Ellie's Army Foundation
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Programs and results
What we aim to solve
Many families of children or young adults who are living with life-threatening illnesses are faced with enormous medical bills. Because of this, they experience tremendous financial pressures. Many are unable to pay these medical bills and also afford to pay for their daily living expenses (i.e. rent/mortgage, energy bills, automobile payments, food etc.). Ellie's Army Foundation's mission is to provide these families with financial assistance so that all they need to focus on is helping their children survive.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Medical Assistance
We help pay for medical bills and insurance co-pays, therapies (i.e. respiratory, physical, occupational), nutritional supplements, and additional medical costs associated with a child or young adult’s specific needs.
Emergency Expenses
We also help pay for mortgage, rent and utility bills in an effort to alleviate financial stress for families and provide a safe place for critically-ill children and young adults. Other items we cover include food, clothing, fund relocation and individual emergency expenses as they arise.
Transplants
In order for many patients to be accepted into a transplant program, they are required to show proof that they have thousands of dollars in liquid assets. We provide these funds in order for children to have access to these life-saving transplants.
Ellie's Fund at Duke
The purpose of Ellie’s Fund is to provide financial assistance to lung transplant recipients at Duke Univeristy Medical Center.
Where we work
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of families assisted with rent or mortgage to avoid eviction
This metric is no longer tracked.Totals By Year
Population(s) Served
Children and youth, People with diseases and illnesses, Economically disadvantaged people
Related Program
Emergency Expenses
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Holding steady
Context Notes
This metric has only been tracked since 2021
Goals & Strategy
Reports and documents
Download strategic planLearn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Our goal is to alleviate the financial burdens and stressors that families of children and young adults with life-threatening illnesses are experiencing. By providing them with much needed financial assistance, these families are able to then focus on their child's fight to survive (rather than how they are going to pay their next bill).
What are the organization's key strategies for making this happen?
Ellie's Army Foundation has several strategies that are in place to help address the myriad of problems that children, young adults, and their families face due to the diagnosis of life-threatening illness. Through social media, contact with doctors, nurses, hospital social workers, and word of mouth, we reach out to families dealing with financial insecurity. We then work with each applicant on an individual basis to help ascertain how to best meet their needs. We provide assistance with medical bills, Insurance co-pays, and other medical costs associated with each child's or young adult's specific needs. We help pay for mortgage, rent and utility bills, food, clothing, and emergency expenses. In an effort to address the specific population of cystic fibrosis patients that have had a transplant and are facing financial issues, we have set up Ellie's Fund at Duke University Medical center.
What are the organization's capabilities for doing this?
Ellie's Army Foundation is led by Founder, Stacey Levy, who was a parent of a child with a life-threatening illness. The foundation's dedicated staff has an understanding and depth of knowledge regarding the issues faced by these families. Historically, the foundation has taken a "hands-on approach" with each individual applicant affording its team the ability to identify the problem and form an action plan that is most helpful in each case. Through a large network of doctors, nurses, social workers, and social media support and awareness groups, the foundation is able to reach these families. Ellie's Army Foundation's fundraising efforts have helped meet the financial needs of the families who have applied for assistance. Ellie's Army Foundation has a growing network of dedicated supporters who believe in its mission and are committed to continuing to help as many of these families as possible.
What have they accomplished so far and what's next?
Ellie's Army has been able to expand its original mission from an organization that only offered assistance to families of children afflicted with cystic fibrosis, to now offering assistance to all families of children and young adults with any life-threatening illness. We have expanded our program at Duke University Hospital (Ellie's Fund) to assist lung transplants patients in need of assistance. As we continue to help families in need, we are receiving phenomenal feedback on what we are doing for them. Our ability to tell the individual stories through the family's testimonials helps raise awareness and funding. These stories are critical in communicating to donors firsthand how their contributions truly transform lives.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify bright spots and enhance positive service experiences, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
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Which of the following feedback practices does your organization routinely carry out?
We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We act on the feedback we receive
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What challenges does the organization face when collecting feedback?
It is difficult to get the people we serve to respond to requests for feedback, We don’t have the right technology to collect and aggregate feedback efficiently, It is difficult to find the ongoing funding to support feedback collection
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Ellie's Army Foundation
Board of directorsas of 09/09/2024
CINDY ORLINSKY
BRIAN LEVY
JAY FIEDLER
JEFF KLEIN
CINDY ORLINSKY
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Not applicable -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
No data
Race & ethnicity
No data
Gender identity
Transgender Identity
Sexual orientation
No data
Disability
No data