GOLD2024

American Sleep Apnea Association, Inc.

Sleep Comes First

aka ASAA; sleepapnea.org   |   Washington, DC   |  http://sleephealth.org

Mission

The American Sleep Apnea Association (ASAA) is a nonprofit organization that works to improve the lives of those affected by sleep apnea and leads the search for the elimination of this syndrome in future generations.

Ruling year info

1990

Board Chairman

Mr. Richard Bren

Executive Director

Mr. Gilles J. Frydman

Main address

1250 Connecticut Ave NW Ste 700

Washington, DC 20036 USA

Show more contact info

EIN

54-1545170

NTEE code info

Specifically Named Diseases (G80)

Alliance/Advocacy Organizations (E01)

Specifically Named Diseases (G80)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2023, 2022 and 2021.
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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Sleep apnea is highly preventable and can be reversed if not eliminated through pediatric recognition and dynamic, multi-disciplinary interventions. Based on research conducted with more than 8,000 respondents over the last two years, ASAA has identified the 8 Main Unmet Needs of Sleep Apnea Patients: 1. Lack of Prevention 2. Low Awareness Among The General Public And Health Care Professionals 3. Poor Detection 4. Imperfect Diagnosis 5. Inadequate Treatment 6. Insufficient Coverage Policies 7. Inaccessible Patient-Generated Data Sets 8. Systemic Health Disparities.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

CPAP Assistance Program

ASAA is a patient-led nonprofit 501(c)(3) formed in 1990 to fight for people with sleep apnea. ASAA’s CPAP Assistance Program (CAP) has provided over 1,400 CPAP equipment packages and over 1,000 masks to patients in need over the last three years. It is our mission to help as many patients as possible get the treatment that they need. No one should go untreated due to financial hardship or other issues.

Population(s) Served
Adults
Children and youth
Chronically ill people
Economically disadvantaged people
Ethnic and racial groups

AWAKE stands for Alert, Well, And Keeping Energetic. AWAKE gives people with sleep disorders the tools to manage their own health care successfully through online training, including our AWAKE SleepHealth Support Group and forum, AWAKE curriculum webinars and speaker series, blog posts and newsletters, and patient stories.

Population(s) Served
Adults
Children and youth
Ethnic and racial groups
Chronically ill people
Economically disadvantaged people

The annual SLEEPtember® campaign will recognize September as the month to prioritize healthy sleep and to create greater conversations to raise the awareness of the risks of untreated sleep disorders, such as sleep apnea. The initiative encourages the public to take healthy actions. Funding will provide greater awareness and research to improve the outcomes of those affected by sleep disorders.

Population(s) Served
Adults
Children and youth
Ethnic and racial groups
Chronically ill people
Economically disadvantaged people

This was a mobile research study to investigate how your sleep is associated with general health, medical conditions, daytime alertness, and productivity. The study closed on April 23, 2020. Results and publications will be made available when published.
This app was part of an exciting new patient-led effort to use the iPhone and Apple Watch to advance clinical research on sleep and sleep disorders and how they affect other medical conditions. It was also a personalized tool that helps you gain greater insight into your sleep habits and your general health and well-being.
The SleepHealth team consists of the American Sleep Apnea Association, a patient-led, non-profit organization and researchers at the University of California, San Diego.
This study was unique in that it was led by patients and allowed participants to be equal partners in both the monitoring and management of their symptoms and data collected as well as helping to direct future research by participating in our community at www.sleepapnea.org.

Population(s) Served
Adults
Ethnic and racial groups
Chronically ill people
Economically disadvantaged people

Starting in 2020, ASAA implemented a nationwide, virtual support program to provide peer to peer support to new sleep apnea patients, increasing better PAP treatment outcomes. More information can be found at https://www.sleepapnea.org/peer-mentors/join-asaa/.

Population(s) Served
Adults
Chronically ill people

Where we work

Videos

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of CPAP Machines distributed

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, Children and youth, Ethnic and racial groups, Chronically ill people, Unemployed people

Related Program

CPAP Assistance Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The COVID Pandemic and the Philips CPAP Machine Recall seriously depleted our inventory of machines available. Currently, donated machines are sent out immediately upon receiving them.

Number of conferences held

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, Children and youth, Ethnic and racial groups, Chronically ill people, Unemployed people

Related Program

AWAKE Sleep Apnea Educational Programs

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Number of phone calls/inquiries

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, Children and youth, Ethnic and racial groups, Chronically ill people, Unemployed people

Related Program

AWAKE Sleep Apnea Educational Programs

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of grants received

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, Children and youth, Ethnic and racial groups, Chronically ill people, Unemployed people

Related Program

SLEEPtember

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of people on the organization's email list

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, Children and youth, Ethnic and racial groups, Chronically ill people, Unemployed people

Related Program

AWAKE Sleep Apnea Educational Programs

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of Facebook followers

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, Children and youth, Ethnic and racial groups, Chronically ill people, Unemployed people

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of new website visitors

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, Children and youth, Ethnic and racial groups, Chronically ill people, Unemployed people

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of website pageviews

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, Children and youth, Ethnic and racial groups, Chronically ill people, Unemployed people

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of overall donors

This metric is no longer tracked.
Totals By Year
Population(s) Served

Chronically ill people

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Average number of dollars received per donor

This metric is no longer tracked.
Totals By Year
Population(s) Served

Chronically ill people

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Average wage of clients served (in dollars)

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, Children and youth, Ethnic and racial groups, Chronically ill people, Unemployed people

Related Program

CPAP Assistance Program

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Decreasing

Number of new clients within the past 12 months

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, Children and youth, Ethnic and racial groups, Chronically ill people, Unemployed people

Related Program

CPAP Assistance Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of CPAP Masks distributed

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, Children and youth, Ethnic and racial groups, Chronically ill people, Unemployed people

Related Program

CPAP Assistance Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of Twitter followers

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, Children and youth, Ethnic and racial groups, Chronically ill people, Unemployed people

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of polls conducted with advocacy audience(s)

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, Children and youth, Ethnic and racial groups, Chronically ill people, Unemployed people

Related Program

AWAKE Sleep Apnea Educational Programs

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of reports written/published

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, Children and youth, Ethnic and racial groups, Chronically ill people, Unemployed people

Related Program

SLEEPtember

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Hours of programing delivered

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, Children and youth, Ethnic and racial groups, Chronically ill people, Unemployed people

Related Program

AWAKE Sleep Apnea Educational Programs

Type of Metric

Context - describing the issue we work on

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

ASAA is dedicated to promoting research and helping patients have a voice in the future direction of that research to find new treatments, and ultimately cures for sleep apnea.
1. Lack of Prevention. Needed: Proactive and accurate diagnosis of sleep apnea in pediatric and non-typical patients.
2. Low Awareness. Needed: Greater awareness of sleep apnea and co-occurring conditions among the general public and within the healthcare community.
3. Poor Detection. Needed: Early attention to sleep issues in medical school curriculum and more training of healthcare professionals.
4. Imperfect Diagnosis. Needed: Accurate home sleep testing devices. More attention to patient input for innovation.
5. Inadequate Treatment. Needed: Better access to treatments for sleep apnea, fatigue, and excessive daytime sleepiness (EDS).
6. Insufficient Coverage Policies. Needed: Essential changes to medical coverage, reimbursement, and utilization policies to support effective patient care.
7. Inaccessible Patient-Generated Data. Needed: Direct access to patient-generated data from medical devices, and much greater autonomy to control home care devices.
8. Systemic Health Disparities. Needed: Essential changes to the health care ecosystem to achieve a culture of health for all.

ASAA promotes education and awareness through its popular website (www.sleephealth.org), social media outlets, media interviews, public service announcement campaigns, professional meetings, community presentations and more. All of these campaigns aim to break down the barriers between different patient communities while promoting research and efforts to address the 8 Unmet Needs of Sleep Apnea Patients.

Our Board of Directors and staff dedicate themselves on a daily basis to our mission and the advancement of our goals. The support of our patient partners, scientific advisory council and other organizations help us educate and grow our community.

The American Sleep Apnea Association has provided education to millions of Americans about the signs and symptoms of sleep apnea and has encouraged treatment through an active website and discussion forum, public awareness campaigns, conferences, social media and other community outreach.

ASAA has provided thousands of continuous positive airway pressure machines and supplies to thousands of patients in need that were not able to afford this life-saving medical equipment through its CPAP Assistance Program.

ASAA is working to build an ambitious patient-led research program using data collection and technology to provide screening tools to better diagnosis and treat people with sleep disorders.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We aim to collect feedback from as many people we serve as possible, We engage the people who provide feedback in looking for ways we can improve in response

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, It is difficult to find the ongoing funding to support feedback collection

Financials

American Sleep Apnea Association, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

American Sleep Apnea Association, Inc.

Board of directors
as of 05/22/2024
SOURCE: Self-reported by organization
Board chair

Mr. Richard Bren

Transtar Insurance Brokers, Inc.

Term: 2022 -

Adam Amdur

American Sleep Apnea Assocation

Rich Bren

International Excess Program Managers

David Mills

Sandra Chaney

HUB International

Linda Walsh

COPD Foundation

Marc Donner

NYGeek LLC

Tyalor McCarroll

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 5/22/2024
info Candid has made improvements to the race and ethnicity options.

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 11/17/2020

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.