SILVER2023

Sick Cells

Elevating the voices of the sickle cell disease community

LISLE, IL   |  www.sickcells.org

Mission

The mission of Sick Cells is to improve the care of and quality of life for people living with sickle cell disease (SCD), including ending the stigma of SCD, by shaping public policy, educating the SCD community to be engaged advocates, and creating greater awareness in the general public overall. To these ends, Sick Cells is working to: 1. Elevate the voices of the patients and the entire SCD community, 2. Educate decision-makers about the grave challenges, unique needs, and sharp disparities this community faces, and 3. Unite and empower the SCD community to effectively advocate on important topics and policies.

Ruling year info

2017

President, Co-Founder

Ashley Valentine

Main address

1042 Maple Ave Ste 103

LISLE, IL 60532 USA

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EIN

81-3481633

NTEE code info

Alliance/Advocacy Organizations (E01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Faces of Sickle Cell Disease (SCD) Program

Our Faces of SCD initiative was the initial keystone program that inspired the formation of Sick Cells. This program captures the stories of patients and caregivers. Sick Cells seeks to tell the untold stories within the community as well as expand awareness of the diversity of the SCD patient population to better represent the community as a whole.

Population(s) Served

The Sick Cells' Ambassador Program is a volunteer network of advocates dedicated to changing the landscape of sickle cell disease. There’s strength in numbers, so we’re empowering advocates to unite and spread awareness to our larger community.

Sick Cells created this program to put our own community at the forefront of conversations around SCD. Advocates and patients are often left out of critical conversations and opportunities and a shift was needed. By activating sickle cell advocates and educating each other on policy issues, we look to boost the impact our collective voice can have in the real world.

Population(s) Served

Where we work

Videos

Our Sustainable Development Goals

SOURCE: Self-reported by organization

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Financials

Sick Cells
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
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  • Compare nonprofit financials to similar organizations

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Sick Cells

Board of directors
as of 06/26/2023
SOURCE: Self-reported by organization
Board chair

Ashley Valentine

Maxwell Matite

Adrienne Bell-Cors Shapiro

Terri Booker

Dorinda Lawrence-Sims