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National Multiple Sclerosis Society, Southern California & Nevada Chapter Organization Name provided in the GuideStar Exchange* as of 05/12/2014: National Multiple Sclerosis Society, Southern California & Nevada Chapter

Organization Name as listed in the IRS Business Master File as of 06/09/2014: NATIONAL MULTIPLE SCLEROSIS SOCIETY

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LOS ANGELES, CA
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GuideStar Summary

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&1002; Registered with IRS Legitimacy information is available
&1002; Financial Data Annual Revenue and Expense data reported
&1002; Forms 990 2013, 2012, and 2011 Forms 990 filed with the IRS
&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit is available
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Basic Organization Information

National Multiple Sclerosis Society, Southern California & Nevada Chapter Organization Name provided in the GuideStar Exchange* as of 05/12/2014: National Multiple Sclerosis Society, Southern California & Nevada Chapter

Organization Name as listed in the IRS Business Master File as of 06/09/2014: NATIONAL MULTIPLE SCLEROSIS SOCIETY

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Physical Address: LOS ANGELES, CA 90056 1663
EIN: 95-1727656
Web URL: www.nationalmssociety.org/chapters/cal 
NTEE Category: G Disease, Disorders, Medical Disciplines
G99 Diseases, Disorders, Medical Disciplines N.E.C.
Ruling Year: 1949 
How This Organization Is Funded: Public Support


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Mission Statement

We mobilize people and resources to drive research for a cure, and to address the challenges ofeveryone affected by MS

Legitimacy Information

This organization is registered with the IRS.

This organization is required to file an IRS Form 990 or 990-EZ.

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Annual Revenue & Expenses (GuideStar Exchange,
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May 2014)

Fiscal Year Starting: October 1, 2012
Fiscal Year Ending: September 30, 2013

Total Revenue $8,106,418
Total Expenses $8,609,149

Revenue & Expenses (GuideStar Exchange,
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May 2014)

Fiscal Year Starting: October 1, 2012
Fiscal Year Ending: September 30, 2013

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Balance Sheet (IRS Form 990)

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Forms 990 Received from the IRS Additional Information
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Forms 990 Provided by the Nonprofit

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Financial Statements

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Annual Reports

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Leadership (GuideStar Exchange,
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May 2014)

Susan Bradley

Leadership Statement:

Susan Bradley was named Chapter President in May 2012, after having served as Interim Chapter President since January. She began her Chapter career in 2005 as Vice President of Regional Operations and was promoted to Executive Vice President in the fall of 2010. Susan has an MBA from USC, and brought to the Chapter great leadership experience in both the for-profit and nonprofit worlds; beginning her career in sales management, Susan spent 15 years in the banking and financial services industry, after which she served as executive director of the Stroke Association for three years. Through her leadership roles at the Chapter, Susan led the successful integration of its regional markets in Channel Islands, the San Joaquin Valley, and Nevada, and has helped to grow revenue and expand services, creating meaningful partnerships with world-class community health resources in these regions. In fundraising, Susan has worked to revitalize the Bike MS events in both Santa Barbara and Las Vegas and helped to foster the growth of WALK MS revenue outside of the Greater Los Angeles market. Susan has been a vocal advocate and champion for those living in underserved communities, and has been a leader in moving the Chapter forward in rural outreach and new initiatives such as telemedicine. Susan said, “It is my great privilege to work with our outstanding volunteers and staff to guide us closer toward a world free of multiple sclerosis. In the small amount of time since I began my career with the Society in 2005, amazing strides have been made in our progress to end the devastating effects of this disease. I have witnessed extraordinary personal achievements by individuals who live with the daily challenges the disease can bring as well as impressive milestones for our organization in general. We are moving toward our goal—a world free of MS. For all of us who are passionate about doing something about MS, the day we reach that goal cannot arrive soon enough!”

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May 2014)

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May 2014)

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Officers for Fiscal Year (IRS Form 990)

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People information was last updated by the nonprofit in May 2014

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Programs

Program: Client counseling (GuideStar Exchange,
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May 2014)

Budget:
--
Category:
None
Population Served:
None
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None

Program Description:

Client services provides direct counseling and financial assistance and equipment to persons with multiple sclerosis and wellness programs including exercise and aquatics. Provides ongoing support groups. Professional education & training improves the knowledge and skills of those in the health care systems through reporting new medical advancements and diagnostic techniques includes research grand to affiliate. Public education informs and alerts the general public about multiple sclerosis through distribution of materials and literature designed to increase public's awareness of the disease. Community services supports and works with other organizations to develop and conduct rehabilitative and similar-type programs which directly or indirectly benefit the community.

Program Long-Term Success:

The National MS Society's Board of Directors commissioned the Institute of Medicine at the National Academy of Sciences to analyze the multiple sclerosis field. A study group of scientists and physicians from academia, industry, and independent research institutions was created to review current scientific knowledge worldwide and to recommend strategic plans for future research both in laboratories and in people with MS.

Program Short-Term Success:

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Program Success Examples:

Program: Access to MS-Related Care (GuideStar Exchange,
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May 2014)

Budget:
$165,675
Category:
Health Care
Population Served:
Adults

Program Description:

Consistent with the Society's strategic response to MS and the goal of expanding access to high quality MS care, this initiative addresses existing needs for individuals with MS, including the uninsured or underinsured, the medically poor, those with progressive disease and complex medical or care issues, and those facing language barriers. The Chapter delivers services that fill the gaps in care for this population, ranging from MS specialty care through in-person and telemedicine consultations, comprehensive care and rehabilitation services, and clinic-based, Spanish-language medical interpreters, to case management assistance to coordinate resources and services that support independent living.

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Program: Emotional Health Program (GuideStar Exchange,
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May 2014)

Budget:
$81,020
Category:
Mental Health, Substance Abuse
Population Served:
Adults

Program Description:

Through the Emotional Health Program, the Chapter strives to assist individuals with MS and their families or care partner support systems to better cope with the varied emotional challenges related to this chronic and disabling disease. MS impacts an individual's total lifestyle, affecting one's health, social, economic, and psychological conditions. Unlike other chronic diseases, the ambiguity of diagnosis, unpredictable disease course, relapsing symptoms, and challenging treatment decisions are unique characteristics of MS that create special emotional burdens. Through the course of the disease, individuals experience a wide range of emotional reactions including confusion about MS, fear for the future, and anger about or denial of the illness. The Chapter's services to address these issues include:-One-to-One Counseling through in-person and telephone formats;-Peer Support Programs;-Group support through the Care Partner Support Network, Support Groups at Skilled Nursing Facilities, and Peer-Led Self-Help Groups; and-Emotional Wellness Teleseries.

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Program: Financial Assistance (GuideStar Exchange,
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May 2014)

Budget:
$156,500
Category:
Diseases, Disorders & Medical Disciplines
Population Served:
Adults

Program Description:

The Chapter serves as the local MS population's go-to organization of both the first and last resort for support, first serving as the bridge to existing resources in the community to address issues, and last as the payer of last resort through direct financial assistance where needed. Through this program, the Chapter ensures that people with MS have access to financial assistance to help mitigate the impact of the disease when insurance and disability benefits fall short; services must not be available using other resources, such as private insurance, Medicare, or Medi-Cal. Assistance is available in the following areas:1. Assistance to address critical short-term needs (emergency or crisis assistance): Funding for unexpected, one-time situations (food, rent, utilities), with official documentation demonstrating proof of emergency required.2. Assistance for critical care services that promote health and maintain independence:-Short-term rehabilitation services-Crisis Counseling-Equipment and accessibility modifications (auto/home)-Transportation assistance to health care visits3. Assistance to support the physical, emotional, and financial burden to the family:-Respite/Adult day services-In-home and personal care-Chore services-Assistance for special family needs

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Program: Centers for Optimal Living with MS (GuideStar Exchange,
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May 2014)

Budget:
$751,470
Category:
Diseases, Disorders & Medical Disciplines
Population Served:
Adults

Program Description:

In 2005, the Chapter developed the Centers for Optimal Living with MS initiative, establishing a one-of-a-kind partnership between a network of leading centers for MS care across L.A. County that are not only dedicated to the medical management of MS, but are also committed to promoting well-being, optimizing function, and enhancing the quality of life for those with the disease. These collaborations with four centers for MS care include The Marilyn Hilton MS Achievement Center at UCLA, USC, Rancho Los Amigos National Rehabilitation Center, and Casa Colina Centers for Rehabilitation. The Chapter has leveraged the knowledge and resources of these centers' MS professionals to develop the following novel models for program delivery, which have proven to be effective in addressing key issues and barriers for those with MS across the continuum of the disease: -For those receiving a new MS diagnosis, the twelve-week Living Well with MS program provides a proactive, integrated approach to wellness that complements the medical management of MS, blending online interactive education and discussion groups with community-based adaptive fitness training.-Over time, functional changes that creep into life with progressing MS can erode a person's independence and interfere with everyday activities. The Chapter designed three multi-week programs that provide strategies for managing the daily challenges of MS by addressing cognitive impairment, reducing the risk of falls, and optimizing and improving function.-The Marilyn Hilton MS Achievement Center at UCLA provides an effective MS-focused delivery model for adult day programming that offers preventative, restorative, and rehabilitative services for low-income and other individuals with more progressive MS and varying levels of independence and abilities. The Chapter is also expanding this initiative by launching a new center in conjunction with USC as part of the L.A. Wellness Center Project. This unique partnership project is providing free space in the soon-to-be renovated County General Hospital, where the Chapter will bring culturally appropriate services and health promotion activities directly into the community to serve the most at-risk individuals affected by MS in L.A. County.

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Impact Summary from the Nonprofit

Consistent with the Society’s mission, the Southern California & Nevada Chapter, in operation since 1947, strives to end the devastating effects of MS through the support of MS research as well as programs and services to serve the nearly 19,000 individuals with MS and their families in the local region. The Chapter’s delivery of programs and services to the local MS population aligns with the Society’s strategic goal—To develop, deliver, and leverage resources to enhance care for people with MS and quality of life for all those affected by the disease. The Chapter’s range of programs and services that address these objectives include education and referrals, caregiver and family support, share-of-cost and financial assistance programs, emotional support, adaptive physical activities, symptom management workshops, quality MS care and support services, MS-specific wellness programs tailored to the needs of newly diagnosed populations and those with progressive MS, recreational activities, and Spanish-language programs.
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