GOLD2022

AdvocacyNJ

Skillman, NJ   |  http://www.advocacynj.com

Mission

The purpose of AdvocacyNJ will be to educate families, advocate for children in the educational setting, train professionals regarding special education, and promote best practices in all aspects of a child’s wellbeing as it relates to appropriate programming.

Ruling year info

2019

Executive Director

Erica Twitchell

Main address

88 Orchard Road Suite 2-10

Skillman, NJ 08558 USA

Show more contact info

EIN

83-2579729

NTEE code info

Alliance/Advocacy Organizations (S01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2019.
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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

NJ: The current total of children receiving FAPE through the Office of Special Education programs in the state of NJ is 216,258 (10/16) The total number of children in NJ with disabilities reported in 2011, was 1,256,571. While not all children who have been identified with a disability would qualify for special education services, the number could be much higher than 17% currently calculated with these reported numbers. The 2015-2016 reported number of written, signed dispute resolution complaints in the state of NJ was 286. The number of mediation requests was 898 and the number of due process complaints filed was 1234. With special education attorneys charging $250-400 hourly and requiring $3,000-10,000 for retainers, it remains cost prohibitive for some families to hire counsel to represent their child. Special Education Advocates in the current NJ market charge $150-250 hourly, with some requiring a retainer up to $10,000.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Advocacy Services

The purpose of AdvocacyNJ is to educate families, advocate for children, train professionals, and promote best practices in all aspects of a child’s wellbeing.

1. Effectively spread awareness of within our education system related to mental health, medical diagnosis, educational best practice, etc.

2. Development of trainings and resource materials:
- Doctors, clinicians, therapists
- Teachers and Administrators
- Business, religious institutions, and other non-profits to become collaborators in creating systemic change
- Parents
- Kids

3. Funding to provide crisis intervention when needed and diagnostic evaluations to children

4. Funding to provide training to teachers and schools

5. Funding to provide collaborative advocacy support to more people regardless of ability to pay

Population(s) Served
Families
People with learning disabilities

Where we work

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Per the 2010 census, 2,022,136 children under the age of 18 years old make up the population of NJ. The services of AdvocacyNJ could be applicable to children in some capacity if participating in an educational setting, even without the need for special services.

Federal Data:
14%, 7 million (2018) out of 50.6 million (2016) of all public school students were receiving special education services ages 3-21. (addendum 4-5)

Approx 20% of children have a language based learning disability, 17% of children have a developmental disability, and 20% of children will experience a mental disorder any given year. (addendum 6)

All research agrees that the earlier intervention happens for developmental or learning disabilities, the greater outcomes.

Early Intervention infants and toddlers receiving services 1991 1.77% of population (194k), 2018 3.26% (389k) 0-5 years. Only 30 states have adopted an infant-toddler credential for individuals working with the 0-5 population. (addendum 7)

Each state has a parent resource center or organization that is provided funding. The feedback from our focus groups are:
Their services are limited or they are too busy to help.
They seem to only help “certain people” because of their funding parameters.
People do not know they exist.
They are providing out of date or incorrect information for various reasons.

Our main goal through AdvocacyNJ is to make a systemic impact in the education system across New Jersey. AdvocacyNJ is working to: provide advocacy services to families to ensure their children FAPE, provide a resource library with self advocacy resources, educational, and clinical resources, provide and/or sponsor educational training workshops.

1. Providing Advocacy Services
2. Resource Database Creation:
- agreement and/or training protocol with clinicians, doctors, therapists to be in active database related to effective collaboration between their work and the education system.
3. Scholarships
- Scholarship process to be created appropriate for each type being offered. Review of scholarship applications at monthly board meeting to approve funding. Child educational or clinical evaluations, Teacher training scholarships, Classroom supply scholarships
4. Educational Workshops
- Speaking/Training events to be coordinated with qualified professionals and/or other non-profit organizations to educate parents and professionals.

The goal will be to establish a pay-for-service model, donation income stream, and curriculum/podcast revenue to diversify the income and create a wider area of impact.

At this time, our board consists of capable individuals to target each area of service. An advisory board is currently being organized in order to further develop our strategic goals. The following areas will be addressed to move the organization forward.

Grants/Funding:
A primary focus of this position is to gather information and coordinate/write grant proposals for government, state, corporate, and foundation funds as applicable.
Research and identify potential individual, state, corporate, and foundation funding sources.
Ensure the development, writing, and submission of funding proposals and grant applications.
Establish timelines to complete the collection of relevant data/information for proposal content, internal routing and approvals, and submission to funding sources.
Maintain accurate and timely records of research activities, funding logs and reporting deadlines, grant funding resource materials and publications.
Monitor program compliance for continuity as related to contract/grant administration.

Editor:
Responsible for the writing of widespread development of communication vehicles possibly including fundraising, marketing, correspondences, proposals, presentations, etc.
Emailed newsletter monthly in collaboration with PR
Press releases as applicable to newspapers
Fostering community opportunities for PR in local print and news sources.

Events Coordinator/PR/Social Media:
Responsible for the ideation and execution of partnerships with potential supporters of AdvocacyNJ to organize events, PR opportunities, etc.
Management of social media accounts
Oversight of networking opportunities for Executive Director: cost/benefit of engagement.

Finance/Accounting:
Provide financial oversight and ensure transparency.

Advocacy Coordinator:
Provide oversight of the day-to-day operations of AdvocacyNJ.
Provide continuity of services to families and public contacts.
Act as liaison between Executive Director, Executive Board, and Advisory Board

Website:
Improve and update AdvocacyNJ website
Create content and changes regularly as needed
Assist with SEO rankings

Legal:
Provide legal insight for special education as needed and policy within the organization.

Education:
Provide insight into the current environment within education.
Represent AdvocacyNJ at conferences or community events as needed as a teacher liaison.

In 2019,
AdvocacyNJ directly advocated for 64 children. This resulted in:
- 8 collaborative out-of-district placements
- 12 initial IEPs or 504’s after being denied
- 5 mediation sessions with the state of NJ
- increased services/research-driven curriculum in the schools
- countless identified disabilities through clinical and professional referral,

- We reached approx. 3,400 individuals through social media, conferences, events, etc. with our various resources.

- Developed relationships with likeminded organizations across US which have widened our mission's effectiveness.

Our goal is to have more involvement from an advisory board to increase our effectiveness. And, promote an advocacy training to have more advocates to assist more families.

Financials

AdvocacyNJ
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

AdvocacyNJ

Board of directors
as of 06/13/2022
SOURCE: Self-reported by organization
Board chair

Maryellen Aland

Dr. Katie Riewe

Megan Harrison

Jessica Ratner

Organizational demographics

SOURCE: Self-reported; last updated 6/13/2022

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Gay, lesbian, bisexual, or other sexual orientations in the LGBTQIA+ community
Disability status
Person with a disability

Race & ethnicity

Gender identity

 

Sexual orientation

No data

Disability

No data