Human Services

Parkinson Research Foundation Inc

  • Sarasota, FL
  • parkinsonresearchfoundation.org

Mission Statement

The MISSION of the PARKINSON RESEARCH FOUNDATION is to help find a cure for Parkinson's disease through funding research, while providing education and services that improve the quality of life TODAY for Parkinson patients and their caregivers.

Main Programs

  1. Parkinson Place
  2. USF Center of Excellence, Tampa and USF Parkinson Clinic At Parkinson Place
  3. Grant Program USF Tampa
  4. Research Grants
  5. Web Site Programs

ruling year

2003

chief executive for fy 2014

MR Lawrence S Hoffheimer

Self-reported by organization

Keywords

Help for Parkinson's, PRF, Parkinson's Research Foundation, Parkinson Place

Self-reported by organization

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EIN

20-0205035

Also Known As

Parkinson Research Foundation, Inc

Contact

Cause Area (NTEE Code)

Human Service Organizations (P20)

Health (General and Financing) (E80)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Impact statement

Accomplishments: 1. Provide funds for Parkinson Place, an 11,000sq. ft. multidiciplinary center in Sarasota Florida, dedicated exclusively to meeting the physical, mental, emotional and social needs of Parkinson patients and caregivers. Parkinson Place includes on site neurology, psychology, physical therapy, and free evidence based programs led by licensed professionals. 2. Provide ongoing empowerment, educational and support programs for Parkinson patients, caregivers and community. 3. Provides for free 7 different evidence based exercise programs to benefit Parkinson patients and caregivers. 4. Provide ongoing and updated sophisticated websites and free video webcasts to better serve the Parkinson Community locally, nationally and on an international level. 5. Provide ongoing educational conferences with faculty to include noted experts in the field. 6. Provide funding for research into a cure for Parkinson's disease as well as research for helping to improve the lives of those living with Parkinson's today. Top Goals: 1. Increase awareness and fundraising efforts to sustain and grow current and future programs to better serve the Parkinson Community. 2. Educate healthcare providers regarding Parkinson care management, cutting edge procedures and the latest therapies available.

Programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

Self-reported by organization

Program 1

Parkinson Place

Parkinson Place then a 7500 sq. ft. site opened September 2012 offering 16 programs per month. Today has grown to 11,000 sq. ft. offering over 80 free educational and participation programs each month to its members. PARKINSON PLACE is dedicated exclusively to the physical, mental, emotional and social needs of those living with Parkinson's disease. Offering special activities and social events that keep patients and caregivers engaged with life. Programs are instructed by licensed professionals and experts in the field. All participation programs are ability based and can be performed standing or sitting in a chair so everyone can participate. Open 9am - 4:30pm Monday through Friday, membership and classes are FREE.

Category

Human Services, General/Other

Budget

$400,000.00

Population Served

Disabled, General or Disability Unspecified

Other Named Groups

Poor/Economically Disadvantaged, Indigent, General

Program 2

USF Center of Excellence, Tampa and USF Parkinson Clinic At Parkinson Place

Juan Sanchez-Ramos, MD, PhD, the only Fellowship Trained Disorders Specialist in the area, serves a the Medical Director of the PRF Center of Excellence, USF Tampa and Director of the USF Parkinson Clinic at Parkinson Place. With support from the Parkinson Research Foundation Dr. Sanchez-Ramos has expanded Clinical services to include the Parkinson Place location. The increased activity also includes experimental clinical trials and basic research in Parkinson's disease.

Category

Diseases, Disorders & Medical Disciplines, General/Other

Budget

$58,180.00

Population Served

Other Named Groups

Poor/Economically Disadvantaged, Indigent, General

Disabled, General or Disability Unspecified

Program 3

Grant Program USF Tampa

The Parkinson Research Foundation will also establish a post-doctoral fellowship to train future generations of experts in Parkinson's disease. Training will include the diagnosis and treatment of a wide range of movement disorders, with emphasis on Parkinson's disease. The candidate will have the chance to work with Dr. Sanchez-Ramos and to collaborate with neurosurgery in treating patients who require deep brain stimulation. In addition, the candidate will have the opportunity to work at least 2 days a week in basic research in the laboratory of Dr. Sanchez-Ramos, with a focus on stem cell biology and regenerative medicine. The training program will be tailored to the unique goals of the candidate; however, those individuals who want to publish both basic and clinical research papers are most likely to benefit from this program. The Parkinson Research Foundation Fellowship is geared for the individual who plans an academic career.

Category

Education, General/Other

Budget

$11,220.00

Population Served

General Public/Unspecified

Program 4

Research Grants

The Parkinson Research Foundation has provided grants to Jeffrey Kordower, Ph.D., the Jean Schweppe-Armour Professor of Neurological Sciences, Rush University Medical Center. The University of Florida for a study about dance and aerobics as an alternative treatment for Parkinson's patients. The Neuroregeneration Laboratory at the McLean Hospital to enhance the imaging of neural cells vulnerable to Parkinson's disease. The Johnny Byrd Center to study immunotherapy of Parkinson's disease.

Category

Medical Research, General/Other

Budget

$25,000.00

Population Served

Other Named Groups

Disabled, General or Disability Unspecified

Program 5

Web Site Programs

Parkinson patients, caregivers and the medical community are given free and easy access to the latest in Parkinson research, education and events. Parkinson Research Foundation uses two websites the first www.parkinsonresearchfoundation.org is our research and education site followed by www.parkinsonplace.org which is our local site that carries our video classes for Parkinson Patients and their caregivers. The classes cover the range of Physical, Emotional, Mental and social needs of those living with Parkinson's disease. Both site have an international reach and are visited by Parkinson patients as well as doctors, nurses and researchers from around the world.

Category

Human Services, General/Other

Budget

$300,000.00

Population Served

Disabled, General or Disability Unspecified

Other Named Groups

Poor/Economically Disadvantaged, Indigent, General

Charting Impact

Five powerful questions that require reflection about what really matters - results.

Self-reported by organization

  1. What is the organization aiming to accomplish?
    1. Increase awareness and fundraising efforts to sustain and grow current and future programs to better serve the Parkinson Community.

    2. To initiate on site clinical research studies to advance research into Parkinson's disease.
  2. What are the organization's key strategies for making this happen?
    1. Increase community awareness by means of walks, television commercials and print ads in newspapers, onsite educational programs and visits to independent living residences, primary care physicians and other appropriate referral sources.

    2. Work with movement disorders specialist, neurologists, psychologists, physical therapists and case managers to develop potential research programs and studies.
  3. What are the organization's capabilities for doing this?
    • Parkinson Walk planned for April 12, 2014 at Oscar Scherer State Park in Osprey, FL under way and moving forward.
    • Creating Parkinson Awareness in the community.
    • Initiating a strategy for research studies with physicians and researchers.
    • Onsite physicians necessary to fill research trials.
  4. How will they know if they are making progress?
    • April 12, 2014 walk plan initiated, venue set, and team in place.
    • Ongoing application process and receipt of grants.
  5. What have and haven't they accomplished so far?
    Accomplishments:

    1. Full funding for Parkinson Place, a 11,000 square foot PRF Multidisciplinary Care Center in Sarasota, Florida that houses a USF Parkinson Clinic, a Neurology Clinic, a Psychology Clinic, a Physical Therapy Clinic, a Speech Clinic and a Care Management Clinic, all on site, for the purpose of providing a seamless, cost effective care plan for Parkinson patients.

    2. Ongoing empowerment, educational and support programs all lead by noted experts in the field for Parkinson patients, caregivers and community.

    3. Provide over eighty evidence and ability based participation programs to include six different exercise programs led by licensed and certified instructors.

    4. Provide two sophisticated websites and free video podcasts to better serve the Parkinson Community locally, nationally and on an international level.

    5. Provide ongoing educational conferences with faculty to include physicians and other noted experts in the field.

Funding Needs

1. Finances: Parkinson Place offering over 80 free programs each month had a 2012 operating budget of $470,957.76. 2013 proves to be a higher operating budget due to facility expansion and additional programming. 2. Fundraising: Currently the majority of donations are secured from direct mail efforts. Our current goal is to include additional fundraising opportunities such as events, sponsorships, grants endowments and contributions from individuals who have benefitted from our services. 3. Volunteers: Currently operations at Parkinson Place is accomplished by a minimal staff of 4. Help from community volunteers is essential for continued growth.

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Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

PARKINSON RESEARCH FOUNDATION INC
Fiscal year: Jan 01-Dec 31
Yes, financials were audited by an independent accountant.

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Operations

The people, governance practices, and partners that make the organization tick.

Parkinson Research Foundation Inc

Leadership

NEED MORE INFO ON THIS NONPROFIT?

Free: Gain immediate access to the following:
  • Address, phone and website
  • Forms 990 for 2014, 2013 and 2012
  • Board Chair and Board Members
  • Access to the GuideStar Knowledge Base Search
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CHIEF EXECUTIVE FOR FISCAL YEAR

MR Lawrence S Hoffheimer

BIO

Mr. Hoffheimer was a federal prosecutor with the United States Department of Justice and a practicing healthcare attorney in Washington, D.C. for thirty three years. During the course of his career he has represented numerous voluntary health agencies and healthcare delivery professionals.Mr. Hoffheimer formed and led the advocacy effort that resulted in the Congressional Resolution and Presidential Proclamation declaring the 1990s as ""The Decade of the Brain."" He founded the National Foundation for Brain Research which provided enhanced visibility for neurological disorders.Mr. Hoffheimer was asked by the National Parkinson Foundation to serve as its Washington counsel where he became a leader in the lobbying effort to pass the Morris K. Udall Bill, which provided $100,000,000 for research into the cause and cure for Parkinson's disease.He was elected President of the Parkinson Foundation for the National Capital Area during which time the foundation raised more than $2 million for medical research. In 2006, Mr. Hoffheimer moved to Sarasota and formed the Parkinson Research Foundation. He continues his lifelong commitment to the Parkinson community by playing an active role as chairman of the PRF.

Governance

BOARD CHAIR

Mr Lawernce S Hoffheimer

Chairman and CEO Parkinson Research Foundation

Term: Sept 2003 - Sept 2043

BOARD LEADERSHIP PRACTICES

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BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?


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CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?


RESPONSE NOT PROVIDED

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?


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BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?


RESPONSE NOT PROVIDED

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?