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AMERICAN MACULAR DEGENERATION FOUNDATION INC

Saving sight through research and education

Northampton, MA   |  www.macular.org

Mission

The mission of The American Macular Degeneration Foundation is to empower and inspire those affected by macular degeneration while advancing research and technology.

Ruling year info

1996

President

Chip Goehring

Main address

PO Box 515

Northampton, MA 01061 USA

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EIN

04-3274007

NTEE code info

Public Foundations (T30)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Research Grant Program

AMDF supports a growing portfolio of cutting edge investigations aimed at cures, treatments and preventives for AMD, as well as research designed to improve quality of life for those affected by AMD and the development of assistive technology to support the independence of patients with AMD-related vision loss. Grants are available to investigators at every stage of their career, including grants that encourage young scientists to enter and remain in the field of AMD research. In order to amplify the impact of AMDF's resources, several AMDF research grants are offered in collaboration with other, mission-aligned nonprofits.

Population(s) Served
People with vision impairments
Caregivers

In partnership with the National Alliance for Eye and Vision Research (NAEVR, a coalition of organizations that includes ophthalmic and optometric professionals, consumer advocates and industry, which is dedicated to educating Congress and the public about the economic and societal value of federally funded eye and vision research), AMDF supports maximum federal funding for AMD-related vision research through the National Eyer Institute. These efforts include annual visits with lawmakers on Capitol Hill, funding and participating in Congressional Briefings that highlight the National Eye Institute's AMD initiatives, and sponsoring legislation designed to sustain national AMD research.

AMDF also is a member of the ITEM Coalition, which seeks to expand Medicare coverage for low vision assistive devices.

Population(s) Served
People with vision impairments
Seniors

The foundation creates, updates and distributes educational materials designed to empower and inspire those affected by age-related macular degeneration (AMD). Its unique cookbook, "Eat Right for Your Sight," contains nutritious recipes for optimum eye health.

AMDF's growing portfolio of educational webinars combine patient and practitioner perspectives on emerging topics of relevance to the AMD community, all designed to empower patients and improve treatment outcomes by emphasizing the role of the patient in chronic disease management.

The foundation's "Mind, Body, Spirit" video series, available on the AMDF YouTube channel, addresses the non-medical aspects of living with AMD, including loss of independence, loss of mobility, depression and improving communications in a patient/helper relationship.

Individually tailored info/resource kits are available upon request.

Population(s) Served
People with vision impairments
Caregivers

AMDF enters into grant making, educational, advocacy and communications partnerships with other organizations committed to improving the lives of those affected by AMD. AMDF is a founding member of AMDCentral, a website that offers one-stop-shopping for educational materials from the five leading nonprofits in the AMD space.

Population(s) Served
People with vision impairments
Caregivers

AMDF supports initiatives designed to combat the depression, loss of independence, isolation and loss of sense of self engendered by AMD-related vision loss.

The Vision and Art Project (V&AP) is focused on profiling the lives and work of exceptional artists with macular degeneration. The project is undertaken as an educational initiative meant to bring public attention to the struggles, adaptations and triumphs of artists with vision loss. The V&AP also provides: a service to artists, whose late, post-macular works are often overlooked; a contribution to art history, video and audio interviews that are made available to writers and scholars.

AMDF is building a library of inspirational video profiles of people living with AMD, under the Living With Macular Degeneration umbrella.

The foundation offers an AMD Awareness pin (available on request), designed to spark conversations about AMD.

Population(s) Served
People with vision impairments
Adults

Where we work

Financials

AMERICAN MACULAR DEGENERATION FOUNDATION INC
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Operations

The people, governance practices, and partners that make the organization tick.

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AMERICAN MACULAR DEGENERATION FOUNDATION INC

Board of directors
as of 03/07/2024
SOURCE: Self-reported by organization
Board chair

Chip Goehring

no affiliation

John H. Breck, III, Esq.

no affiliation

Louise L. Hallas, Esq.

David Kriebel

Organizational demographics

SOURCE: Self-reported; last updated 3/7/2024

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender
Sexual orientation
Decline to state
Disability status
Decline to state

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

No data

Disability