In the next year, our goals are focused on strategic planning and building additional relationships with other organizations and research partners. Part of our planning involves continuing to reach out to other organizations to form alliances in order to better educate and support myositis patients.
Plans also include the start an outreach program for physicians to better inform them of who we are, what we can provide, and how we can work together to benefit myositis patients.
We are currently forming our strategies in which we will use to make our goals a reality. It will involve volunteers to assist in important tasks, along with our working board of directors.
Through the use of our current affiliations with other organizations, we will be able to rely on them to help provide some of the necessary information in which we will need to accomplish our goals.
Our ability, through our Facebook support groups and our website's myositis network, to reach patients directly provides us with a huge advantage in gaining knowledge of what is needed, enlisting the help of patients directly, and in getting feedback about how we are doing. As an all patient and caregiver board of directors, we have direct experience with what life is like with myositis and are better able to determine the needs of the community.
There are many untapped resources and our ability to gain contact to those will also be an advantage in moving forward.
Through the use of technology and members who have advanced experience in the technology fields, we have ways of implementing programs and services that would otherwise be too expensive for a newer nonprofit organization.
Through Board Member self-assessments and an overall board assessment, we will be able to fairly determine our progress.
But more so, the members of our nonprofit organization and our ability to reach them directly can provide immediate feedback on our progress and ways we can improve. Through the use of tracking on various campaigns we are able to determine effectiveness and make necessary adjustments.
We have created the first ever Myositis Online Video Support, Activity, and Educational sessions for Myositis patients, caregivers, and the general public including our monthly video Laughter Yoga session. Our Financial Assistance Program helping patients with medical-related, medical-travel, and vital living expenses. We have created and nurtured our 3 online support groups with membership increasing. Worked together with prominent myositis researchers and clinicians to for patient surveys and education, along with forming our Medical Advisory committee. We have partnered with pharmaceutical companies for clinical trial matching and to assist in recruitment efforts.
Next, and based on outcomes of strategic planning, our plans for the near future include:
- Build upon and develop new relationships with pharmaceutical companies
- Building upon our nonprofit brand and a strategic communications plan to better focus on providing for our members, supporters, and followers.