Title here

Text here

SPONDYLITIS ASSOCIATION OF AMERICA

AKA SAA

Sherman Oaks, CA

GuideStar Quick View Everything you need to know...

SPONDYLITIS ASSOCIATION OF AMERICA

Also Known As:
SAA
Physical Address:
Sherman Oaks, CA 91413 
EIN:
95-3890767
Web URL:
www.spondylitis.org
Leadership:
Laurie M. Savage
Detailed Financial and People Data included in the GuideStar Premium Report Report Added To Cart

Legitimacy Information

  • This organization is registered with the IRS.
  • This organization is required to file an IRS Form 990 or 990-EZ.

Institutional funders should note that an organization’s inclusion on GuideStar.org does not satisfy IRS Rev. Proc. 2011-33 for identifying supporting organizations.

Learn more about GuideStar Charity Check, the only pre-grant due diligence tool that is 100% compliant with IRS Rev. Proc 2011-33.


Forms 990 from IRS Additional Information IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar Web site is an ongoing process.

Forms 990 for 2012, 2011, 2010, 2009, 2008 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart

A multi-year analysis of key balance sheet, income statement, profitability and liquidity measures is available for this organization. Financial SCAN includes a detailed financial health analysis and peer comparison and benchmarking tool. Learn More

Financial SCAN

Financial SCAN

Key Financial SCAN Features

  • Financial Health Dashboard: Highlights key financial trends and ratios for a selected nonprofit organization over a period of up to five years.
  • Peer Comparison Dashboard: Compares the organization's financials with up to five peer nonprofits that you select.
  • Graphical Analysis: Provides multi-year graphs and an interpretive guide in a format ready to present to your clients.
  • Printable PDF Report: Provides a complete analysis of the organization for your records. The full report tells you what to look for and why it matters.
  • Advanced Search: Allows you to search by EIN (Employer Identification Number), organization name, city, state, revenue, expenses, and assets.

Annual Revenue & Expenses Additional Information Financial information on GuideStar is either digitized from Form 990 images we receive from the IRS or submitted by the nonprofits themselves through the GuideStar Exchange (990 filers cannot override Form 990 financial data). If your organization does not file a Form 990, 990-EZ, or 990-PF and you would like to have your financial data displayed in this section, join the GuideStar Exchange today!

Fiscal Year Starting: July 1, 2011
Fiscal Year Ending: June 30, 2012
Revenue
Total Revenue $1,128,533
Expenses
Total Expenses $1,237,381

Is this information up-to-date?
Claim your report and update your GuideStar Exchange profile today!

Financial data from Forms 990 for Year 2012, 2011, 2010, 2009, 2008 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart

A multi-year analysis of key balance sheet, income statement, profitability and liquidity measures is available for this organization. Financial SCAN includes a detailed financial health analysis and peer comparison and benchmarking tool. Learn More

Financial SCAN

Financial SCAN

Key Financial SCAN Features

  • Financial Health Dashboard: Highlights key financial trends and ratios for a selected nonprofit organization over a period of up to five years.
  • Peer Comparison Dashboard: Compares the organization's financials with up to five peer nonprofits that you select.
  • Graphical Analysis: Provides multi-year graphs and an interpretive guide in a format ready to present to your clients.
  • Printable PDF Report: Provides a complete analysis of the organization for your records. The full report tells you what to look for and why it matters.
  • Advanced Search: Allows you to search by EIN (Employer Identification Number), organization name, city, state, revenue, expenses, and assets.



GuideStar Exchange Member

This organization is a Gold-level GuideStar Exchange participant, demonstrating its commitment to transparency.

Is this your organization's report?
Update your organization's information today!


Basic Organization Information

SPONDYLITIS ASSOCIATION OF AMERICA

Also Known As:
SAA
Physical Address:
Sherman Oaks, CA 91413 
EIN:
95-3890767
Web URL:
www.spondylitis.org 
NTEE Category:
G Disease, Disorders, Medical Disciplines 
G51 Arthritis 
H Medical Research 
H90 Medical Specialty Research 
E Health—General & Rehabilitative 
Ruling Year:
1984 

Sign in or create an account to see this organization's full address, contact information, and more!


Mission Statement

To be a leader in the quest to cure ankylosing spondylitis and related diseases, and to empower those affected to live their lives to the fullest.

A multi-year analysis of key balance sheet, income statement, profitability and liquidity measures is available for this organization. Financial SCAN includes a detailed financial health analysis and peer comparison and benchmarking tool. Learn More

Financial SCAN

Financial SCAN

Key Financial SCAN Features

  • Financial Health Dashboard: Highlights key financial trends and ratios for a selected nonprofit organization over a period of up to five years.
  • Peer Comparison Dashboard: Compares the organization's financials with up to five peer nonprofits that you select.
  • Graphical Analysis: Provides multi-year graphs and an interpretive guide in a format ready to present to your clients.
  • Printable PDF Report: Provides a complete analysis of the organization for your records. The full report tells you what to look for and why it matters.
  • Advanced Search: Allows you to search by EIN (Employer Identification Number), organization name, city, state, revenue, expenses, and assets.

Financial Data

Sign in or create an account to view Revenue and Expense data for the most recent fiscal year.


Revenue and Expenses

Sign in or create an account to view this information for the most recent fiscal year.

Revenue and Expense data from Forms 990 for 2012, 2011, 2010, 2009, 2008 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart


Balance Sheet

Balance Sheet data from Forms 990 for Year 2012, 2011, 2010, 2009, 2008 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart

A multi-year analysis of key balance sheet, income statement, profitability and liquidity measures is available for this organization. Financial SCAN includes a detailed financial health analysis and peer comparison and benchmarking tool. Learn More

Financial SCAN

Financial SCAN

Key Financial SCAN Features

  • Financial Health Dashboard: Highlights key financial trends and ratios for a selected nonprofit organization over a period of up to five years.
  • Peer Comparison Dashboard: Compares the organization's financials with up to five peer nonprofits that you select.
  • Graphical Analysis: Provides multi-year graphs and an interpretive guide in a format ready to present to your clients.
  • Printable PDF Report: Provides a complete analysis of the organization for your records. The full report tells you what to look for and why it matters.
  • Advanced Search: Allows you to search by EIN (Employer Identification Number), organization name, city, state, revenue, expenses, and assets.


Forms 990 Provided by the Nonprofit

Sign in or create an account to view Form(s) 990 for 2012, 2011, 2010.

Forms 990 Provided by the Nonprofit for 2012, 2011, 2010, 2009 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart


Financial Statements

Financial Statements for 2012, 2011, 2010, 2009 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart


Annual Reports

Sign in or create an account to view this information.






Officers for Fiscal Year (IRS Form 990)

Report Added To Cart Officers for 2012, 2011, 2010, 2009, 2008 are included in the GuideStar Premium Report. Upgrade Now


Highest Paid Employees & Their Compensation (IRS Form 990)

Highest Paid Employee Data for 2008 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart


Program: Public and Patient Education

Budget:
--
Category:
Diseases, Disorders & Medical Disciplines
Population Served:
General Public/Unspecified

Program Description:

SAA provides public and patient education programs to facilitate early diagnosis, promote effective treatment, and encourage self-help care for optimal quality of life.  SAA’s website, www.spondylitis.org(http://www.spondylitis.org/) , is updated regularly with the latest news and information about spondylitis treatment, medications and research. In addition, information about SAA events and seminars, supportive programs and the online Message Board community can also be found here. SAA hosts free educational seminars in different metropolitan areas throughout the United States each year. All seminars include an experienced rheumatologist who provides an overview of spondyloarthritis along with current medications and other available treatments. Secondary speakers complement the program with presentations on other topics of interest including exercise, physical therapy, occupational therapy, the emotional impact of living with spondylitis, etc. These seminars provide an opportunity for attendees to ask questions and meet other people from the area impacted by spondylitis. SAA offers free online seminar events, referred to as webinars. These webinars allow people to learn about specific spondylitis-related topics in the comfort of their home without having to travel. SAA hosts approximately 3 webinars each year; the live event is free and open to everyone in the spondylitis community.  SAA provides a library of audio interviews (podcasts) to SAA members, which include questions posed to spondylitis experts to provide information on a wide range of topics including spondylitis symptoms, medications, treatment, complications, etc. Members are also asked to submit their own questions to be answered during future podcasts.

Program Long-Term Success:

Spondylitis patients have improved quality of life.

Program Short-Term Success:

Spondylitis patients are knowledgeable about spondylitis symptoms, diagnosis, treatment options and support resources. Spondylitis patients are empowered to seek appropriate treatment.

Program Success Monitored by:

Evaluation of website analytics, feedback forms, program participation and satisfaction surveys.

Program Success Examples:

www.spondylitis.org receives over 1 million hits per month.  Since the redesign and relaunch of the website in July 2009, visitors spend 40% more time on the site reviewing video and audio from the experts as well as articles, diagrams and other information related to spondylitis.

Program: Research

Budget:
--
Category:
Population Served:
General Public/Unspecified

Program Description:

For over 25 years, the Spondylitis Association of America has encouraged and facilitated collaborations among prominent researchers as a means of accelerating advances in spondylitis research, diagnosis and treatment. SAA’s participation in the TASC Genetic Study (Triple A Spondylitis Consortium) genetic study helped researchers identify two genes (ERAP1 and IL23R) that, in addition to HLA-B27, increase the risk of developing spondylitis. Since then, scientists announced the discovery of additional genesthat may provide further pieces of the genetic puzzle that makes up this crippling disease. SAA served as the national subject recruiting center for the TASC Study and provided amajor portion of the subjects for the project -- without whom none of the research would have been possible. While SAA now serves a large community of people living with spondylitis, there are many more who are not yet diagnosed. Our goal is to reach the hundreds of thousands of people who do not yet know the cause of the fatigue and pain they experience and thus are deprived of much-needed treatment. SAA developed a manuscript containing a validated 10-question test designed to help identify some of the symptoms that can be associated with AS and it has been accepted for publication to the peer-reviewed, scientific journal Arthritis Care and Research. SAA’s Screening Tool for Ankylosing Spondylitis provides a basis for primary care physicians to refer patients to rheumatologists to obtain a definitive diagnosis and begin treatment.

Program Long-Term Success:

Researchers uncovered several new genes that contribute to susceptibility for AS. People who exhibit symptoms of spondylitis are referred to a rheumatologist to receive definitive diagnosis within a shorter time frame than the average 5 – 7 years.

Program Short-Term Success:

TASC Genetic study enrolled required number of study participants. SAA’s Screening Tool for Ankylosing Spondylitis has been validated by researchers and accepted for publication to the peer-reviewed scientific journal, Arthritis Care and Research.

Program Success Monitored by:

Number of research participants, number of people utilizing screening tool, number of people with high probability of spondylitis symptoms referred to rheumatologists.

Program Success Examples:

Researchers uncovered several new genes that contribute to susceptibility for AS.

Program: Professional Education

Budget:
--
Category:
Population Served:
General Public/Unspecified

Program Description:

SAA developed the first-ever training program for emergency first responders in collaboration with the National Association of Emergency Medical Technicians (NAEMT). The program, "Ankylosing Spondylitis: Managing Patients in an Emergency Setting, A Primer for First Responders" which includes a video training module, is available to the more than 800,000 emergency medical technicians and paramedics across the United States. This program has also been accredited by CECBEMS (Continuing Education Coordinating Board of Emergency Medical Services) and first-responders can receive one pre-hospital credit. In addition, SAA collaborates with medical institutions to offer physicians’ CME courses. Recent collaborations include partnering with Cedars-Sinai Medical Center to offer physicians the CME course, "Medical and Surgical Approach to Spine Disease and Spine Deformity in Ankylosing Spondylitis" as well as the CME for rheumatologists and other clinicians titled "The Diagnosis and Management of Ankylosing Spondylitis" in partnership with Albert Einstein College of Medicine and Montefiore Medical Center.

Program Long-Term Success:

Medical professionals are aware of the additional complications associated with treating spondylitis patients.  Spondylitis patients receive proper treatment.

Program Short-Term Success:

Medical professionals participate in CE and CME courses.

Program Success Monitored by:

Number of participants, number of participants receiving satisfactory score on continuing education test.

Program Success Examples:

SAA has partnered with the National Safety Council, American Red Cross, American Heart Association, American Safety and Health Institute, National Highway Traffic Safety Administration, Department of Transportation, American College of Osteopathic Emergency Physicians, National Volunteer Fire Council and the Commission on Accreditation of Medical Transport Systems to market this training module to their constituents.

Program: Community Based Patient Programs

Budget:
--
Category:
Population Served:
General Public/Unspecified

Program Description:

SAA sponsors over 35 support groups stretching across the US from Anchorage, AK to Miami, FL. These groups focus on education and support while providing a safe and friendly environment for people to discuss the day-to-day practical challenges of living with spondylitis. SAA recruits and provides guidance to support group leaders through an interview screening process, trainings, and quarterly conference calls. These groups also play an integral role in helping to increase awareness in their communities through their participation in local health fairs and fundraisers. SAA’s peer network program provides an opportunity for one-on-one support within the spondylitis community. People newly diagnosed with spondylitis are matched by Programs staff with peers who have years of experience managing their own spondylitis symptoms. This program helps people newly diagnosed with spondylitis feel less isolated, understand the importance of learning about managing the disease, and feel supported and encouraged to empower themselves for optimum health. Peers regularly communicate by email or telephone, with Programs staff checking-in regularly with each peer match to ensure a successful program.  Spondylitis.org has an online community of message boards that provides an opportunity for spondylitis patients and their loved ones to start and contribute to discussions related to managing spondylitis. In addition, SAA participates on several social networking sites including Facebook, MySpace, YouTube and Twitter. SAA staff provide updates and information through these online communities to promote SAA’s mission.

Program Long-Term Success:

Spondylitis patients are knowledgeable about spondylitis symptoms, diagnosis, treatment options and support resources. Spondylitis patients are empowered to seek appropriate treatment. Spondylitis patients feel supported and less isolated while living with spondylitis.

Program Short-Term Success:

Spondylitis patients feel less isolated and understand that there is a community of spondylitis patients. Spondylitis patients are encouraged to manage their spondylitis appropriately. Spondylitis patients are encouraged to learn about the symptoms, diagnosis, treatment options and support resources.

Program Success Monitored by:

Participation, interaction, customer satisfaction survey.

Program Success Examples:

Participants in the Peer Mentor program rate their overall satisfaction with the program a score of 6 out of possible 7 points.


Contractor data is available for this organization!

Independent Contractor information for 2008 is available for this organization with a subscription to GuideStar Premium Pro.

GuideStar Premium Pro also includes:

  • Comprehensive financial data, including functional expense detail, for every digitized fiscal year in GuideStar's database
  • Ability to download up to 55 fields of data for up to 1,000 organizations at a time and up to five years’ worth of Income Statement and Balance Sheet data for individual organizations
  • Comprehensive advanced search capabilities, including criteria for functional expenses, investible assets, investment income and audit & 990T filing requirements
  • Ability to save organizations and searches for quick reference
  • People search with salary range data
  • Access to all available Forms 990

More information

Upgrade Now!

Organization Data Available

Adobe PDF Format A GuideStar Premium Report in PDF format is available for this organization

Price for this Report: $125.00

This Premium Report includes:

  • Financial Data for
  • Financial Charts for
  • Forms 990 for
  • Forms 990T for
  • Audited Financial Statement for
  • Annual Reports for
  • Letter of Determination
  • Form 1023 / 1024
  • Board Members
  • Officer, Director and/or Highest Paid Employee data for


Learn more about GuideStar Premium