International SCN8A Alliance/Wishes for Elliott
Advancing SCN8A Research
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Convening and Hosting Scientific Conferences
Convene and host scientific meetings of leading researchers on SCN8A disorders (independently) and related sodium channelopathies (jointly through partnerships).
Grant making to advance understanding of SCN8A and related disorders
Starting in 2016, Wishes for Elliott innovated a partnership with the American Epilepsy Society allowing our small family organization to make high impact grants to promising young scientists - solidifying their commitment to this rare disease and uncovering the mysteries of this disorder. Five grants have been made to date with more planned in the near future. We also provide bridging funds to allow critical research to continue between major donations.
Development of First Standards of Care for SCN8A
We have gathered pediatric epileptologists and SCN8A caregivers from five continents to work collaboratively, using available data and publications, to develop the first ever consensus guidelines for the diagnosis and treatment of SCN8A epilepsy and related disorders. This a monumental effort that stands to improve the quality of care for all those living with the rare, devastating disorder.
Where we work
External reviews

Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Our goal is to aggressively work with families and all relevant stakeholder to find life-altering treatments, and ultimately cures, for those living with SCN8A and related disorders.
What are the organization's key strategies for making this happen?
- Work collaboratively with families to document and
What are the organization's capabilities for doing this?
What have they accomplished so far and what's next?
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
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Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
International SCN8A Alliance/Wishes for Elliott
Board of directorsas of 04/09/2022
JayEtta Hecker
Organizational demographics
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Leadership
The organization's leader identifies as:
The organization's co-leader identifies as:
Race & ethnicity
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Gender identity
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Sexual orientation
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Disability
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