Brain Injury Association of America
The Voice of Help, Hope, and Healing
Programs and results
What we aim to solve
Imagine not knowing the difference between a hairbrush, a toothbrush, and a paintbrush. A brain injury can change the way a person moves, talks, thinks, and acts. Brain injury can lead to physical, communicative, cognitive, and behavioral impairments that can be lifelong. Brain injury is not an event or an outcome, but the start of a misdiagnosed, misunderstood, under-funded neurological disease. Individuals who sustain brain injuries must have timely access to expert trauma care, specialized rehabilitation, lifelong disease management, and individualized services and supports in order to live healthy, independent, and satisfying lives. Every 9 seconds, someone sustains a brain injury Brain injuries can lead to physical, cognitive, and psychosocial or behavioral impairments ranging from balance and coordination problems to loss of hearing, vision or speech. Even so-called “mild” TBIs – often referred to as concussions – can have devastating consequences.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Awareness
The Brain Injury Association of America's programs include a number of educational programs committed to increasing awareness and prevention of brain injury. The Association publishes a quarterly professional magazine and an annual directory of brain injury rehabilitation services. Additionally the Association sponsors an annual conference an annual conference for brain injury facilities to learn the best business practices in the industry.
National Brain Injury Information Center (NBIIC)
The National Brain Injury Information Center (NBIIC) is a toll-free helpline staffed by brain injury experts. If you or a loved one has sustained a brain injury, a qualified expert is ready to assist.
Academy of Certified Brain Injury Specialists
ACBIS provides the opportunity to learn important information about brain injury, to demonstrate learning in a written examination, and to earn a nationally recognized credential. There are three certification options representing distinct levels of experience and supervisory skills: Certified Brain Injury Specialist (CBIS), Certified Brain Injury Specialist Trainer (CBIST), and Provisional Certified Brain Injury Specialist (PCBIS). Each certification requires demonstration of learning, through an examination, in the following domains:
TBI and diagnostic imaging
Medical, physical, cognitive, neurobehavioral, and psychosocial consequences of injury
TBI in pediatrics and adolescents, as well as aging with a brain injury
Concussions and mTBI, as well as disorders of consciousness
Rehabilitation philosophy, outcome measurement, and care management
Effect of injuries on families
Cultural, gender, and sexuality issues
Military populations
Neuropsychology
Participation and return to work
Where we work
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of phone calls/inquiries
This metric is no longer tracked.Totals By Year
Related Program
National Brain Injury Information Center (NBIIC)
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of people trained
This metric is no longer tracked.Totals By Year
Related Program
Academy of Certified Brain Injury Specialists
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of website pageviews
This metric is no longer tracked.Totals By Year
Related Program
Awareness
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of new certificants
This metric is no longer tracked.Totals By Year
Related Program
Academy of Certified Brain Injury Specialists
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
BIAA exists to help people recover, improve their quality of life, and find cures for brain injury.
Our strategic goals include:
1. Improving care and support for individuals with brain injury and their families.
2. Increasing awareness and understanding of brain injury and the Brain Injury Association.
3. Accelerating research for treatments and cures.
What are the organization's key strategies for making this happen?
Improving care and support for individuals with brain injury and their families.
• Deliver training and education to elevate the quality of care for individuals with brain injury.
• Increase the number of healthcare professionals and community members who are capable of serving individuals with brain injury and their families.
• Support federal legislative and regulatory proposals that strengthen and oppose those that impede access to care for individuals with brain injury and their families.
• Advocate for brain injury-specific initiatives at the federal level.
• Assist affiliates with state-level advocacy issues.
Increasing awareness and understanding of brain injury and the Brain Injury Association.
• Increase awareness and understanding of brain injury among policymakers, opinion leaders, and the general public.
• Develop and disseminate educational materials on brain injury to the general public.
Accelerating research for treatments and cures.
• Award grants in accordance with research priorities established by the Board of Directors using recognized best practices.
• Support research efforts across the brain injury community.
What are the organization's capabilities for doing this?
BIAA is the oldest and largest brain injury advocacy organization, inclusive of a nationwide network of chartered state affiliates, chapters, and support groups. BIAA’s strengths include award-winning information, education, and certification programs for individuals with brain injury, family members, and the brain injury specialists who care for them.
BIAA’s Academy of Certified Brain Injury Specialists (ACBIS) is the largest and most respected national program providing education, training, certification, and ongoing resources for multi-disciplinary specialists in the brain injury community.
The Association has high credibility among key federal policymakers and strong relationships with Washington-based health and disability organizations. BIAA has an exceptionally loyal and engaged consumer base: 96% of program participants plan to use Association services and programs in the future and 94% are willing to recommend the Association to a friend or colleague.
By acting as a clearinghouse of information and resources, initiating public policy change, promoting awareness and injury prevention, and hosting educational programs, the Brain Injury Association of America is the voice brain injury, offering help, hope and healing to millions of brain injury survivors across the nation, their families and the researchers, clinicians and professionals who provide treatment and long-term care.
What have they accomplished so far and what's next?
Since its inception, BIAA has:
• Provided individualized assistance to more than 1.2 million people who contact our information center for help.
• Certified more than 20,000 professionals as brain injury specialists
• Lead the nation in organizing, observing and celebrating Brain Injury Awareness Month in March engaging millions in the cause over the past 30 years.
• Established the Congressional Brain Injury Task Force, the bi-partisan, bi-cameral caucus of senators and representatives committed to the brain injury field.
• Four decades of public policy achievement in the U.S. Congress and among multiple Federal and State agencies including: the 1987 establishment of the TBI Model Systems of Care; 1990 amendments to the Individuals with Disabilities Education Act; 1996 Traumatic Brain Injury Act and its subsequent reauthorizations over the last 20 years as well as key provisions for service members with TBI in the 2008 National Defense Authorization Act and a remarkable victory for brain injury recovery through the inclusion of rehabilitation as an essential health benefit in the landmark Patient Protection and Affordable Care Act of 2010.
• Working in partnership with its affiliates and other collaborators, BIAA has been a driving force behind the enactment of sports concussion and safe return to play/law laws in every state in the nation.
What’s Next for Your Organization
Our bold plan for the future includes investment in the following priorities:
Extend BIAA’s reach
When it comes to recovery after brain injury, getting the right information at the right time is critical. The speed at which patients and their families can make well-informed medical decisions is directly related to the quality of their recovery. BIAA must expand services to reach more people, in more places, and in more ways.
Expand specialized training
Providing up-to-date training and education to the many professionals and family members responsible for the direct care of people living with a brain injury requires state-of-the-art curriculum, custom content, and the ability to connect in a variety of settings. BIAA must also be able to provide help to those in communities where access to a brain injury specialist is currently out of reach.
Amplify the voice of the brain injury community
BIAA advocates on behalf of millions of Americans demanding greater access to care, expanded brain injury research, adequate resources for state programs, and increased congressional awareness of brain injury issues. BIAA’s efforts have greatly influenced what resources currently exist for brain injury rehabilitation. We need your help to build on this successful history and increase resources for all living with brain injury.
Invest in new lines of research
The need to better understand brain injury, the impact it has as a chronic disease, and its role in causing other conditions has never been greater. BIAA is leading the way by investing in projects with potential for cures while
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Brain Injury Association of America
Board of directorsas of 11/21/2022
Shana De Caro
John Corrigan
Maureen Cunningham
Shana De Caro
Sheldon Herring
Benji Wolken
Susan Connors
Page Melton Ivie
Harold Ginsburg
Joanne Finegan
Nicole Godaire
Eleanor Perfetto
Tony Strickland
David Harrington
Kevin Bringham
Christopher Brisbee
Owen Perlman
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes