GOLD2021

Global Vitiligo Foundation

aka GVF   |   Chicago, IL   |  https://globalvitiligofoundation.org/

Mission

To improve the quality of life for individuals with vitiligo through education, research, clinical care, and community support.

Ruling year info

2016

President

Dr. Iltefat Hamzavi

Main address

1932 S Halsted St Suite 413

Chicago, IL 60608 USA

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EIN

81-3950571

NTEE code info

Medical Specialty Research (H90)

Alliance/Advocacy Organizations (T01)

Alliance/Advocacy Organizations (E01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

GVF Annual Scientific Symposium

Each year GVF holds a call for abstracts for its annual scientific symposium. The symposium takes place on the Thursday before the American Academy of Dermatology (AAD) conference. During the symposium attendees have the opportunity to receive an update on the work of GVF and hear research abstracts from some of the best researchers and clinicians in the world.

Population(s) Served
Adults
Academics

Where we work

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.

  • Who are the people you serve with your mission?

    Physicians and researchers who specialize in vitiligo, people with vitiligo, and their family members.

  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Focus groups or interviews (by phone or in person), Community meetings/Town halls, Constituent (client or resident, etc.) advisory committees,

  • How is your organization using feedback from the people you serve?

    To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    In discussions with the support group leaders it became clear that a calendar clearing house was needed for all support groups. We quickly moved to design and set up a calendar form and process for support groups leaders. This way there is ONE calendar that all groups can use to share information.

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board,

  • How has asking for feedback from the people you serve changed your relationship?

    It makes them feel like they have a stake in the organization, that they matter, that their struggle matters, and that we are here to help them.

  • Which of the following feedback practices does your organization routinely carry out?

    We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We act on the feedback we receive,

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, We don’t have the right technology to collect and aggregate feedback efficiently, It is difficult to find the ongoing funding to support feedback collection, Staff find it hard to prioritize feedback collection and review due to lack of time,

Financials

Global Vitiligo Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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lock

Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Global Vitiligo Foundation

Board of directors
as of 06/17/2021
SOURCE: Self-reported by organization
Board chair

Dr. Iltefat Hamzavi

Henry Ford Health Systems

Term: 2016 - 2022

John Harris, MD, PhD

University of Massachusetts Medical School

Henry Lim, MD

Henry Ford Hospital

Kim Boyd

Comerica Bank

Pearl Grimes, MD

The Vitiligo & Pigmentation Institute of Southern California

Amit Pandya, MD

Palo Alto Foundation Medical Group

Richard Huggins. MD

Henry Ford Hospital

Efrem Kamen

Puravida Funds

Seemal Desai

The University of Texas Southwestern Medical Center; Physician Innovative Dermatology

Davinder Parsad, MD, FRCP

Postgraduate Institute of Medical Education & Research

Samia Esmat, MD

Cairo University

Vicki Tiahrt

Tiahrt Enterprises, LLC

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 6/17/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
Asian American/Pacific Islanders/Asian
Gender identity
Male
Sexual orientation
Decline to state
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 06/17/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.