GLOBAL RESOURCE FOR ADVANCING CANCER EDUCATION
Education is Medicine
Learn how to support this organization
Programs and results
What we aim to solve
There are already many websites and other resources that provide some information for patients from health care professionals, but we find that they often provide very bland, nonspecific information that says little beyond extreme generalities (i.e., “Chemotherapy is the main treatment for advanced lung cancer. Your doctor may talk with you about this approach.”). And while there are often discussions of specific treatments on patient and caregiver-moderated websites and other resources, the quality of the information is variable and the potential for misinformation to be perpetuated by people not qualified to discuss medical details is a significant problem. Proving the principle that the barriers between information for physicians and education for patients can be overcome, GRACE provides a greater depth of formats for providing educational materials to members.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Patient Education
GRACE has a long history of producing educational programs for cancer patients and their caregivers.
LUNG CANCER
- Lung Cancer Video Library - English and Spanish
- News Direct from ASCO
- Targeted Therapies in Lung Cancer Patient Forum
- Immunotherapy in Lung Cancer Patient Forum
- Lung Cancer Webinar Series Presented in Mandarin (January 2018)
- Not Your Father's Squamous Lung Cancer
BLOOD CANCERS
Blood Cancers Video Library - English and Spanish
News Direct from ASH
Not Your Father's CLL Patient Forum
HEAD & NECK CANCERS
News Direct from ASCO
Head & Neck Cancer Basics
HPV-Related Head & Neck Cancer Webinar Series
More programs are added yearly.
Where we work
External reviews
Photos
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of requests for advocate products or information, including downloads or page views of online material
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses, Caregivers
Related Program
Patient Education
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
GRACE's website receives over a million visitors each year seeking and downloading educational content to help them navigate their/their loved ones cancer journey.
Average online donation
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses, Caregivers
Related Program
Patient Education
Type of Metric
Other - describing something else
Direction of Success
Increasing
Context Notes
Not including grants funded to GRACE, our online donations are made possible by the generosity of support from the community.
Total dollars received in contributions
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses, Caregivers
Related Program
Patient Education
Type of Metric
Other - describing something else
Direction of Success
Holding steady
Number of online attendees to planned events
This metric is no longer tracked.Totals By Year
Population(s) Served
Caregivers, People with diseases and illnesses
Related Program
Patient Education
Type of Metric
Output - describing our activities and reach
Direction of Success
Holding steady
Context Notes
2 live patient events are held each year with an in-person audience and a livestream audience. Our online live audience typically exceeds 1,000 attendees. Recorded content is later published online.
Number of list subscribers
This metric is no longer tracked.Totals By Year
Population(s) Served
Chronically ill people, Terminally ill people, Caregivers
Related Program
Patient Education
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of instances of funding established to formally monitor or evaluate policies
This metric is no longer tracked.Totals By Year
Population(s) Served
Chronically ill people, Terminally ill people, Caregivers
Related Program
Patient Education
Type of Metric
Input - describing resources we use
Direction of Success
Holding steady
Context Notes
Our organization received funding for programs.
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Reports and documents
Download strategic planLearn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
GRACE is a nonprofit organization that was developed as a means of improving the overall medical care for cancer patients by democratizing cutting edge information on optimal cancer management and providing it directly to patients. We recognized that while there is an overwhelming amount of new information available to physicians, actually more than they could integrate, patients and their families often have a deep interest in their own care and often have the time and motivation to ensure that they are receiving the best treatment possible.
Even the best oncologist can’t be an expert in every type of cancer. GRACE doesn't intend to replace your doctors - our faculty are experts in their own specialties, and concentrate on a narrow focus of a particular cancer. GRACE brings faculty and our community together to learn from each other, and to make sure important information is shared with people who are in need.
GRACE's goal is for you and everyone who needs it to have free access to the latest information from experts on a particular cancer or aspect of oncology care. In addition to information about different cancer types, GRACE provides expertise on topics that cut across cancer types, like radiation oncology, oncology social work, and immunotherapy.
What are the organization's key strategies for making this happen?
GRACE produces patient education content in a variety of formats to reach the broadest audience possible: video, article, blog, interactive forum and podcast. We work with the most highly regarded oncologists, experts in their fields, to bring the most current and emerging treatment information available to patients. We update our content as new information becomes available, publishing educational materials throughout the year and often re-publishing still relevant content to ensure that patients just visiting our platforms receive the educational content.
What are the organization's capabilities for doing this?
GRACE has a very strong infrastructure, including systems and technology. Our website is robust and our large faculty of world-class doctors are motivated and willing to support our programs and provide ongoing updates to the information available on cancerGRACE.org.
Our innovative and intuitive use of social media, and our ability to reach patients on their terms ensures we are fulfilling our mission. We keep up with the new as well as established avenues to reach our community.
We also keep a strong infrastructure through our Board and Staff - we work together to continue to make sure all the educational material we produce is on point and high quality, and easy to obtain and understand.
What have they accomplished so far and what's next?
GRACE celebrated its 10 year anniversary in 2018, and celebrated a reportable continued increase in viewership and website visitors since our organization was formed. We know that we have reached over 10 million patients who have visited our website over the past decade, and that those numbers will continue to increase as we continue to add to our content, expand our cancer types covered in our content, and continue to use technology to reach more patients using more platform types, meeting patients where they are.
GRACE began as a blog-style website, engaging lung cancer patients and connecting them to experts. We have grown to include a wide variety of cancer types and platforms and educating patients through in-person events, livestreams, and online video/audio/written formats. We have come a very long way in a relatively short time period with a staff of 2 full time and 3 part time employees.
We are very proud of our employee retention as well, with 3 of our 5 employees having been with the organization almost since its inception and the newest 2 employees having taken GRACE to the next level in terms of organizational leadership and program management.
GRACE is positioned to continue to grow its content, expand beyond the borders of the United States, and educate as many cancer patients as possible with a strong infrastructure supporting great organizational strides to come.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
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Which of the following feedback practices does your organization routinely carry out?
We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We act on the feedback we receive
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What challenges does the organization face when collecting feedback?
It is difficult to get the people we serve to respond to requests for feedback, It is difficult to find the ongoing funding to support feedback collection
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
GLOBAL RESOURCE FOR ADVANCING CANCER EDUCATION
Board of directorsas of 01/22/2024
Dr. Nancy Sladicka
Chief Strategy Officer, Nucleus Global
Term: 2023 - 2025
Howard "Jack" West
Summit Therapeutics
Nancy Sladicka
Nucleus Global
Jared Weiss
University of North Carolina School of Medicine
James Bao
Adjuvantz
Laya Dogmetchi
Ulich & Terry, LLP
David Gray
Self-employed
Matthew Tan
University of British Columbia
Luis Raez
Memorial Cancer Institute, and Clinical Associate Professor of Medicine at Florida International University
Tim Godfrey
Founder, Director of Finance and Operations, FUSE IQ
Liz DeAngelis
MediaMonks
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
The organization's co-leader identifies as:
Race & ethnicity
Gender identity
Transgender Identity
Sexual orientation
Disability
No data
Equity strategies
Last updated: 02/26/2021GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We review compensation data across the organization (and by staff levels) to identify disparities by race.
- We ask team members to identify racial disparities in their programs and / or portfolios.
- We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
- We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
- We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
- We disaggregate data by demographics, including race, in every policy and program measured.
- We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
- We use a vetting process to identify vendors and partners that share our commitment to race equity.
- We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
- We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
- We have community representation at the board level, either on the board itself or through a community advisory board.
- We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
- We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
- We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.