FACES THE NATIONAL CRANIOFACIAL ASSOCIATION

Building Faces...Building Futures

aka FACES   |   Chattanooga, TN   |  http://www.faces-cranio.org

Mission

FACES: The National Craniofacial Association is a non-profit organization serving children and adults throughout the United States with severe craniofacial deformities resulting from birth defects, injuries, or disease. There is never a charge for any service provided by FACES. Our services include providing lay-friendly information on craniofacial birth defects to families, medical personnel, social services workers, and educational professionals; providing support, networking, and counseling to families;and providing financial assistance for the secondary costs involved when a family must travel away from home in order for their child to receive surgeries to rebuild the face and skull. Additionally FACES hosts FACES Camp - a camp for kids with facial differences.

Ruling year info

1970

President

Kim Fox

Main address

PO Box 11082

Chattanooga, TN 37401 USA

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Formerly known as

Debbie Fox Foundation

EIN

23-7069285

NTEE code info

Alliance/Advocacy Organizations (G01)

Alliance/Advocacy Organizations (E01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Client Travel and Financial Assistance

Client Travel
FACES provides financial assistance for expenses incurred while traveling away from home to a craniofacial center for reconstructive surgery and/or evaluation. This assistance is offered on the basis of financial and medical need and includes transportation, lodging, and food. Insurance and government medical assistance programs help to pay for surgeries but rarely pay for travel expenses. FACES does not choose the physicians or medical centers for the clients; that choice is made entirely by the family. Once a client is approved by FACES, every attempt is made to continue aid for as long as it is needed. FACES also pays for one accompanying person.

Population(s) Served

FACES furnishes information about craniofacial centers and publishes a brochure which further details the scope of our organization.  FACES provides referrals to other available resources and organizations, maintains up-to-date information on specific diseases or birth defects, and assists in getting families in touch with other families who have a child with the same disorder.  By connecting these families, FACES gives them the means to alleviate the emotional isolation that is often felt by patient and family.  By sharing information and providing support, FACES helps to build a framework in which clients and their families can cope. 
FACES provides information and support networks on each of these anomalies...
 

 

Amniotic Band Syndrome
 

 

Antley Bixler Syndrome
 

 

Apert Syndrome
 

 

Arnold-Chiari Malformation
 

 

Atresia
 

 

Bear-Stevenson Syndrome
 

 

Beckwith-Wiedemann Syndrome
 

 

Binders Syndrome
 

 

Blepharophimosis/ Ptosis Syndrome
 

 

Branchio-Oculo-Facial Syndrome
 

 

Carpenter Syndrome
 

 

Cerebro-Oculo-Facio-Skeletal Syndrome
 

 

Charge Syndrome
 

 

Cleft Lip and Palate
 

 

Cleidocranial Dysostosis
 

 

Craniofrontonasal Dysplasia
 

 

Craniosynostosis
 

 

Craniometaphyseal Dysplasia
 

 

Crouzon Syndrome
 

 

Facial Nerve Palsy
 

 

Facio-Scapulo-Humeral Muscular Dystrophy
 

 

Fraser Syndrome
 

 

Freeman Sheldon Syndrome
 

 

Fronto-Nasal-Dysplasia
 

 

Goldenhar Syndrome or Hemi-facial Microsomia
 

 

Hallermann Streiff Syndrome
 

 

Hemangioma / Port Wine Stain
 

 

Hemihypertrophy
 

 

Hydrocephalus
 

 

Jackson Weiss Syndrome
 

 

Kleeblattschadel
 

 

Microtia
 

 

Moebius
 

 

Muenke Syndrome
 

 

Nager & Miller Syndrome
 

 

Nasal Encephaloceles
 

 

Neurofibromatosis
 

 

Oral-Facial-Digital Syndrome
 

 

Orbital Hypertelorism
 

 

Oto-Palato-Digital Syndrome
 

 

Parry-Romberg Syndrome
 

 

Pfeiffer Syndrome
 

 

Pierre Robin Syndrome
 

 

Roberts Syndrome
 

 

Rubinstein-Taybi Syndrome 
 

 

Saethre-Chotzen Syndrome
 

 

Stickler Syndrome
 

 

Sturge Weber – Hemangioma
 

 

Tesier/Facial Cleft
 

 

Treacher Collins Syndrome
 

 

Velo-Cardio-Facial Syndrome
 

 

Waardenburg Syndrome

Population(s) Served

FACES Camp is a camp designed for children with any type of craniofacial anomaly such as: Cleft Lip and Palate, Apert Syndrome, Crouzon Syndrome, Pfeiffer Syndrome, Treacher Collins Syndrome, Goldenhar, and many more. The purpose of the camp is to help children with medical needs foster independence by engaging socially with other children experiencing similar medical issues.

Population(s) Served

Where we work

Awards

Independent Charities Seal of Excellence 2002

The Independent Charities Seal of Excellence is awarded to the members of Independent Charities of America and Local Independent Charities of America that have, upon rigorous independent review, been able to certify, document, and demonstrate on an annual basis that they meet the highest standards of public accountability, program effectiveness, and cost effectiveness. These standards include those required by the US Government for inclusion in the Combined Federal Campaign, probably the most exclusive fund drive in the world. Of the 1,000,000 charities operating in the United States today, it is estimated that fewer than 50,000, or 5 percent, meet or exceed these standards, and, of those, fewer than 2,000 have been awarded this Seal.

Affiliations & memberships

Center for Nonprofit Management Excellence Network 1994

Financials

FACES THE NATIONAL CRANIOFACIAL ASSOCIATION
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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FACES THE NATIONAL CRANIOFACIAL ASSOCIATION

Board of directors
as of 4/28/2020
SOURCE: Self-reported by organization
Board chair

Greg Tirey

Mesa Associates

Term: 2018 - 2022

Todd Blancett

Capital Benefits Group

Christopher Chase

Associates in Plastic and Reconstructive Surgery

Belva Farmer

Associates in Plastic and Reconstructive Surgery

Susan Jensen

Prudential Realty Center

Ann Keown

Retired

Kevin King

UBS Financial Services

Jake Thal

Blue Cross Blue Shield of Tennessee

Carol Kelley

Univeristy Surgical Associates

Meg Sutton

Community Connections

Tracye Ward

Blue Cross Blue Shield of Tennessee

Jim Kecy

TVA

Coyee Langston

Cornerstone Insurance

Kathy O'Brien

UNUM

Greg Tirey

Mesa Engineering

David Jackson

Redbank Elementary

Jen Litton

Patten Group

Josh Moore

Market Street Partners

Angie Osborn

Unum

Lucilla Nash

Erlanger

Roger Wade

Singer/songwriter

Organizational demographics

SOURCE: Self-reported; last updated 11/08/2019

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data