SILVER2024

Bottoms Up Organization

For Healthy Buns!

Avon, CT   |  https://www.bottomsup.us/

Mission

Our mission is to advance our efforts in the support and education of IBD patients, families, and caregivers; foster our Candid Conversations campaign™ to raise awareness of Ulcerative Colitis and Crohn’s Disease; and fund our continued efforts in supplementing the many costly expenses within our IBD community such as; health care copayments, maintenance medications, travel accommodations, meals, and doctor visits.

Notes from the nonprofit

Our non-profit organization was founded in 2013 by a group of individuals who realized a major gap in the IBD community. Our mission is to work with hospitals and physician offices to establish Bottoms Up Patient/Family Support Funds to help patients and their families offset health care and other expenses associated with living with IBD. We are dedicated to ensuring that all adults and children can afford their infusions, prescription drugs, medical supplies, rent, utilities and more while seeking remission. Guiding Principles Our commitment to the IBD community is as fierce as a Titan! We will operate with the following principles as our driving force: Highest Ethical Standards, Inclusion, Compassion, Excellence in Leadership, Commitment, and Collaboration. Our board members and volunteers range from physicians, entrepreneurs, lawyers, teachers, local business owners & staff, students and more. We are so grateful to everyone for their support!

Ruling year info

2018

Executive Director

Dawn Zavalishin

Main address

35 East Main Street Suite 167

Avon, CT 06001 USA

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EIN

46-3939232

NTEE code info

Fund Raising and/or Fund Distribution (E12)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Candid Conversations

Candid Conversations is a program designed to help patients and families living with Inflammatory Bowel Disease to foster quality, open communications with family, health care professionals, and friends. Many times patients diagnosed with Ulcerative Colitis or Crohn's Disease have a hard time discussing the symptoms, emotions, and daily struggles living with IBD. We create ways to get the conversation started and help keep the lines of communication open.

Population(s) Served
Caregivers
Adults
Children and youth
Parents
Chronically ill people

Imagine being 5 years old and waiting to receive an IV so you may receive life-saving medicine? Imagine being an adult or senior waiting for your procedure or surgery hoping it's not cancer? Patients feel scared, nervous, anxious, and so many other emotions. Our Care Package Program brings together students from high schools along with their community to collect donations for our pediatric and adult patients such as small stuffed animals, fidget toys, coloring books, crayons, masks, tissues, band-aids, hand sanitizers, and other small items that are then put together in individual packages and distributed to hospitals, infusion centers and physician offices. These packages provide a small and pleasant distraction from their pending medical event.

Population(s) Served

Bottoms Up works with both hospitals and physician offices to establish mental health support programs through our funding for adults and pediatric patients and their families to help with learning to cope with the feelings of isolation, depression, anxiety and stress associated with living with Inflammatory Bowel Disease.

Population(s) Served
Chronically ill people
Chronically ill people

Where we work

Awards

Avon’s Greater Together Community Fund Grant Recipient 2021

Hartford Foundation for Public Giving

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Bottoms Up 2022 Goals:
* Create 3-5 Bottoms Up Patient/Family Support Funds within one hospital and physician offices to provide financial assistance to patients living with IBD.
*Implement Mental Health Programs within both hospitals and physician offices to establish mental health support programs through our funding for adults and pediatric patients and their families to help with learning to cope with the feelings of isolation, depression, anxiety and stress associated with living with Inflammatory Bowel Disease
*Collect donations as part of our Care Package Program for our pediatric and adult patients such as small stuffed animals, fidget toys, coloring books, crayons, masks, tissues, band-aids, hand sanitizers, and other small items that are then put together in individual packages and distributed to hospitals, infusion centers and physician offices. These packages provide a small and pleasant distraction from their pending medical event.
*Expand our Community Service Program through promoting volunteer opportunities with us to earn Mastery-based experience in Community Service. We will work with schools to determine student areas of interest: leadership, marketing, advertising, event planning, social media, website design & development, and more.

Our strategies include but are not limited to;
1. Add 3 new fundraising events in 2022, along with current events to support growth and funding efforts.
2. Recruit 3-5 additional board members who may actively help with achieving our 2022 goals and objectives.
3. Increase awareness through 2022 marketing campaign, brochure placement, and advertising to continue to get our mission known to appropriate businesses, towns, individuals, and supporters
4. Implement mailing campaign on semi-annual basis to celebrate National Crohn's and Colitis Awareness Week as well as our Inaugural Gala event
5. Improve social media campaigns to promote events, gala, and share patient stories of hope and inspiration

We have an excellent Board of Directors, many of whom are in a related field or living with IBD. We also have excellent relationships with our partners, sponsors, and donors and hope to continue to maintain and build throughout 2022 in support of our goals and objectives.

We have received several sponsorships in 2022, along with several grants in support of our efforts.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, It is difficult to find the ongoing funding to support feedback collection

Financials

Bottoms Up Organization
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Bottoms Up Organization

Board of directors
as of 02/22/2024
SOURCE: Self-reported by organization
Board chair

Dawn Zavalishin

Bottoms Up Organization

Dawn Zavalishin

Bottoms Up Organization

Dr. Jon J. Ernstoff

Connecticut GI

Mark Herbick

Pursant, LLC

Andrew Shrout

Bluefire Insurance

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 5/25/2022

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 05/25/2022

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.