GOLD2023

NATIONAL FAMILY CAREGIVERS ASSOC

aka Caregiver Action Network   |   Washington, DC   |  www.caregiveraction.org

Mission

Caregiver Action Network is the nation's leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. CAN serves a broad spectrum of family caregivers ranging from the parents of children with special needs, to the families and friends of wounded soldiers; from a young couple dealing with a diagnosis of MS, to adult children caring for parents with Alzheimer's disease. CAN (formerly the National Family Caregivers Association) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.

Ruling year info

1992

Principal Officer

Mr. John Schall

Interim Chief Executive Officer

Lisa Winstel

Main address

1150 Connecticut Ave NW Suite 501

Washington, DC 20036 USA

Show more contact info

EIN

52-1780405

NTEE code info

Alliance/Advocacy Organizations (E01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Family Caregiver Education

CAN's family caregiver education program creates resourceful and capable caregivers, reduces caregiver stress, and increases respect for caregivers. CAN promotes family caregivers as essential members of the care team, teaching family caregivers to be effective care coordinators and focuses on key coordination activities such as; planning a doctor’s visit, managing an emergency room visit/ICU stay, monitoring care for a hospitalized loved one, care-recipient transfers. Family caregivers learn to develop effective coping skills for dealing with caregiving at all times and particularly at times of stress. CAN offers materials that give tips and tools for staying on top of care plans e.g. toolkits for medication management and other tasks.

The program is delivered as a free membership available to family caregivers who join CAN by sharing demographic information about themselves and their caregiving situation. This information allows CAN to deliver educational resources that meet their specific needs and provides up to date research for CAN to adapt and improve its materials. Family Caregiver members receive a monthly e-letter, links to webinars, toolkits and care coordination platforms all completely free of charge.

In January 2013, a new website launched to deliver improved, updated and interactive content, meeting the expectations of today’s e-connected caregivers.

Population(s) Served
Caregivers

Where we work

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.

  • Who are the people you serve with your mission?

    Caregiver Action Network is the nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. CAN serves a broad spectrum of family caregivers ranging from the parents of children with significant health needs, to the families and friends of wounded soldiers; from a young couple dealing with a diagnosis of MS, to adult children caring for parents with Alzheimer’s disease.

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • What significant change resulted from feedback?

    For too long the healthcare landscape has viewed the typical family caregiver as a White 48-year-old woman with school age children caring for her aging mother when in fact family caregivers are a diverse group caring for equally diverse populations. To address this problem, in 2023 Caregiver Action Network will work directly with family caregivers from diverse backgrounds to inform the development of culturally appropriate and relevant educational materials and messages. While many organizations have endeavored to quantify the diverse caregiver population, CAN aims to take the next step, and serve diverse caregivers.

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive

  • What challenges does the organization face when collecting feedback?

    The people we serve tell us they find data collection burdensome, It is difficult to find the ongoing funding to support feedback collection

Financials

NATIONAL FAMILY CAREGIVERS ASSOC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

NATIONAL FAMILY CAREGIVERS ASSOC

Board of directors
as of 01/17/2023
SOURCE: Self-reported by organization
Board chair

Melissa Rowley

Mar'age

Term: 2019 - 2023

Marion T.R. Watkins

Melissa Rowley

Nymbl Science

Michelle Baker

Ketchum

Joseph Delahunty

Joff Masukawa

Diligentia, LLC

Denise Henry Morrisey

Capitol Counsel

Michael Shaughnessy

TMP Government, LLC

Andrea Cohen

HouseWorks

Anne Tumlinson

Daughterhood

Dhruv Vasishtha

Patient Ping

Helen Adeosun

CareAcademy.com

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 1/17/2023
info Candid has made improvements to the race and ethnicity options.

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female

Race & ethnicity

Gender identity

 

Sexual orientation

No data

Disability

No data

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 01/17/2023

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
Policies and processes
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.