BRAYDEN ALEXANDER GLOBAL FOUNDATION FOR HYDRANENCEPHALY

The goals of Global Hydranencephaly Foundation include, but are not limited to, the following:

- provide individualized family support global-wide to parents, or other primary care providers, and siblings from the point of diagnosis and even after death of the individual diagnosed;
- build strong parent advocates so that these children and adults receive the medical and educational support they need to grow and thrive in their environments;
- make available accurate information to educate parents, caregivers, family, friends, and the greater medical community;
- raise awareness of the possibilities that do exist for a quality of life worth living;
- assist with obtaining goods and services needed on this journey through donations and grants as able;
- support like-minded organizations in the communities our families reside through fiscal sponsorship;
- assist with adoption/foster options for families making this their choice or babies and children needing homes with a diagnosis of hydranencephaly;
- support families as their loved one transitions to adulthood.

Our strategy for making this happen is to continue to work towards reaching as many people as we are able, especially those families upon diagnosis, in order to ensure they are supported on their journey with hydranencephaly from the beginning. At the same time, we continue to strive towards making our educational materials available to the medical community so that they're aware of the possibilities that do exist with this diagnosis beyond the outdated medical text. The foundation of our mission remains our family-to-family resource network, a private group on Facebook for primary care providers of children with hydranencephaly, where there is someone available 24/7/365 to provide guidance, support & information when needed.

Global Hydranencephaly Foundation is the only registered nonprofit organization working to provide support and advocacy services to families while also working to bring greater awareness of this particular diagnosis. We currently have a reach of over 700 families in about 33 countries which gives us the ability to continue to expand our reach in to more households in more regions of the globe.

Global Hydranencephaly Foundation has reached over 700 families in 33 countries, providing support and advocacy services as best as we are able from where we are in Northern New Mexico currently. We hope to amp up our awareness efforts and gain a greater spotlight in the nonprofit world to gain more momentum for our mission and continue to reach even more families. We are hopeful that this will allow us to get our foot in the door of the medical community and have a greater impact on the diagnosis and care possibilities that exist upon diagnosis.