Skraban-Deardorff Syndrome Foundation
Advancing the Science. Smiles Included.
Mission
The Skraban-Deardorff Syndrome Foundation has been formed by parents and medical professionals worldwide to foster relationships and organize resources to benefit individuals with Skraban-Deardorff Syndrome. Our goal is to raise funds for research, promote public awareness, and align scientists, patients, parents, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to treating people with Skraban-Deardorff Syndrome and related diseases.
Ruling year
2022
Principal Officer
Lisa Patterson
Main address
14039 US Hwy 74 E Suite A6 #123
Indian Trail, NC 28079 USA
EIN
88-2790552
NTEE code
Birth Defects (G20)
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Welcoming
When an individual is diagnosed with a specific condition, they and their caregivers frequently face the challenge of navigating the next steps independently. Recognizing this, our organization has established a Welcoming Program designed to guide and support these individuals, their families, and caregivers. This initiative offers a variety of resources, including detailed information about the condition, connections with a global network of families facing similar situations, and a collection of uplifting and inspiring stories shared by members of our community.
Where we work
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
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Skraban-Deardorff Syndrome Foundation
Board of directorsas of 01/27/2024
Lisa Patterson
Kyle Hillman
Katie Grand
Dr. Matt Deardorff
Cynthia Lang
Dr. Cara Skraban
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
Gender identity
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Disability
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