Disease, Disorders, Medical Disciplines

Hemophilia Council of California

  • Sacramento, CA
  • http://www.hemophiliaca.org/

Mission Statement

Hemophilia Council Of California was founded in the 1970's and in 1989 we incorporated as a 501(c)3 nonprofit organization, to coordinate their shared advocacy agenda to create a more effective and unified voice for individuals living with bleeding disorders. We continue to pursue our mission to promote access to care and advance the quality of life of people with bleeding disorders through advocacy, education and outreach in the collaboration with member organizations.

Main Programs

  1. Confidential Bilingual Hotline
  2. Future Leaders

service areas

California

Self-reported by organization

ruling year

1994

chief executive for fy 2010

Heidi Scanlan

Self-reported by organization

Keywords

Advocacy, education, outreach for Bleeding Disorders

Self-reported by organization

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EIN

68-0182998

Physical Address

1507 21st Street Suite 103

Sacramento, CA 95811

Contact

Cause Area (NTEE Code)

Alliance/Advocacy Organizations (G01)

Alliance/Advocacy Organizations (S01)

Alliance/Advocacy Organizations (G01)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Impact statement

The four California hemophilia organizations formed the Hemophilia Council of California (HCC) in 1989 as a 501(c)3 nonprofit organization to coordinate their shared advocacy agenda to create a more effective and unified voice for individuals living with bleeding disorders in California.

Programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

Self-reported by organization

Program 1

Confidential Bilingual Hotline

The Hemophilia Council of California seeks to establish an anonymous bilingual consumer Hotline which will provide a professional, impartial and confidential source of basic information and/or referral source to the appropriate chapter or resource capable of providing additional, more detailed assistance; or, to an appropriate avenue for registering a complaint, when appropriate, to community members who may be intimidated by the use of alternative forms of requesting the same information.

Category

None

Budget

Population Served

Hispanics

None

None

Program 2

Future Leaders

Join us for the Future Leader Program! Each year young men and women ages 14-22 come together from all over California to Sacramento for a unique learning experience. Learn about how California Government works and the programs that support people with bleeding disorders through out the state.
Learn how to tell your story to legislators about living with a bleeding disorder.
Learn how to be an advocate for yourself and others.
Learn about career choices and challenges for people with bleeding disorders.
Meet other young people from across the state who want their voices heard.
The program starts at 6:00 PM Monday, May 13 and ends at 4:00 PM Wednesday, May 15, 2013 in Sacramento, California. The Hemophilia Council of California pays for all expenses for travel to and from Sacramento, meals, and accommodations.

Category

Education

Budget

$24,000.00

Population Served

Youth/Adolescents only (14 - 19 years)

Charting Impact

Five powerful questions that require reflection about what really matters - results.

Self-reported by organization

  1. What is the organization aiming to accomplish?
     What are the new and creative funding options to pursue in the state?

     How do we increase the brand recognition of HCC?
  2. What are the organization's key strategies for making this happen?
     After 20 years how can we reinforce and fortify this role/legacy?
     How can we effectively recruit and develop greater participation and leadership growth within HCC?
     How to support the BD community more effectively
     How do we make sure those in the state know we are here to help them?
  3. What are the organization's capabilities for doing this?
    Strong Advocacy work and passed our Standards Bill
  4. How will they know if they are making progress?
    Influence with the changes ahead in the state due to ACA.
  5. What have and haven't they accomplished so far?
    Continuing to develop long term plans and hiring a consultant for more input.

service areas

California

Self-reported by organization

External Reviews

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Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

HEMOPHILIA COUNCIL OF CALIFORNIA
Fiscal year: Jul 01-Jun 30

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  • Forms 990 for 2014, 2013 and 2012
  • Board Chair and Board Members
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Operations

The people, governance practices, and partners that make the organization tick.

Hemophilia Council of California

Leadership

NEED MORE INFO ON THIS NONPROFIT?

Free: Gain immediate access to the following:
  • Address, phone, website and contact information
  • Forms 990 for 2014, 2013 and 2012
  • Board Chair and Board Members
  • Access to the GuideStar Knowledge Base Search
Need the ability to download nonprofit data and more advanced search options? Consider a Premium or Pro Search subscription.

CHIEF EXECUTIVE FOR FISCAL YEAR

Heidi Scanlan

Governance

BOARD CHAIR

Randall Curtis

none

Term: Jan 2014 - Dec 2015

BOARD LEADERSHIP PRACTICES

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices. Self-reported by organization


RESPONSE NOT PROVIDED

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?


RESPONSE NOT PROVIDED

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?


RESPONSE NOT PROVIDED

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?


RESPONSE NOT PROVIDED

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?


RESPONSE NOT PROVIDED

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?