Medical Research

Carson Leslie Foundation

helping kids fight cancer

Mission

Carson Leslie Foundation's Collaborative Mission: Enrich the lives of teens in the cancer battle Identify and fund childhood brain cancer research, focused on medulloblastoma Federal - State - Local advocacy and action

Ruling Year

2010

Founder

Mrs. Annette Leslie

Main Address

6810 Deloache Ave

DALLAS, TX 75225 USA

Keywords

childhood cancer, brain cancer, cancer research

EIN

01-0945033

 Number

3335185623

Cause Area (NTEE Code)

Fund Raising and/or Fund Distribution (H12)

Alliance/Advocacy Organizations (D01)

Alliance/Advocacy Organizations (T01)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2017, 2016 and 2015.
Register now

Social Media

Programs + Results

What we aim to solve

There is an extensive unmet need for advances in the pediatric medulloblastoma community. Medulloblastoma is the most common form of malignant brain tumor in children, yet it has received little focus in the cancer space. As with most health issues, education about the disease and the need for a cure is essential for those in the community to become involved. The Carson Leslie Foundation is dedicated to educating our entire nation about this disease and the need to push for a cure. Some facts about the disease include:  Medulloblastoma is the most common form of brain cancer in children, affecting an estimated 20% of the 28,000 children living with a brain tumor diagnosis.  The median age of diagnosis of medulloblastoma is 7 years and more than 70% of diagnoses are in children under ten years of age.  No cure exists for medulloblastoma.

Our Sustainable Development Goals

Learn more about Sustainable Development Goals.

3 17

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

CARSON'S CORNER - Teen Program at Children's Health-Dallas

CHILDHOOD BRAIN CANCER RESEARCH - medulloblastoma

ADVOCACY | AWARENESS | ACTION - Federal - State - Local

Where we work

Our Results

How does this organization measure their results? It's a hard question but an important one. These quantitative program results are self-reported by the organization, illustrating their committment to transparency, learning, and interest in helping the whole sector learn and grow.

SOURCE: Self-reported by organization

Number of families served in cancer treatment

TOTALS BY YEAR
Population(s) served

Adolescents (13-19 years)

Related program

CARSON'S CORNER - Teen Program at Children's Health-Dallas

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context notes

Provide Children’s Medical Center Dallas with Under Armour backpacks, filled with essentials and gifts for teens entering the hospital, as well as provided gifts for the teen closet.

Number of research studies conducted

TOTALS BY YEAR
Population(s) served

Adolescents (13-19 years)

Related program

CHILDHOOD BRAIN CANCER RESEARCH - medulloblastoma

Type of Metric

Context - describing the issue we work on

Direction of Success

Increasing

Context notes

1) $57,000 ASCO Young Investigator, focused on medulloblastoma 2) $100,000 Program Related Investment (PRI) in Stingray Therapeutics for development of immunotherapy treatment for medulloblastoma

Number of children with cancer taken on First Class outings

TOTALS BY YEAR
Population(s) served

Adolescents (13-19 years)

Related program

CARSON'S CORNER - Teen Program at Children's Health-Dallas

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context notes

2-4 first class outings for teens in the cancer battle (e.g, suite at Cowboys game, MAVs, Rangers, on-field experience, limo, food and drink) and 3 in hospital parties for patients and families.

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have they accomplished so far and what's next?

The Carson Leslie Foundation has an ambitious goal to bring less toxic treatment, leading to a cure, for pediatric medulloblastoma, the most prevalent brain cancer in children.

The Carson Leslie Foundation has a strategic plan to cure childhood medulloblastoma by incentivizing research in some of the most promising, yet underfunded areas of research.

Launched in 2010, the Carson Leslie Foundation (CLF) honors Carson’s last whispered wish: “momma, make sure they study those tumors in my brain because if those tumors can help some kid someday not die from cancer like I am, I’d like that – please help the next kid with cancer, it’s hard to have cancer.” – Carson Leslie Today, the Carson Leslie Foundation is a valued collaborator in the pediatric cancer space. As our work grows, our goal is to be come the go-to source for information for medulloblastoma. A recent article by the Dallas Morning News Article, published October 2019, highlighted our work with Cancer Prevention Research Institute of Texas CPRIT, a $6 billion cancer research institute and the largest state sponsored cancer research institute in the United States, focusing on expediting innovation in cures and prevention. “CPRIT has funded ground-breaking cancer research and prevention programs in Texas, making our state a leader in the fight against this deadly disease…. CPRIT also brings people together who are dedicated to the same cause, such as Annette Leslie. … Annette Leslie formed the Dallas-based Carson Leslie Foundation and was invited to join CPRIT’s Patient Advisory Council on Childhood Cancers. Through her advocacy, CPRIT has expanded its role in pediatric cancer, including a $3.2 million program to fund research directed at less toxic treatments for childhood brain cancer.”

We measure our progress by advances made in pediatric cancer research. Our founder serves on the CPRIT Advisory Counsel for Childhood Cancers. Thanks to The Carson Leslie Foundation’s involvement, CPRIT has increased the proportion for Childhood Cancer from barely 3% to 12% of CPRIT’s overall $3 billion portfolio. CPRIT provides a local source of world-class expertise in pediatric brain cancer and exponential match funding to magnify the impact of the Carson Leslie Foundation’s own resources.

On January 12th and 13th, 2020, CPRIT and the Carson Leslie Foundation will hold the first gathering of top researchers focused only on childhood brain cancer. This inaugural group will meet to discuss, identify and encourage collaboration within the childhood brain cancer space. The outcome of Researcher’s RoundUp will help frame CPRIT'S Childhood Brain Cancer RFA’s.

External Reviews

Photos

Financials

Carson Leslie Foundation

Need more info on this nonprofit?

Need more info on this nonprofit?

FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2017, 2016 and 2015
  • A Pro report is also available for this organization.

See what's included

Operations

The people, governance practices, and partners that make the organization tick.

Need more info?

FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2017, 2016 and 2015
  • A Pro report is also available for this organization.

See what's included

Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Not Applicable

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Not Applicable

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Not Applicable

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Not Applicable

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Not Applicable