Federation for Children with Special Needs, Inc.

Boston, MA   |  http://www.fcsn.org

Mission

The Federation for Children with Special Needs provides information, support, and assistance to parents of children with disabilities, their professional partners, and their communities. We are committed to listening to and learning from families, and encouraging full participation in community life by all people, especially those with disabilities.

Ruling year info

1975

Principal Officer

Dr. Richard Robison

Main address

The Schrafft Center 529 Main Street, Suite 1M3

Boston, MA 02129 USA

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EIN

04-2557572

NTEE code info

Disabled Persons' Rights (R23)

Elementary, Secondary Ed (B20)

Patient Services - Entertainment, Recreation (E86)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Special Education Parent Center

Projects include: Parent Training and Information Center, which under the Individuals with Disability Education Act, provides information, support, technical assistance and workshops to MA families of children with disabilities and the professionals who work with them; Transition/Planning a Life, serves students with disabilities in Boston, Worcester, and Springfield, and brings together state and community partners as well as local high schools to improve the post-school outcomes of students with significant disabilities;Community Outreach and Empowerment Project, which seeks to increase assistance and support to families of children with special needs whose ability to access education and healthcare information and services is complicated by race, class, language, and/or poverty; Parent Consultant Training Institute, an eight-week training offering an opportunity for MA parents and professionals to learn more about state and federal Special Education laws and process.

Population(s) Served

Projects include: Family TIES of MA, a parent to parent support, information and referral project, funded by the MA Department of Public Health which provides information, referrals, and parent to parent matching to families who have children with special health care needs or disabilities, through six regional Department of Public Health offices; MassCARE, which provides support to women, children, adolescents and young adults infected/affected by HIV/AIDS; Project Launch/ My Child, which provides clinical, diagnostic, prevention and coordination services for children and families living in Boston, with a focus is on early childhood mental health issues; Pathways for Parents, which in collaboration with the Massachusetts Department of Children and Families (DCF) provides ""peer to peer"" support and advocacy to parents who have a serious mental health challenges and complex DCF cases with child custody concerns.

Population(s) Served

Projects include: Mass Family Voices, the MA chapter of a national network speaking on behalf of children with special health care needs, which builds capacity for family partnerships and supports partnership activities between managed care organizations and parents around improved access to services and supports; Family-to-Family Health Information Center, offers health care information and support to families of children with special needs in navigating various systems to enable their children to live in the community and actively participant in decision making; Mass Family Voices collaborates with Massachusetts' Children's Health Insurance Program Reauthorization Act (CHIPRA) Quality Demonstration Grant partners in developing and enhancing authentic family-professional partnerships through participation in the Children's Health Quality Coalition and the National Initiative for Children's Healthcare Quality (NICHQ) medical home initiative.

Population(s) Served

Projects include: Family and Community Engagement Team, offers education improvement services to districts and schools in Massachusetts, partnering with districts and schools to improve student achievement and school performance through strengthening family and community engagement policies, designing strategies for enhanced family and community engagement and implementing activities directly with families, teachers, administrators, community members and other stakeholders; Recruitment Training and Support Center for Special Education Surrogate Parents ensures that students whose parents are unavailable to participate in educational decision making are provided with a ""surrogate parent"" for educational decision making. The Family and Community Engagement Center also provides training and technical assistance on family engagement to school districts as a Department of Elementary and Secondary Education approved Title 1 Support Partner and District/School Assistance Provider.

Population(s) Served

Projects include: the Massachusetts Association of Special Education Parent Advisory Councils, a statewide project which provides information, training, and networking opportunities to special education parent advisory councils; Advancing Parent-Professional Leadership in Education provides a collaborative training model to ensure the participation of parents in systemic efforts to improve educational outcomes for children with disabilities; MASS FOCUS Academy provides professional development, training, technical assistance and knowledge dissemination of evidenced-based practices that improve post-school outcomes for youth with disabilities; The Partnership Project, which is a collaboration with MA Department of Elementary and Secondary Education and other community partners to expand professional development of educators and develop model sites to support the development of tiered systems of supports that will improve outcomes for all students.

Population(s) Served

Where we work

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Financials

Federation for Children with Special Needs, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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Federation for Children with Special Needs, Inc.

Board of directors
as of 10/27/2016
SOURCE: Self-reported by organization
Board chair

Ms. Anne Howard

Fitchburg State

Term: 2016 -

William Henderson

Director Emeritus

Daniel Heffernan

Kotin, Crabtree & Strong

James Whalen

TA Associates Realty

Anne Howard

Fitchburg State College

Joseph Petner

Retired

John Reichenbach

Lessac Technologies

Patricia Schram

Pediatrician

Michael Weiner

Commonwealth Financial Group

Nicole Baumer

Boston Children's Hospital

Philomena Asante

Boston Public Health Commission

Susan Arndt

Community Volunteer

Melanie McLaughlin

Community Volunteer

Teresita Ramos

Massachusetts Law Reform Institute

Leo Rotman

River Financial Group, LLC