DOWN SYNDROME ASSOCIATION OF CENTRAL TEXAS

aka DSACT   |   Austin, TX   |  http://www.dsact.org

Mission

The mission of DSACT is to provide education, support, and resources to individuals with Down syndrome, their families, professionals, and the community while building public awareness and acceptance of the abilities of individuals with Down syndrome.

Ruling year info

1993

Acting Executive Director

Laura Whitekettle

Main address

3710 Cedar Street Box 3

Austin, TX 78705 USA

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EIN

74-2577312

NTEE code info

Down's Syndrome (G25)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Recreational and Social Programs

One of the toughest challenges faced by individuals with Down syndrome and their families is isolation. According to Dr. George Capone of the Kennedy Krieger Institute’s Down Syndrome Clinic, it is crucial to build and maintain a social outlet for teens and adults with Down syndrome that not only fosters independence, but which also includes peers with Down syndrome.

DSACT plans and funds a wide variety of year-round recreational programs for nearly 700 families in Central Texas. These programs enable children and adults with Down syndrome to maintain a productive, meaningful and enhanced quality of life. Most importantly, the programs allow them to fully develop their potential and talents.

These programs have an added benefit of providing children with opportunities to build close friendships with children who are just like them. Our programs also foster an inclusive environment, allowing typically-developing peers to participate alongside those with disabilities. Our programs begin with basic levels and develop with appropriate ages and ability.

DSACT's recreational programs include: martial arts, social dance, fitness bootcamp, art, book club, tumbling, and more!

DSACT's social programs are divided by age to promote developmentally appropriate friendships and connections for parents with children of similar ages. Groups meet about once per month for a fun family activity, at no charge to the family.

Population(s) Served
People with intellectual disabilities
Families

Upon diagnosis and referral to DSACT, parents who have a received a prenatal or postnatal diagnosis of Down syndrome for their baby are contacted by one of our trained new parent coordinators who will visit with families , provide a welcome basket full of resources and baby items, and answer questions. These new parent coordinators offer ongoing emotional support and mentoring and introduce new families to DSACT's infant social group.

Population(s) Served
Parents
Infants and toddlers

Our medical outreach team meets with local hospital and clinic staff, including doctors, nurse, and social workers, to provide training and education on best practices in delivering a Down syndrome diagnosis and new research in the Down syndrome field. DSACT also develops referral networks with local medical providers to ensure that all families with a Down syndrome diagnosis have the opportunity to connect with DSACT programs and resources.

Population(s) Served
Adults

DSACT's PEAK (Parents Empowering Articulation in Kids) Speech Therapy Program is a is low-cost and open to individuals with Down syndrome in the Central Texas area who, with a family member, meet eligibility criteria. We provide group therapy to people with Down syndrome ages 4-adult, working in therapy groups of five participants.

Population(s) Served
People with intellectual disabilities

DSACT offers professional educational opportunities including district-wide, school-wide, and team/individual teacher consultation and continuing education to ensure educators are knowledgeable and competent to use best practices for educating individuals with Down syndrome.

DSACT's Education Manager also provides twice-monthly educational sessions for parents and caregivers on a variety of topics relevant to the learning styles of individuals with disabilities.

For both professionals and family members, DSACT hosts an annual full-day seminar featuring an expert in the special education practice field.

Population(s) Served
Adults

Where we work

Affiliations & memberships

Down Syndrome Affiliates in Action Affiliate in Excellence 2015

Financials

DOWN SYNDROME ASSOCIATION OF CENTRAL TEXAS
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
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DOWN SYNDROME ASSOCIATION OF CENTRAL TEXAS

Board of directors
as of 01/18/2022
SOURCE: Self-reported by organization
Board co-chair

Kyle Henry


Board co-chair

Marshall Eudy

Suzanne Shepherd

Nicholas Carlin

Liz Jones-Dilworth

Tracey Cantu

Kyle Henry

Kim Kann

Sara Dodd

Marshall Eudy

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes