Meningioma Mommas, Inc.
Mission
Meningioma Mommas provides support and valuable resources to all those affected by meningioma brain tumors. We are dedicated to raising meningioma awareness and funding for meningioma specific research. To date we have donated $410,000 to meningioma research funding Dr. Elizabeth Claus (Yale), Dr. Michael McDermott (UCSF), Dr. Greg Riggins & Dr. Gilson Baia (Johns Hopkins), Dr. John Lee (UPENN), Dr. Daniel Kelly & Dr. Garni Barkhoudarian (John Wayne Cancer Institute), Dr. Randy Jensen (University of Utah), Dr. Long-Sheng Chang (Ohio State University), Dr. Albert Kim (Washington University in St. Louis), Dr. Nader Sanai at the Barrow Neurological Institute, Dr. Robert Martuza and Dr. Hiroaki Wakimoto (Harvard) & Dr. Melanie Hayden, Stanford, University of Colorado & NYU.
Ruling year
2004
Principal Officer
Mrs. Liz Holzemer
Co Principal Officer
Lindy Klarenbeek
Main address
9249 S. Broadway Blvd. Unit 200-PMB#240
Highlands Ranch, CO 80129 USA
EIN
41-2078438
NTEE code
Brain Disorders (G48)
Brain Disorders (H48)
Brain Disorders (G48)
IRS filing requirement
This organization is required to file an IRS Form 990-N.
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Communication
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Support services.
We connect patients and caregivers across the entire globe.
Dr. Elizabeth Claus
Since 2004, Meningioma Mommas has continued to fund Dr. Elizabeth Claus' ongoing epidemiology of meningoma research. We have donated $85,000 to date to Dr. Claus.
UCSF Meningioma Lab/Dr. Michael McDermott
Meningioma Mommas donated $65, 000 to the UCSF Meningioma Lab to fund the "Meningioma Translational Research Program." The primary objective of the Meningioma Research Laboratory at UCSF is to elucidate the genetic changes underlying the development and malignant progression of meningiomas with the eventual goal of translating this knowledge into novel therapeutic strategies.
Riggins Lab at Johns Hopkins
U Penn/Dr. John Lee
Funding Advanced Magnetic Resonance Imaging of Meningiomas to better understand new treatment options and prolong the lives of patients affected by aggressive and atypical meningiomas.
Where we work
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
To encourage individuals diagnosed with meningiomas to be proactive with their care; increase meningioma awareness through education and fund meningioma research in pursuit of a cure.
What are the organization's key strategies for making this happen?
Meningioma Mommas provides a 24/7 online support forum and hosts numerous meet and greets for in person support.
We collaborate with researchers dedicated to meningioma specific research to fund their work.
What are the organization's capabilities for doing this?
Members, their families and caregiving network donate to support Meningioma Mommas in order to fund meningioma research grants.
What have they accomplished so far and what's next?
Meningioma Mommas has donated $262,952 to fund research supporting Dr. Elizabeth Claus (YALE), Dr. Michael McDermott (UCSF), Dr. Gregory Riggins & Dr. Gilson Baia (JOHNS HOPKINS), Dr. John Lee (UPENN), Dr. Daniel Kelly & Dr. Garni Barkhoudarian (John Wayne Cancer Institute at Saint John’s Health Center), Dr. Randy Jensen (University of Utah) & Dr. Long-Sheng Chang (Ohio State Univ.) and Dr. Albert Kim (Washington University in St. Louis).
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
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Meningioma Mommas, Inc.
Board of directorsas of 08/17/2020
Liz Holzemer
No Affiliation
Lindy Klarenbeek
Vivienne Lloyd
Liz Holzemer
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