EDS WELLNESS

The Integrative Healing Brochure for Ehlers-Danlos syndrome (EDS) was a year-long collaborative project between Kendra Neilsen Myles, EDS Wellness, Dr. Clair Francomano, Charles Thorpe, Emily Telfair, N.D., and included the help of a professional editor and graphic designer. If you are interested in downloading or printing the brochure yourself, please send an email to [email protected], or submit a request through the contact form below.
The final brochure PDF will be uploaded to this site, StrengthFlexibilityHealthEDS.com, and to Wellapalooza, once it is finalized. Print versions will be available through Dr. Clair Francomano’s office and EDS Wellness, Inc.
Full-Color PDF EDS Integrative Healing Brochure – http://edswellness.org/blog/2016/07/05/eds-integrative-healing-brochure/

Integrative Healing Education Series is on-going and also available on our eLearning platform - www.edswellness.org/learn-with-eds-wellness

About EDS Wellness’ 2018 Webinar Series:
Edited video webinars from our 2018 ‘Integrative Strategies for Managing Hypermobility Disorders and Related Conditions, Restoring Function and Living Well‘ educational program and initiative will be added each month throughout the year starting in January. Information on each webinar and all of our classes, groups and more will be shared and updated on event FB pages, our website, other social media platforms and via email. Please sign up for our email list & newsletter to ensure you are notified of upcoming events and specific event details. Go to http://edswellness.org/subscribe/.
Example of Topics Covered (not complete list of topics, nor is this list final.):
Acupuncture
Success Coaching for Teenagers/Young Adults
Craniosacral Therapy
Hypermobility in the Dance Community
Massage
Bary Ingel – President and Founder of the International Pain Foundation
Reiki
Nutrition
Evidence basis for Mindfulness Strategies and Meditation in the Management of Chronic Pain and Chronic Illness
Natural Movement, Restorative Exercise & the Biomechanics of Hypermobility
Approaches to Parenting the Hypermobile Teen (Dr. Delia Chiaramonte from University of Maryland)
About EDS Wellness:
EDS Wellness, Inc. is a 501(c)(3) nonprofit organization on a mission to provide virtual & in-person health & continuing medical EDUCATION on all hypermobility disorders and related conditions, to facilitate proper DIAGNOSIS, ensuring better patient outcomes, and to develop & implement research-based SOLUTIONS to help patients restore function & live well.
Learn more on the About EDS Wellness page – http://edswellness.org/about-eds-wellness-inc/
View “About EDS Wellness” Videos via the Strength/Flexibility/Health/EDS YouTube Channel – https://www.youtube.com/playlist?list=PL5PSyRhVEkf0WIUufspW90kvg1vHVVbOR
Watch our 2017 Year In Review Video to See What We’ve Already Accomplished & How Far We’ve Come! Go to – https://youtu.be/GyA4W_7BnLk.
Donate to Help Support EDS Wellness’ 2018 Video Webinar Series! Or, Donate to Help Support Any of Our Other Initiatives (mentioned above), by going to http://edswellness.org/donations/.
If making a donation to a specific program or initiative, or in honor of someone, please make a note when donating. Thank you!

What are Hypermobility Related Disorders, such as EDS & HSD?’ is the 1st class/video webinar in EDS Wellness’ Hypermobility/EDS “Bootcamp” Series and serves as the first step in our implementation of this new health & patient education program. If you are newly diagnosed with EDS, HSD or another type of Hypermobility Related Disorder, or highly suspect that you may have one of these conditions — this Hypermobility/EDS Education Boot Camp is for you!
This class/workshop will provide an understanding of what hypermobility related disorders are, what they are not, and what they may be. Conditions discussed include EDS, HSD, and related conditions. We will discuss biology, microbiology, biomechanics, and the various systems in the body and how they work together – inside and out. We will discuss the broader “hypermobility” umbrella, including related conditions, and learn the updated & correct terminology. You will come out with a deeper understanding of hypermobility as a whole, and a better understanding of the specifics of EDS, HSD, and other hypermobility disorders. We will also briefly discuss “comorbid” conditions, leaving you feeling empowered to take baby steps towards improving your overall health and well-being.
We are holding 1 educational boot camp class/workshop per month for the next 4 months, while also gathering feedback since we’ve not offered this program before. Feedback is always welcome before, during and after! A program evaluation survey will be provided to all participants. Send an email to [email protected], or use the contact form on our website.

By scheduling a call

The EDS Wellness HelpLine phone line is available on certain days each week, based on the availability of our volunteers. The HelpLine offers limited one on one private calls, scheduled in 15-minute time slots. Please make sure to check when the HelpLine phone line is open, as the schedule changes each week. Please remember that all private calls with HelpLine volunteers are scheduled in 15-minute increments – one session per person per day. Availability of private calls varies based on the availability of our volunteers, who devote their time freely to our HelpLine. Please be courteous and cancel within 24 hours of your scheduled HelpLine call.

Via Email

For general questions regarding Ehlers-Danlos syndrome (EDS), you may email one of our Helpline volunteers at [email protected], or use the contact submission form below. We aim to respond within 24-48hours.