Disease, Disorders, Medical Disciplines

Colorectal Cancer Coalition, Inc.

  • Alexandria, VA
  • fightcolorectalcancer.org

Mission Statement

Fight Colorectal Cancer envisions victory over colon and rectal cancers. We raise our voice to empower and activate a community of patients, fighters and champions to push for better policies and to support research, education and awareness for all those touched by this disease.

Main Programs

  1. Patient Education and Public Awareness
  2. Research
  3. Public Policy

service areas

National

Self-reported by organization

ruling year

2005

chief executive

Ms. Anjee Davis

Self-reported by organization

Keywords

cancer, colon cancer, colorectal cancer, rectal cancer, research advocacy, grassroots, cancer awareness, advocacy

Self-reported by organization

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EIN

20-2622550

Physical Address

1414 Prince Street Suite 204

Alexandria, VA 22314

Also Known As

Fight Colorectal Cancer

Contact

Cause Area (NTEE Code)

Alliance/Advocacy Organizations (G01)

Digestive Diseases/Disorders Research (H70)

Alliance/Advocacy Organizations (H01)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Impact statement

Fight Colorectal Cancer (Fight CRC) is committed to being a “game-changer" to the fight against colorectal cancer. While this game-changing innovation has not yet been fully defined, we know it encompasses leveraging our strengths to generate groundbreaking ideas that will not just shift the landscape of colorectal cancer, but turn it upside down. We are a growing organization that recognizes the value in and the responsibility for creating a meaningful three-year strategic plan.

The foundation of Fight CRC is built on an “Advocacy Model". We believe that strong advocacy efforts lead to policy change and subsequently, to social change. Our strategic plan lays the foundation for Fight CRC to continue to dedicate and prioritize resources towards ensuring Fight CRC's long-term sustainability, funding vital research, forming strategic alliances and political partnerships, and increasing public awareness of both our organization as well as colon and rectal cancer.

Programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

Self-reported by organization

Program 1

Patient Education and Public Awareness

Fight Colorectal Cancer’s patient education and public awareness program provides timely, up-to-date, medically-reviewed information for colorectal cancer patients, family members, caregivers, colorectal cancer advocates and healthcare providers.  Fight Colorectal Cancer’s patient information covers the full range of colorectal cancer health needs from preventing colorectal cancer through the many issues of treatment through long-term questions of survivorship.

Category

Budget

Population Served

Adults

Program 2

Research

Fight Colorectal Cancer is a leader in the fight for a cure, supporting innovative research both financially and strategically.  In addition, Fight Colorectal Cancer focuses on empowering advocates to be the most informed and well educated when speaking up for the needs and priorities of colorectal cancer patients.  We are constantly strengthening that voice by training a sustainable army of research advocates to make a difference in colorectal cancer research.  
Fight Colorectal Cancer represents the patient voice in the development and implementation of research and research policy.  Our research advocates are members of patient advisory boards, colorectal cancer Specialized Programs of Research Excellence (SPOREs), Cooperative Groups and Institutional Review Boards.  Fight Colorectal Cancer continues to build its presence with researchers in government agencies, academic centers and industry advisory boards through regular meetings, conferences and communication.  Fight Colorectal Cancer also works with the country’s leading research centers which includes the National Cancer Institute (NCI) and Food and Drug Administration (FDA) always speaking for patients.

Category

Budget

Population Served

Adults

Program 3

Public Policy

Fight Colorectal Cancer is making a difference on Capitol Hill.  Seen as a leading colorectal cancer advocacy organization on Capitol Hill, Fight Colorectal Cancer is able to bring attention, as well as respond to, legislative and regulatory issues on behalf of people touched by colorectal cancer.  In addition, Fight Colorectal Cancer focuses on recruiting and engaging colorectal cancer advocates to further its legislative efforts.  To provide for the most effective and efficient advocates possible, Fight Colorectal Cancer trains and educates these individuals to have the most viable understanding of colorectal cancer and its place among public policy.  Today, Fight Colorectal Cancer is a growing legion of grassroots advocates who bring the urgent need for legislation and policy change to local communities, state government and Washington, DC.  To be even more effective, Fight Colorectal Cancer partners with other organizations fighting colorectal cancer including One Voice Against Cancer (OVAC), National Colorectal Cancer Roundtable (NCCRT), Cancer Leadership Council (CLC) and Coalition of Cancer Cooperative Groups.

Category

Budget

Population Served

Adults

Charting Impact

Five powerful questions that require reflection about what really matters - results.

Self-reported by organization

  1. What is the organization aiming to accomplish?
    Our team plays an important role in making medical information practical for the one plus million CRC survivors and their families and provides trusted resources that guide patients from diagnosis through survivor-ship.

    We unite the colorectal cancer community by empowering anyone impacted by this disease to share their story, advocate for better policies and get involved in the research process. We are one million strong and we won't stop fighting until there's a cure.
  2. What are the organization's key strategies for making this happen?
    FightCRC provides a blueprint for working collaboratively to engage and educate patients, caregivers and those touched by colorectal cancer. We provide clear steps for people to become supporters and activists. Building on our strengths, our strategic plan enables Fight Colorectal Cancer to confront the dynamic environment of today's healthcare, legislative, and research environments.

    Our core values:
    • Genuine relationships with our audiences
    • Positive culture within the organization
    • Financial sustainability
    • Organizational differentiation and strategic thinking
    • Quality, integrity, transparency
    • Culture supporting collaboration and support for social good

    The primary strategic pillars guide the organization and address the needs of the community:
    • Advocacy and Policy
    • Patient Resources
    • Research
    • Philanthropy
    • Awareness
  3. What are the organization's capabilities for doing this?
    We have outlined our overall aims for each strategic pillar and subsequent objectives and activities. We realize to achieve this, we have to prepare for growth. We must be disciplined in our operations to support implementation of this strategic plan, while also striving to meet the highest standards in terms of governance, financial efficiency and good relationships within the colorectal cancer community, with volunteers and with other stakeholders.

    Our overarching operational goals are to ensure that we implement our strategies in a manner that makes best use of our resources and funding.
  4. How will they know if they are making progress?
    Pillar 1: Advocacy and Policy - Educate, empower, and encourage supporters and advocates to be active in policy

    Pillar 2: Patient Resources - Develop practical, more in-depth information and resources for patients and family members impacted by colorectal cancer

    Pillar 3: Research - Raise organizational brand, credibility, and engagement in the research community, continued late stage research partnership with AACR

    Pillar 4: Philanthropy - Develop and support a culture of giving back to the organization to help us make an impact

    Pillar 5: Awareness - Launch a national awareness campaign to educate and inform the public about CRC (One Million Strong) and its impact as well as heighten the visibility of Fight CRC's mission and build brand recognition among the general public via the One Million Strong campaigns
  5. What have and haven't they accomplished so far?
    CONTINUE TO BUILD SUPPORT
    Fight CRC works actively to build support for our cause from individuals, for-profit/non-profit, community and local organizations. We continue to seek partnerships to expand a joint message and promote a national effort to raise screening awareness of 80% of the US by the year 2018

    MOBILIZE OUR RESOURCES
    Fight CRC has received funding to execute activities online, locally and nationally. We are focused on formalizing our committee work specifically for our advocacy and philanthropic efforts. In the future we will seek additional resources to undertake additional support of expanding research committees and initiatives to lead collaborative efforts.

    COLLECT DATA TO CAPTURE IMPACT
    We will be collecting analytics and data of each program so we can measure the impact of our activities and programs. Additional polling and attribute data is being collected on all aspects of our programs. Accurate records will be kept of all activities to help staff and leadership monitor and evaluate our outcomes and financial expenses. In 2015, we will continue to use benchmarks for reporting to funders, policy makers, coalition members and advocates.

    MONITOR AND EVALUATE
    The data collected can be analyzed after each activity to determine which advocacy activities were successful (and which were not.) It is imperative we develop a consistent tracking system that can also be used as a monitoring and evaluation tool.

service areas

National

Self-reported by organization

Social Media

@fightcrc

@fightcrc

@104585775791907758720/posts

@groups/Fight-Colorectal-Cancer-Get-Behind-4135197/about

@fightcrc

@fightcrc

@fightcrc

@fightcrc/videos

@fightcrc

Videos

photos




External Reviews

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Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

COLORECTAL CANCER COALITION INC
Fiscal year: Jul 01-Jun 30
Yes, financials were audited by an independent accountant.

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Operations

The people, governance practices, and partners that make the organization tick.

Colorectal Cancer Coalition, Inc.

Leadership

NEED MORE INFO ON THIS NONPROFIT?

Free: Gain immediate access to the following:
  • Address, phone, website and contact information
  • Forms 990 for 2014, 2013 and 2012
  • Board Chair and Board Members
  • Access to the GuideStar Knowledge Base Search
Need the ability to download nonprofit data and more advanced search options? Consider a Premium or Pro Search subscription.

CHIEF EXECUTIVE FOR FISCAL YEAR

Ms. Anjee Davis

BIO

Anjelica (“Anjee") Davis joined Fight Colorectal Cancer in December 2011. She came from the University of South Carolina's Center for Colon Cancer Research, managing the development and implementation of community-based colorectal cancer programs supporting screening, education and awareness activities. Prior to that, in 2002, she was hired by a private oncology clinic to oversee clinical trials and recruitment. Ms. Davis brings a unique understanding of cancer research as well as clinical systems. She has a bachelor's degree from Southwest Missouri State and a Master of Public Policy Administration from the University of Missouri-St. Louis. Ms. Davis is chair of the Blue Star committee for the National Colorectal Cancer Roundtable (NCCRT), past member of the steering committee (2009-2012). She is an active member of the Cancer Leadership Council, Research!America, One Voice Against Cancer (OVAC) and the South Carolina Gastroenterology Association. Her awareness activities have been recognized by the Printing Industry of the Carolinas, Inc. for graphic communication excellence. In 2011 and 2013, her work was recognized by the NCCRT's Blue Star Challenge. In 2011, she was awarded the Betty Anne Moore Community Leadership award for her impact in leading statewide screening and awareness efforts in South Carolina. Advocating for better policies, access to prevention and treatment options for patients is an effort she is passionate about. She resides in Charleston, SC with her husband and son.

STATEMENT FROM THE CEO

"Fight Colorectal Cancer (formerly C3: Colorectal Cancer Coalition) was founded in March 2005 with the dream of making the world a better  place for people living with colorectal cancer. 
We enjoyed some great success in 2011, and we have our donors to thank.
 
In 2014, Fight CRC provided over 300,000 dollars to talented colorectal cancer researchers examining new signaling pathways in metastatic colorectal cancer tumors. In this day and age of dwindling research money, innovation is hurting. In the research community, money is tight so the scientists with the crazy ideas (the ones that could lead to a cure someday), are not getting the funding they need. Fight CRC has made a commitment to support that kind of research until that innovative idea becomes the new standard of care.
 
We continue to see our work on Capitol Hill pay off in a big way for colorectal cancer researchers. Our work directly resulted in millions of dollars for colorectal cancer research through the Department of Defense's Peer Reviewed Cancer Research Program. This is money for colorectal cancer research that was not there the year prior. We will continue to work to protect this new funding stream for years to come."

Governance

BOARD CHAIR

Nancy Roach

none

BOARD LEADERSHIP PRACTICES

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices. Self-reported by organization

Yes

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Yes

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Yes

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Yes

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Yes

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?


ORGANIZATIONAL DEMOGRAPHICS

In order to support nonprofits and gain valuable insight for the sector, GuideStar worked with D5—a five-year initiative to advance diversity, equity, and inclusion in philanthropy—in creating a questionnaire. This section is a voluntary questionnaire that empowers organizations to share information on the demographics of who works in and leads organizations. To protect the identity of individuals, we do not display sexual orientation or disability information for organizations with fewer than 15 staff. Any values displayed in this section are percentages of the total number of individuals in each category (e.g. 20% of all Board members for X organization are female).

Gender
This organization reports that it does not collect this information for Volunteers.
Race & Ethnicity
This organization reports that it does not collect this information for Board Members, Senior Staff, Part-Time Staff and Volunteers.
Sexual Orientation

This organization reports that it does not collect this information.

Disability
This organization reports that it does not collect this information.