsibilities.

Has the board conducted a formal, written self-assessment of its performance within the past three years?
Response Not Provided

Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

Highest Paid Employee data is not available for this organization.

People information was last updated by the nonprofit in August 2014

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Giving Library Additional Information
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Programs

Program: Patient Support (GuideStar Exchange,
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August 2014)

Budget:
--
Category:
Skin Diseases
Population Served:
General Public/Unspecified
None
None

Program Description:

Information - newsletter, website, booklets brochures, annual patient/doctor meeting. Personal support. Referrals to experts We advocate for patients as members of the National Health Council, the Coalition of Skin Diseases, the National Autoimmune Alliance, and internationally, with the International Alliance of Patient Organizations.

Program Long-Term Success:

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

Program: Awareness (GuideStar Exchange,
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
August 2014)

Budget:
--
Category:
Skin Diseases
Population Served:
General Public/Unspecified
None
None

Program Description:

Increase pemphigus and pemphigoid awareness among the general public and medical community.

Program Long-Term Success:

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

GuideStar Exchange - Bronze Participant What is this?
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Impact Summary from the Nonprofit

This organization has not provided an impact summary.
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Organization Data Available

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  • Officer, Director and/or Highest Paid Employee data for


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