GOLD2023

Advita Fund USA

We help cancer patients get access to the most effective treatments available.

Houston, TX   |  http://advitausa.org

Mission

We help cancer patients get access to the most effective treatments available.  We want to make sure that our patients' lives depend not on their income or birthplace, but on the progress of modern medicine.

Ruling year info

2009

Principal Officer

Marina Ouano

Main address

P.O.Box 573106

Houston, TX 77257 USA

Show more contact info

EIN

26-1300404

NTEE code info

Cancer (G30)

Fund Raising and/or Fund Distribution (Q12)

Raising & Fund Distribution (Pun)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

We raise funds to support cancer patients from the former Soviet Union who need access to latest treatments. We do this by: 1). contributing to the cost of bone marrow donor searches for patients with leukemia and other blood disorders; 2). paying for travel and lodging costs for patients who have to travel abroad to access treatment unavailable in their home countries; 3). Issuing $1000 grants to families of children with cancer. We also help patients get second opinions and consultations from experts around the world.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Bone Marrow Transplants

We raise funds to pay for donor searches for bone marrow transplants performed in St. Petersburg, Russia.  Russia does not have a sufficient bone marrow donor registry, and leukemia patients who need the transplants have to pay over $25,000 for the search for the donor abroad.

Population(s) Served
People with diseases and illnesses
Adults

We support patients who have to travel outside of Russia or other former Soviet countries due to having high-risk and advanced cancers, and cannot be offered treatment in their native countries.

Population(s) Served
People with diseases and illnesses
Adults

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of individuals to whom medicines were distributed

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

We assist cancer patients from Russia and other former Soviet Union countries who may lack opportunity to access latest treatments due to language barrier and unavailability of most effective medications in their home countries. Our goal is to help cancer patients in countries with less developed infrastructure have equal chances at accessing best possible care. By helping cancer patients understand their treatment options and possible ways to access them, we aim to improve their chances to beat cancer. Most of cancer patients who contact us have no options available to them in their home countries. We work hard to find treatment options that may be appropriate for our patients. We do that by arranging for consultations, reviews, enrollment in clinical trials and expanded access studies.

Our strategy is to attract volunteers and medical advisers to create a strong team of experts. We are also building relationships with medical groups and oncologists in the US and Russia to facilitate sharing of medical knowledge.

Our major partner is Advita Fund in St. Petersburg, Russia that refers us patients, connects us to local doctors, and provides other field support. We also benefit from being located in Houston and having connections to its outstanding medical community.

In our ten years of existence, we made a tremendous progress. We've developed a number of partnerships/relationships, grew our volunteer base, and, most importantly, helped hundreds of patients. Some of them were able to make correct treatment decisions and avoid risky or ineffective therapies. Others enrolled into clinical trials and achieved complete remissions as a result. Most are still in treatment stage, as cancer treatment often takes months and years. In focusing on patient assistance, we have not yet developed effective fundraising effort. Although our approach has always been to find solutions that are effective yet affordable for our patients, we are often asked to contribute to travel/lodging costs and other expenses. Fundraising effort is something we will need to develop next and we plan to use our success with patient assistance to grow financial support.

Financials

Advita Fund USA
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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Advita Fund USA

Board of directors
as of 06/21/2023
SOURCE: Self-reported by organization
Board chair

Marina Ouano

No Affiliation

Term: 2007 -

Marina Ouano

No Affiliation

Sam Sokolinsky

No Affiliation

Antonina Kurtova

Baylor College of Medicine

Irina Jacobson

Irina O'Neill

Volunteer

Luba Wherry

Volunteer

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 7/18/2022

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data