A Breath of Hope Foundation for Nmo

No one fights alone

Winter Springs, FL   |  https://spark.adobe.com/page/KhePmmf6kH3ad/

Mission

A Breath of Hope foundation for neuromyelitis optica works with patients to provide services for patients and their caregivers. by empowering patients and providing services and building public awareness, educating patients and their caregivers, funding on-going neuromyelitis optica research and, by financially helping patients find and pay for services that they need. we want to help patience and caretakers get back on their feet and help them adjust to their new normal.

Ruling year info

2020

Founder/CEO

Ashlee Olsen

Main address

P o box 195661

Winter Springs, FL 32719 USA

Show more contact info

EIN

85-2869478

NTEE code info

Fund Raising and/or Fund Distribution (G12)

IRS filing requirement

This organization is required to file an IRS Form 990-PF.

Sign in or create an account to view Form(s) 990 for 2022, 2021 and 2020.
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Programs and results

What we aim to solve

SOURCE: Self-reported by organization

We are working to address the need for financial support to those that live with NMO. We are also working towards providing educational materials to help patients better advocate for themselves.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Mission

Here is or mission

A Breath of Hope foundation for neuromyelitis optica works with patients to provide services for
patients and their caregivers. by empowering patients and providing services and building public
awareness, educating patients and their caregivers, funding on-going neuromyelitis optica
research and, by financially helping patients find and pay for services that they need. we want to
help patience and caretakers get back on their feet and help them adjust to their new normal.

Population(s) Served

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of online groups served

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Related Program

Mission

Type of Metric

Context - describing the issue we work on

Direction of Success

Increasing

Total dollars received in contributions

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Related Program

Mission

Type of Metric

Context - describing the issue we work on

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Helping those in the NMO community.

We plan on making the above a reality by fundraising and partnering with agencies to help patients manage everyday life.

Fundraising is key. By creating funds we are better able to support patients monetarily.

We’ve gained our nonprofit status me we’ve written out our plans. We’ve created profiles on Facebook and a website to help patients find us.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To strengthen relationships with the people we serve

  • Which of the following feedback practices does your organization routinely carry out?

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

A Breath of Hope Foundation for Nmo
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

A Breath of Hope Foundation for Nmo

Board of directors
as of 02/22/2022
SOURCE: Self-reported by organization
Board chair

Ashlee Olsen

A Breath Of Hope Foundation foe NMO

Heather Dawn Sowalla

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Not applicable
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Not applicable
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable

Organizational demographics

SOURCE: Self-reported; last updated 2/1/2021

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person with a disability

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 02/01/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.