SILVER2024

Generation Lyme

Empowering people facing Lyme disease

New York, NY   |  https://genlyme.org

Mission

Generation Lyme is dedicated to empowering people facing tick-borne diseases. We host weekly Meet-Ups, share patient stories, host The Generation Lyme Podcast, provide critical educational and practical resources for patients and supporters, participate in advocacy and awareness initiatives, and create events for our global community. Combatting the effects of Lyme disease requires community support. With no cure or a reliable diagnostic, patients frequently face medical gaslighting and dismissal, often leading to isolation, depression, and poor mental health. That's where Generation Lyme steps in. We provide a space for patients and supporters to connect, get answers, and know they're not alone. No one should go through Lyme alone. Generation Lyme exists to ensure no one has to, ever.

Ruling year info

2023

Principal Officer

Brooke Stoddard

Co Principal Officer

Jennifer Hoffmann

Main address

322 West 52nd Street PO Box 337

New York, NY 10036 USA

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EIN

88-4366832

NTEE code info

Alliance/Advocacy Organizations (E01)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Meet-Ups

Generation Lyme hosts online Meet-Ups several times each week for patients, parents, and supporters. Meet-Ups are Lyme disease support groups. They’re places where people can to ask questions, share thoughts and feelings, or just listen to connect with other patients and supporters facing tick-borne disease.

Population(s) Served
People with diseases and illnesses

Where we work

Financials

Generation Lyme
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Generation Lyme

Board of directors
as of 04/24/2024
SOURCE: Self-reported by organization
Board co-chair

Brooke Stoddard


Board co-chair

Jesse Ruben

Jennifer Hoffmann

Organizational demographics

SOURCE: Self-reported; last updated 3/25/2024

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

No data

The organization's co-leader identifies as:

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Race & ethnicity

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