PLATINUM2024

DEVELOPMENTAL FX-THE DEVELOPMENTAL & FRAGILE X RESOURCE CENTRE

therapy that fits

aka Developmental FX   |   Denver, CO   |  www.developmentalfx.org

Mission

Our mission is to prepare children with developmental differences for a bright future of engaged belonging by equipping them, their families, therapists, and teachers via innovative programs in Colorado and around the world.

Ruling year info

2003

Executive Director, Co-Founder

Tracy Murnan Stackhouse

Main address

3615 Martin Luther King Jr. Blvd.

Denver, CO 80205 USA

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EIN

02-0673474

NTEE code info

Rehabilitative Medical Services (E50)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

DFX has a strategic vision of our future that focuses on: Impact: expansion of our impact on the lives of children with developmental disabilities through our mission-driven programs in the Clinic, Clinic in the Community, and Learning Journeys, creating systemic change rooted in communities of understanding and belonging Innovation: exploration of innovative techniques related to providing Therapy that fits through research, elaboration, advocacy, and dissemination of best practices Infrastructure: investment in capacity building for leadership and clinical expertise as well as new, expanded clinic space We are actively seeking individual, foundation, and corporate support to underwrite all areas of this critical and innovative work as we scale our activities to achieve this vision.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

DFX Multidisciplinary Clinic

DFX provides individualized, transformative pediatric occupational therapy, speech therapy, psychology, and multi-disciplinary services for children with developmental differences, all under one roof in our Denver clinic, or via telehealth. Our Therapy that Fits philosophy meets every child exactly where they are and provides supports to make progress in a manner that matches their needs and strengths. We set the standard of care and provide highly individualized intervention specific to each client we treat. By assessing each childs developmental levels and individual differences, underlying challenges can be better understood and the difficulties that a child is experiencing can be resolved more quickly and more fully. We aim to improve understanding within the family and collaboration between all professionals relevant to the child.

Population(s) Served
Children and youth
People with disabilities

We share our expertise with families, educators, clinicians, and others in a childs ecosystem, offering them the tools to understand and administer to the complex, individual needs of each child. This includes wraparound support whereby clinicians work with families in their homes and interface with teachers and other care providers. In addition, we offer consultation, mentoring, and training in schools and early learning programs to help educators understand the children in their care through a developmental lens. To take this a step further, we created DFXConnect, a program that enables early childhood caregivers to reach out to a DFX clinician with specific questions and access an online resource library with handouts in both English and Spanish that provide actionable strategies for addressing challenging behaviors in the classroom, and includes a lending library of therapeutic materials that schools can experiment with before deciding to purchase.

Population(s) Served
Adults
Children and youth

DFX staff include leaders in their fields. Capitalizing on this expertise, we have a training program that provides direct and indirect training platforms to share our philosophy with professionals and families world-wide. We disseminate our models of care to build inclusion with clinicians, educators, parents, and providers around the world through in-person and virtual courses, workshops, consultations, and podcasts.

Population(s) Served

We engage in research to document our innovative approaches to care, share our strengths-based approach to supporting those who are neurodiverse, and connect with thought-leaders and policymakers to advocate for systemic change that will enable children who are neurodiverse and their families to have equitable access to the transformative care that will allow them to thrive. Tracy Stackhouse, DFX's Executive Director and co-founder, is a member of the National Fragile X Foundation Clinical Research Consortium, the Scientific and Clinical Advisory Committee, and the NFXF Advisory Council, and an expert advisor to the CDC and RTI Fragile X Priorities Panel. Tracy and other members of our staff are engaged in research projects and regularly publish in academic journals, and teach courses for DFX and other organizations.

Population(s) Served
Adults
Adults

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of children with developmental and/or mental health challenges receiving care at our clinic or through telehealth

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adolescents, Children, Infants and toddlers, Preteens, Family relationships

Related Program

DFX Multidisciplinary Clinic

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We anticipate serving at least 350 children in 2024 since we have moved to a larger space and hired additional clinicians.

Number of schools receiving consultations and training around creating a more inclusive environment for children with complex needs

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children, Adolescents, Infants and toddlers, Preteens, Adults

Related Program

Clinic in the Community

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Number of occupational therapists engaged via Learning Journeys (our online educational platform)

This metric is no longer tracked.
Totals By Year
Population(s) Served

Students, Teachers, Caregivers

Related Program

Clinic in the Community

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Increase in parent confidence and skills for administering to the needs of their child who has complex developmental and/or mental health needs (by at least 2 points on the COPM scale)

This metric is no longer tracked.
Totals By Year
Population(s) Served

Caregivers, Families, People with disabilities

Related Program

Learning Journeys

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

DFX uses the Canadian Occupational Performance Measure (COPM) to measure change in parent skills and confidence. An increase of 2 pts is considered statistically significant by COPM.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

DFX works to:

1. transform the lives of children who have neurodevelopmental disabilities and mental health challenges so that they can live to their fullest potential;

2. serve as a resource to families, educators, and other care providers to offer them the tools to understand and administer to the complex, individual needs of each child; and

3. share our knowledge and change the landscape of what transformative care looks like for children who are non-neurotypical and their families - locally, nationally, and globally.



Developmental FX works to achieve its mission through four program areas which together create a tapestry to create, disseminate, infuse, and deliver Therapy that fits, the individualized, integrated, multidisciplinary care that is our signature.

Research, Innovation, and Advocacy: Creating
Creating and catalyzing our work and Therapy that fits philosophy through research and development.

DFX Learning Journeys: Disseminating
Disseminating Therapy that fits to therapists, educators, and families around the world.

Clinic in the Community: Infusing
Sharing the principles of Therapy that fits beyond the clinic with schools, caregivers, and community programs in Colorado and beyond.

DFX Clinic: Delivering
Delivering Therapy that fits, the highest quality multidisciplinary care, in an atmosphere of respectful engagement.

DFX co-founder and executive director, Tracy Stackhouse, is a leading pediatric occupational therapist (OT) involved in clinical treatment, research, mentoring, and training regarding OT intervention for persons with neurodevelopmental disorders, especially Fragile X Syndrome and autism. Tracy is a member of the National Fragile X Foundation Clinical Research Consortium, the Scientific and Clinical Advisory Committee, and the NFXF Advisory Council, and an expert advisor to the CDC and RTI Fragile X Priorities Panel. The DFX board includes professionals from throughout the Denver community who are leaders in healthcare delivery and administration, education, and other areas of expertise.

Our highly-skilled clinical team is trained to provide multidisciplinary care adhering to our Therapy that fits philosophy via occupational therapy, psychology, and speech language pathology. DFX's is committed to our philosophy of Therapy that fits, in which our clinical team develops an individualized care regimen for each child that works within the context of the family situation vis-à-vis family culture, sibling relationships, work and school schedules, and other practicalities that can become barriers to successful treatment if not addressed. We also spend time to support families’ understanding of a child’s diagnosis of a developmental disability or mental health issue, and believe that all of this is critical to creating positive, lasting outcomes for the child.

With support from Caring for Denver Foundation, in 2023 we began a journey to expand further the mental health support we provide to children and their families. We will engage in ongoing quarterly capacity building and training in embodied equity for our clinical team. Leadership team members will have enhanced training opportunities that will qualify them to provide this training to other clinicians, thus spreading the impact far beyond our clinic to reach ever more families.

DFX treats more than 300 children in our Denver clinic annually, and we also offer consultations and treatment via telehealth to children in Denver, throughout Colorado, across the US and around the world. We have established mentoring programs with clinicians around the world, and in 2021 expanded our training and mentoring activities via podcasts and an online educational platform, Learning Journeys, through which we seek to share best practices in pediatric occupational therapy and Therapy that fits with clinicians, educators, parents, and others from anywhere in the world. Our podcast, produced in partnership with a pediatric clinic in Australia, has already been downloaded by over 40,000 people worldwide - including listeners from every continent!

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, It is difficult to find the ongoing funding to support feedback collection

Financials

DEVELOPMENTAL FX-THE DEVELOPMENTAL & FRAGILE X RESOURCE CENTRE
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Operations

The people, governance practices, and partners that make the organization tick.

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

DEVELOPMENTAL FX-THE DEVELOPMENTAL & FRAGILE X RESOURCE CENTRE

Board of directors
as of 04/08/2024
SOURCE: Self-reported by organization
Board chair

Jonathon Marshall

Omega Healthcare

Term: 2022 - 2024

Karen Onderko

Unyte ILS

Erica Brockman

Parent Advocate

Robert Baumgarten

The Standard

Heather Kuzma

Educator

Summer Villalta

Parent, Advocate

Matt Teeters

Alpine Bank

Jonathan Marshall

Omega Healthcare

Susan Willson

Lawyer (retired)

Jennifer Gifford

Lambdin & Chaney, LLP

Carol Reagan

Denver International Airport

Danny Miga

Southeast Denver Pediatrics

Bryan Wright

Assured Partners

Tracee Eisenberg

self-employed

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 3/15/2024

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability

Equity strategies

Last updated: 09/03/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.