Diseases, Disorders, Medical Disciplines

OVARIAN CANCER NATIONAL ALLIANCE

  • WASHINGTON, DC
  • www.ovariancancer.org

Mission Statement

The Ovarian Cancer National Alliance advances the interests of women with ovarian cancer.

Main Programs

  1. Survivors Teaching Students: Saving Women's Lives
  2. Advocate Leaders Program
  3. Partner Member Program
  4. Ovarian Cancer National Conference
  5. Regional Conferences
  6. Advocate Conversation
  7. Honoring Chiefs in Healthcare
  8. Ask the Experts Educational Series

service areas

National

Self-reported by organization

ruling year

1998

chief executive

Calaneet Balas

Self-reported by organization

Keywords

cancer, ovarian cancer, advocacy, women, health, survivor, ovarian, caregiver, support, education

Self-reported by organization

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EIN

31-1581756

Physical Address

901 E Street NW 405

WASHINGTON, 20004

Contact

Cause Area (NTEE Code)

Cancer (G30)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

Self-reported by organization

Program 1

Survivors Teaching Students: Saving Women's Lives

Not available

Category

Animal Control

Budget

Population Served

None

None

None

Program 2

Advocate Leaders Program

Not available

Category

None

Budget

Population Served

None

None

None

Program 3

Partner Member Program

Not available

Category

Animal Control

Budget

Population Served

None

None

None

Program 4

Ovarian Cancer National Conference

Not available

Category

None

Budget

Population Served

None

None

None

Program 5

Regional Conferences

Not available

Category

Animal Control

Budget

Population Served

None

None

None

Program 6

Advocate Conversation

Not available

Category

Animal Control

Budget

Population Served

None

None

None

Program 7

Honoring Chiefs in Healthcare

Not available

Category

Animal Control

Budget

Population Served

None

None

None

Program 8

Ask the Experts Educational Series

Not available

Category

Animal Control

Budget

Population Served

None

None

None

Charting Impact

Five powerful questions that require reflection about what really matters - results.

Self-reported by organization

  1. What is the organization aiming to accomplish?
    The mission of the Ovarian Cancer National Alliance is to save women’s lives. Our goal is to reduce the mortality rate of this very deadly form of cancer that is most often diagnosed when the disease is advanced and harder to treat. We recognize that changing the mortality rate of one of the deadliest cancers is a tough hill to climb. Only with more knowledge amongst leaders, scientists, lawmakers and all women will we be able to accomplish this goal. The Alliance’s goals map out a strategy to increase knowledge among those that are at risk, those that have been diagnosed with the disease and those who have the power to do something about it.
  2. What are the organization's key strategies for making this happen?
    The Ovarian Cancer National Alliance is a powerful voice for everyone touched by ovarian cancer.

    In order to change the course of this disease, we ensure that ovarian cancer is a priority for lawmakers and agencies in Washington, DC, and throughout the country. The Alliance serves as the foremost advocate for this disease, securing over $166 million annually for research and education programs through the federal government. We work year-round with federal regulators to ensure women have access to care and advocate against the many barriers that currently prevent women from getting the care they need. We also bring together experts once a year for a two-day summit, identifying novel solutions to issues like access to standard treatments, opportunities to enroll in clinical trials and ways women can assess their potential risk.

    We connect survivors, women at risk, caregivers and health providers with the information and resources they need. The Alliance creates opportunities year round to connect women with one another and with resources offered nationally—and internationally—by our 65 Partner Member organizations. We host the Ovarian Cancer National Conference, bringing together 400 people each year in order to educate and connect women and families. The Alliance pushes to educate all women about the risks and symptoms of ovarian cancer to propel earlier diagnosis and increase awareness about this potentially devastating disease.

    We help our community raise their voices on behalf of every life that has been affected by this disease. Every year they Alliance hosts an advocacy day on Capitol Hill, where we train individuals to be advocates in Washington, DC, and back in their own hometown. This gives our entire community a voice and empowers them to reach out to local leaders and media about the impact of ovarian cancer.
  3. What are the organization's capabilities for doing this?
    The Alliance is a trusted source for women, leaders, scientists and lawmakers seeking reliable information about ovarian cancer. This reputation is one of our greatest assets and one that our staff and volunteers take pride in and protect every day. Founded in 1997, the Alliance operates off a modest budget of just under $2 million with a staff of just eight dedicated individuals and 14 board members. We have a network of nearly 1,000 volunteers across the country that extend our reach through programs and advocacy in their communities. The Alliance prides itself on being nimble, creative and adaptive to new sources of technology and communication. We plan to continue the exponential growth we have seen in our media platforms, increasing our visibility and reach by nearly 200 percent in just the past two years.

    The Alliance also convenes key parties who care about and can impact ovarian cancer. We bring together federal agencies, payers and providers, and also create new partnerships with our fellow cancer organizations to leverage larger opportunities together.
  4. How will they know if they are making progress?
    The Alliance tracks our progress in all of these areas. We monitor the number of Partner Member organizations that work with the Alliance annually to ensure that our local reach is growing. We also track progress with our signature educational program, Survivors Teaching Students: Saving Women’s Lives®, which sends survivors into medical schools across the country to teach third year medical students about the disease. We evaluate how many presentations are given each year, in how many schools, and continue to expand this program as we reach our annual targets. Currently we are in more than 100 schools and reach more than 8,000 new students each year.
    We continue to surpass our benchmarks in social media, web and media impressions, with rapid growth in all three areas over the past two years.
    On the advocacy front, we monitor and advocate for all research dollars provided to the National Cancer Institute and the Department of Defense, as well as education dollars provided to the CDC. Our work has helped ensure that this funding stayed steady in recent years, even as the federal climate has shifted significantly.
  5. What have and haven't they accomplished so far?
    Through our work educating legislators about ovarian cancer, we have been able to ensure sustained federal funding for research—the largest source of research funding outside of private industry and a critical pipeline for innovative new treatments. Our efforts to educate future health providers have increased their knowledge of ovarian cancer; anecdotally we know that doctors and nurses have diagnosed women with ovarian cancer after spotting symptoms they learned about through our Survivors Teaching Students® program.

    Challenges we continue to face include increasing the number of women who enroll in clinical trials. We are launching a new educational initiative in fall 2014 that we hope will demystify this process and encourage more women to enroll. We also face challenges ensuring that women receive standard of care treatment after being diagnosed with ovarian cancer. This is one of the issues our expert panels has discussed, but finding a solution within our complex health system is not easy. We continue to work with other stakeholders and to take interim steps towards this goal, such as surveying our survivor community and publishing data on the barriers that prevented them from receiving optimal care.

service areas

National

Self-reported by organization

Social Media

@pages/Ovarian-Cancer-National-Alliance/138949746444

@OCNA

@111981973948504233081

@ovarian-cancer-national-alliance

@ovariancancerorg

@OCNA

@ocna

@ovariancancernationalalliance

Videos

External Reviews

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Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

OVARIAN CANCER NATIONAL ALLIANCE
Fiscal year: Jan 01-Dec 31
Yes, financials were audited by an independent accountant.

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  • Forms 990 for 2014, 2013 and 2012
  • Board Chair and Board Members
  • Access to the GuideStar Knowledge Base Search
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Operations

The people, governance practices, and partners that make the organization tick.

OVARIAN CANCER NATIONAL ALLIANCE

Leadership

NEED MORE INFO ON THIS NONPROFIT?

Free: Gain immediate access to the following:
  • Address, phone, website and contact information
  • Forms 990 for 2014, 2013 and 2012
  • Board Chair and Board Members
  • Access to the GuideStar Knowledge Base Search
Need the ability to download nonprofit data and more advanced search options? Consider a Premium or Pro Search subscription.

CHIEF EXECUTIVE FOR FISCAL YEAR

Calaneet Balas

Governance

BOARD CHAIR

Diane Rader O'Connor

BOARD LEADERSHIP PRACTICES

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices. Self-reported by organization

Yes

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Yes

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Yes

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Yes

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Yes

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?