Liver Mommas & Families, Inc.
Support. Resources. Advocacy. Hope.
Programs and results
What we aim to solve
We seek to address need in the pediatric liver transplant community that has otherwise gone unfulfilled.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Jingle Bell Drive
Liver Mommas and Families is a group of parents and caregivers of children who have terminal and life-threatening liver disease. Many of our children have had liver transplants. We understand what it’s like to spend long months, holidays and even birthdays in the hospital. We are also no strangers to the costs associated with such long-term medical care. This is why we started Liver Mommas.
In 2011, we started an annual event to bring a holiday dinner and gifts to children and their families admitted to Medstar Georgetown University Hospital in Washington, DC. over the holiday season (The Jingle Bell Drive).
Today we support 4 pediatric liver transplant hospitals in the US during the Holiday Season: Medstar Georgetown University Hospital in DC, Johns Hopkins Children's Hospital in Baltimore, Cincinnati Children's Hospital Medical Center in Cincinnati, and Ann & Robert H. Lurie Children's Hospital in Chicago.
Virtual Pediatric Transplant Art Show
Our Annual Pediatric Transplant Art Show is event held during Pediatric Transplant Week at the end of April. This event is intended to raise awareness of pediatric organ transplant. While we focus on liver transplant, the art show is open to children with any transplanted organ up to age 18.
Spring Fundraiser for Care Packages
Every spring we host a fundraiser during Donate Life Month to cover the cost of Care Packages for liver-families. Our dedicated team of individuals identifies families who are struggling in our community through outreach and careful evaluation. Care Packages containing an array of items from printed resources and travel toiletries, to gift-cards to off-set the cost of medical expenses are then sent to families in the hospital to make their stay more comfortable.
Where we work
Photos
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of editorial board meetings held
This metric is no longer tracked.Totals By Year
Population(s) Served
Family relationships
Type of Metric
Context - describing the issue we work on
Direction of Success
Increasing
Number of organizational partners
This metric is no longer tracked.Totals By Year
Population(s) Served
Family relationships
Type of Metric
Context - describing the issue we work on
Direction of Success
Increasing
Number of volunteers
This metric is no longer tracked.Totals By Year
Population(s) Served
Family relationships
Type of Metric
Context - describing the issue we work on
Direction of Success
Increasing
Total dollars received in contributions
This metric is no longer tracked.Totals By Year
Population(s) Served
Family relationships
Type of Metric
Other - describing something else
Direction of Success
Increasing
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Our aim is to support families of children with life-threatening liver disease and liver transplant throughout their journey pre and post transplant.
Our organization is comprised of a group of parents whose children have been diagnosed with liver disease and have received a liver transplant. We understand the initial shock of diagnoses, the sudden flurry of information dispensed in the language of medical jargon, and the feeling of having your entire world turned upside-down in an instant. We’ve spent long weeks and months in the hospital, celebrating birthdays, holidays, and milestones with the quiet beep of IV pumps and heart-rate monitors in the background.
We also understand hope. We know that traveling this road is made so much easier with the help of those who have walked it before us.
What are the organization's key strategies for making this happen?
We support liver families at four pediatric liver transplant hospitals, to include Georgetown University Hospital, Cincinnati Children’s Hospital Medical Center, Johns Hopkins Children’s Center at Johns Hopkins Hospital, and Ann & Robert H. Lurie Children’s Hospital. Our team of 100% volunteers work closely with Child Life representatives to provide support where it’s needed most both pre and post-transplant.
We continue that support beyond the hospital, offering resources on our website for parents and families to help navigate some of the challenges presented by having a child with life-threatening liver disease and liver transplant. We also offer an online support group through Facebook. Additionally, our team members provide individual outreach to families through online support efforts and care packages and sympathy items.
We work with our partners to help with fundraising efforts, raise awareness for pediatric liver disease and organ transplant, be a voice in pediatric liver transplant advocacy, provide funding for research, and networking with other like-minded and complimentary organizations.
As we look toward the future, we hope to establish scholarships for liver-kids and their parents seeking a career in health and sciences and we’re working diligently to develop a resource for families internationally to increase access to transplant, medication, and follow-on care across the globe.
Where there is a need, we aim to find a way to fill it. Where there is uncertainty, we seek to provide hope. Together, we can imagine a better tomorrow.
What are the organization's capabilities for doing this?
We have been experiencing organic growth over the last 10 years, prompting increasing donations and partnerships that consistently expand our reach. We fundraise primarily online, through social media and our website, and have been successful doing so, thus far.
Our Board members each have diverse and unique backgrounds that allow us to expand out advocacy efforts in partnership with other, like-minded organizations as well as provide community outreach and develop resources that can be distributed to the community.
We plan to continue allow the organization to grow and develop this way, and hope to eventually seek grants, as well.
What have they accomplished so far and what's next?
Liver Mommas & Families began in 2011 when a group of parents decided to make the holidays a little more bearable for children and their families admitted to Georgetown Hospital over the Christmas Holiday by bringing traditional holiday dinner and gifts to celebrate the season. Out of that effort we developed into a resource for families, offering support through our online support group. In 2015 our organization became a Nonprofit, and in 2017 LMF was formally recognized as a 501c3.
Today we support liver families at four pediatric liver transplant hospitals, to include Georgetown University Hospital, Cincinnati Children’s Hospital Medical Center, Johns Hopkins Children’s Center at Johns Hopkins Hospital, and Ann & Robert H. Lurie Children’s Hospital. Our team of 100% volunteers work closely with Child Life representatives to provide support where it’s needed most both pre and post-transplant.
We continue that support beyond the hospital, offering resources on our website for parents and families to help navigate some of the challenges presented by having a child with life-threatening liver disease and liver transplant. We also offer an online support group through Facebook. Additionally, our team members provide individual outreach to families through online support efforts and care packages and sympathy items.
We work with our partners to help with fundraising efforts, raise awareness for pediatric liver disease and organ transplant, be a voice in pediatric liver transplant advocacy, provide funding for research, and networking with other like-minded and complimentary organizations.
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Liver Mommas & Families, Inc.
Board of directorsas of 09/03/2022
Jasmine Hollingsworth
Anna Beeman
Katie Thomas
Sairah Ijaz
Steven Coffee
Diana Nordling
Jasmine Hollingsworth
Anna Beeman
Bryan Dilner
Amy Williamson
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
The organization's co-leader identifies as:
Race & ethnicity
Gender identity
Transgender Identity
Sexual orientation
No data
Disability
Equity strategies
Last updated: 07/12/2021GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We use a vetting process to identify vendors and partners that share our commitment to race equity.
- We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
- We have community representation at the board level, either on the board itself or through a community advisory board.
- We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.