PLATINUM2024

NORTHWEST SARCOMA FOUNDATION

No one should face sarcoma alone

Seattle, WA   |  www.nwsarcoma.org

Mission

We provide hope, education, and support to sarcoma patients and their families in the Pacific Northwest, while investing in research to improve cure rates for sarcoma cancers.

Ruling year info

1997

Executive DIrector

Jo McNeal

Main address

117 E. Louisa Street #443

Seattle, WA 98102 USA

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Formerly known as

Northwest Memorial Sarcoma Foundation

EIN

91-1717600

NTEE code info

Alliance/Advocacy Organizations (P01)

Cancer Research (H30)

Counseling Support Groups (F60)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Every year 13,000 individuals are diagnosed with a Sarcoma cancer in the US. Due to the relative rarity of the disease, the options available for treatment, support, and education are highly limited. Additionally, rare cancers often exact a larger financial and emotional burden on families. We provide direct financial support to these patients and their families.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Foundation Help$

Need-based financial assistance to adult sarcoma patients living or being treated in our region.

Population(s) Served
Adults
People with diseases and illnesses

Virtual group meet-ups for Sarcoma patients, survivors, and those who have lost someone to Sarcoma.

Population(s) Served
Families
People with diseases and illnesses

Need-based financial assistance for pediatric sarcoma patients living or being treated in our region.

Population(s) Served
Children and youth
People with diseases and illnesses

We provide directed research gifts to sarcoma specific research taking place in our region based on potential impact.

Population(s) Served
Family relationships
Health
Academics
Age groups

Providing direct access to Sarcoma researchers. Researchers share what has developed in their area of expertise in Sarcoma research.

Population(s) Served
People with diseases and illnesses
Academics
People with diseases and illnesses
Academics

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of clients served

This metric is no longer tracked.
Totals By Year
Type of Metric

Other - describing something else

Direction of Success

Increasing

Context Notes

Metrics are an accumulation of participants in our various programs: Help$ Grants, Researcher Update Nights, Sarcoma Journal Clubs, and care packages.

Number of groups/individuals benefiting from tools/resources/education materials provided

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Metrics are an accumulation of participants in our various programs: Help$ Grants, Researcher Update Nights, Sarcoma Journal Clubs, and care packages.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Our goal is to ensure no one faces Sarcoma alone, and that investments are made in Sarcoma research and treatment options.

We are adding programs to provide education to our patients, families and supporters which include direct access to the researchers through Research Update Nights.
We provide a group setting for patients, caregivers, and those who have lost someone to Sarcoma to not feel isolated and be able to communicate together their feelings associated with Sarcoma.
We bring together researchers from across our five states to collaborate and discuss current research, through our Sarcoma Journal Club.
We provide care packages to patients and to those who have lost someone to Sarcoma, to futher connect our Sarcoma community.

Expand our Corporate Partnership program to help fund the important work of the organization.
Host virtual fundraising events to support programs.
Host hybrid Dragonslayer walk fundraising events in mutiple cities across our service area to support the mission of the organization.

We have expanded in 2020 with our Casual Chat groups. One group in particular has seen international response by having an attendee from Moscow, Russia. Proving the global need to connect survivors of Sarcoma Angels. We have added additional groups in 2021 to meet the needs of our patients and their families.

Next we are adding care packages for patients and survivors of Sarcoma angels. We are expanding our Researcher Update Nights to include research happening outside of the PNW.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify bright spots and enhance positive service experiences, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.)

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback

Financials

NORTHWEST SARCOMA FOUNDATION
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

NORTHWEST SARCOMA FOUNDATION

Board of directors
as of 04/30/2024
SOURCE: Self-reported by organization
Board co-chair

Chappie Conrad, MD

University Texas

Term: 2024 -


Board co-chair

Jeffrey Sweeney

CBRE

Term: 2011 -

Jeff Sweeney

Retired

John Anderson

Nike

Ernest Conrad

University of Texas

Ian Walsh

Baufest Consulting

Michael Wagner

FredHutch Cancer Center

Nick Casillas

CommVault

Bill O'Connell

CBRE

Michael Lillie

Deciphera

Mike Bell

Providence Medical

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 6/7/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability

No data

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 08/02/2022

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We disaggregate data by demographics, including race, in every policy and program measured.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.