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CELIAC DISEASE FOUNDATION

AKA CDF

Woodland Hills, CA

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CELIAC DISEASE FOUNDATION

Also Known As:
CDF
Physical Address:
Woodland Hills, CA 91634 
EIN:
95-4310830
Web URL:
www.celiac.org
Blog URL:
youngandglutenfree.com
Leadership:
Ms. Marilyn G. Geller
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Legitimacy Information

  • This organization is registered with the IRS.
  • This organization is required to file an IRS Form 990 or 990-EZ.

Institutional funders should note that an organization’s inclusion on GuideStar.org does not satisfy IRS Rev. Proc. 2011-33 for identifying supporting organizations.

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Forms 990 from IRS Additional Information IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar Web site is an ongoing process.

Forms 990 for 2012, 2011, 2010, 2009, 2008 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart

A multi-year analysis of key balance sheet, income statement, profitability and liquidity measures is available for this organization. Financial SCAN includes a detailed financial health analysis and peer comparison and benchmarking tool. Learn More

Financial SCAN

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Annual Revenue & Expenses Additional Information Financial information on GuideStar is either digitized from Form 990 images we receive from the IRS or submitted by the nonprofits themselves through the GuideStar Exchange (990 filers cannot override Form 990 financial data). If your organization does not file a Form 990, 990-EZ, or 990-PF and you would like to have your financial data displayed in this section, join the GuideStar Exchange today!

Fiscal Year Starting: Jan 1, 2012
Fiscal Year Ending: Dec 31, 2012
Revenue
Total Revenue $1,048,184
Expenses
Total Expenses $674,777

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Financial data from Forms 990 for Year 2012, 2011, 2010, 2009, 2008 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart

A multi-year analysis of key balance sheet, income statement, profitability and liquidity measures is available for this organization. Financial SCAN includes a detailed financial health analysis and peer comparison and benchmarking tool. Learn More

Financial SCAN

Financial SCAN

Key Financial SCAN Features

  • Financial Health Dashboard: Highlights key financial trends and ratios for a selected nonprofit organization over a period of up to five years.
  • Peer Comparison Dashboard: Compares the organization's financials with up to five peer nonprofits that you select.
  • Graphical Analysis: Provides multi-year graphs and an interpretive guide in a format ready to present to your clients.
  • Printable PDF Report: Provides a complete analysis of the organization for your records. The full report tells you what to look for and why it matters.
  • Advanced Search: Allows you to search by EIN (Employer Identification Number), organization name, city, state, revenue, expenses, and assets.



GuideStar Exchange Member

This organization is a Gold-level GuideStar Exchange participant, demonstrating its commitment to transparency.

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Basic Organization Information

CELIAC DISEASE FOUNDATION

Also Known As:
CDF
Physical Address:
Woodland Hills, CA 91634 
EIN:
95-4310830
Web URL:
www.celiac.org 
Blog URL:
youngandglutenfree.com 
NTEE Category:
G Disease, Disorders, Medical Disciplines 
G01 Alliance/Advocacy Organizations 
G Disease, Disorders, Medical Disciplines 
G70 Digestive Diseases, Disorders 
H Medical Research 
H70 Digestive Diseases/Disorders Research 
Year Founded:
1990 
Ruling Year:
1995 

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Mission Statement

Celiac Disease Foundation is a nonprofit public benefit corporation dedicated to providing services and support regarding Celiac Disease and Dermatitis Herpetiformis, through programs of awareness, education, advocacy and support of research.

A multi-year analysis of key balance sheet, income statement, profitability and liquidity measures is available for this organization. Financial SCAN includes a detailed financial health analysis and peer comparison and benchmarking tool. Learn More

Financial SCAN

Financial SCAN

Key Financial SCAN Features

  • Financial Health Dashboard: Highlights key financial trends and ratios for a selected nonprofit organization over a period of up to five years.
  • Peer Comparison Dashboard: Compares the organization's financials with up to five peer nonprofits that you select.
  • Graphical Analysis: Provides multi-year graphs and an interpretive guide in a format ready to present to your clients.
  • Printable PDF Report: Provides a complete analysis of the organization for your records. The full report tells you what to look for and why it matters.
  • Advanced Search: Allows you to search by EIN (Employer Identification Number), organization name, city, state, revenue, expenses, and assets.

Financial Data

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Revenue and Expenses

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Revenue and Expense data from Forms 990 for 2012, 2011, 2010, 2009, 2008 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart


Balance Sheet

Balance Sheet data from Forms 990 for Year 2012, 2011, 2010, 2009, 2008 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart

A multi-year analysis of key balance sheet, income statement, profitability and liquidity measures is available for this organization. Financial SCAN includes a detailed financial health analysis and peer comparison and benchmarking tool. Learn More

Financial SCAN

Financial SCAN

Key Financial SCAN Features

  • Financial Health Dashboard: Highlights key financial trends and ratios for a selected nonprofit organization over a period of up to five years.
  • Peer Comparison Dashboard: Compares the organization's financials with up to five peer nonprofits that you select.
  • Graphical Analysis: Provides multi-year graphs and an interpretive guide in a format ready to present to your clients.
  • Printable PDF Report: Provides a complete analysis of the organization for your records. The full report tells you what to look for and why it matters.
  • Advanced Search: Allows you to search by EIN (Employer Identification Number), organization name, city, state, revenue, expenses, and assets.


Forms 990 Provided by the Nonprofit

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Financial Statements

Financial Statements for 2012, 2011, 2010, 2009 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart


Annual Reports

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Leadership (GuideStar ExchangeThe GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more. November, 2013)

Ms. Marilyn G. Geller

Profile:

Marilyn joined Celiac Disease Foundation, the nation’s leading voluntary health organization for celiac disease and non-celiac gluten sensitivity education and awareness, as Chief Operating Officer in March 2012 and was elevated shortly thereafter to Chief Executive Officer. As a previous treasurer of the CDF Board of Directors, Marilyn brings more than 20 years of management experience in healthcare and IT operations. A former Los Angeles County and UCLA hospital administrator and RAND Corporation researcher, she most recently served as Vice President of Product Management and Regulatory Compliance Officer for Medversant Technologies. Marilyn’s nonprofit experience includes board positions with the Olive View-UCLA Foundation, UCLA Health Services Alumni Association and Alpha Chi Omega. Becoming CDF’s Chief Executive Officer marks a return to her roots in public health advocacy. Selected as a Los Angeles County Department of Health Services Fellow, Marilyn received her MSPH degree from the UCLA School of Public Health and her undergraduate degree from UCLA. The mother of a son with celiac disease, undiagnosed until the age of 15 despite lifelong symptoms, Marilyn is a determined advocate for celiac disease and gluten sensitivity education and awareness.



Officers for Fiscal Year (IRS Form 990)

Report Added To Cart Officers for 2012, 2011, 2010, 2009, 2008 are included in the GuideStar Premium Report. Upgrade Now


Highest Paid Employees & Their Compensation (IRS Form 990)

Highest Paid Employee data is not available for this organization.


Program: National Education Program

Budget:
--
Category:
None
Population Served:
General Public/Unspecified
Youth/Adolescents only (14 - 19 years)
Adults

Program Description:

Celiac Disease Foundation distributes the most current and accurate information from our Medical Advisory Board, with emphasis on its specific implications to consumers, patients, friends and family of patients, medical providers, and professionals in the gluten-freefood and service industry. This National Education program exists to increase the rate of diagnosis and improve the quality of life for those impacted by celiac disease and non-celiac gluten sensitivity. National Education Program components include the “Guidelines for a Gluten-Free Lifestyle” booklet, “Quick Start Gluten-Free Diet Guide” brochure, Education Conferences nationally and regionally, and sponsorship of Grand Rounds for medical experts to educate other medical professionals.

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Program: National Support Program

Budget:
--
Category:
Diseases, Disorders & Medical Disciplines
Population Served:

Program Description:

Celiac Disease Foundation Support program includes 12 regional Chapters and 150 local Connections support groups across the United States. Through these platforms CDF promotes the distributionof information to those affected by celiac disease and non-celiac glutensensitivity, and provides a community of individuals who share commonexperiences and support each other through the lifestyle changes involved in living the gluten-free lifestyle. CDF Camp Gluten-Free is an additional support program hosted by CDF annually in Southern California, which provides a week-long sleep-away camp for celiac and gluten-sensitive children ages 7-17 in a completely gluten-free environment. Through support programs CDF aims toimprove the quality of life and success rate of adherence to the gluten-free lifestyle, the required treatment for celiac disease and non-celiac gluten sensitivity.

Program Long-Term Success:

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Program Success Monitored by:

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Program: National Advocay and Awareness Programs

Budget:
--
Category:
Diseases, Disorders & Medical Disciplines
Population Served:

Program Description:

Celiac Disease Foundation Awareness and Advocacy program includes the campaigns: “Are You the One”, “Is Your Child the One”, “Is Your Patient the One”, and “The #1 Disease You’ve Never Heard of”Public Service Announcement. National and Regional Gluten-Free EXPOs bring consumers of gluten-free products to their providers, thereby increasing producers’ understanding of the needs of their consumer base. As a founding member of both the American Celiac Disease Alliance and the Gluten-Related Disorders Collaborative, Celiac Disease Foundation advocates for the needs of the gluten-free community in the public sphere.

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Program Success Examples:

Program: National Research Program

Budget:
--
Category:
Diseases, Disorders & Medical Disciplines
Population Served:

Program Description:

Celiac Disease Foundation promotes research in the medical and scientific community to advance understanding of and treatments for celiac disease and non-celiac gluten sensitivity. The Foundation supports and publicizes the research activities of the member of its Medical Advisory Board, including sponsoring speaking events. Grantmaking activities include funding a study to determine the impact of screening for symptomatic patients in a low-income income population, jointly sponsored with UCLA Medical Center and the Los Angeles County Department of Health Services. The CDF database and audience is a resource for researchers to gather data in celiac and non-celiac populations.

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Impact Summary from the Nonprofit Additional Information A Charting Impact Report consists of an organization’s responses to the five questions. Helping validate this self-reported data are three reviews. Once an organization has used the online interface to complete its report, its responses will produce a document with a unique URL that will be shared on this website, on your GuideStar profile, on the reports of charities participating in BBB Wise Giving Alliance evaluations, and – in the future – with other websites and information sources about nonprofits. We encourage organizations to use this URL to share their report on their own website and through their own media channels. Participants will receive guidance about promoting their Charting Impact Report, along with other benefits, once they publish their report.

Only 1 in 6 of the 3 million Americans estimated to have celiac disease are diagnosed. Nearly 2.5 million Americans are unaware of the cause of their suffering. Since its inception in 1990, Celiac Disease Foundation has been at the forefront of celiac disease education, awareness, advocacy, and support services. Today, guided by its distinguished Medical Advisory Board, and supported by Chapters and Connections throughout the United States, CDF is meeting the growing public health challenge of increased diagnosis of celiac disease and non-celiac gluten sensitivity. With a range of vital programs and services for the public, patients, healthcare professionals and the food industries, and the support of generous donors, members, and corporate sponsors, CDF programs increase the rate of diagnosis and improve the quality of life for those affected by celiac disease and non-celiac gluten sensitivity. CDF is a founding member of the American Celiac Disease Alliance (ACDA) and is actively involved with the National Institutes of Health (NIH), NIH Celiac Disease Awareness Program, National Digestive Diseases Information Clearinghouse (NDDIC) and the Food & Drug Administration (FDA), in the promotion of celiac disease and non-celiac gluten sensitivity concerns. CDF is a recognized member of Independent Charities of America (ICA), a nonprofit association of America's best charities, and Health & Medical Research Charities of America (HMR), a nonprofit organization that pre-screens high quality national and international charities. CDF's awareness campaigns include "Are You the ONE?," "Is Your Child the ONE?" and "Is Your Patient the ONE?"
For more in-depth information about this organization's impact, view their Charting Impact Report.

Organization Data Available

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